Genetics as a form of identity and affiliation? Recognizing the need for privacy. Katharina Liebsch , Hamburg. Point of interest : Sociology of every-day communication. What is the meaning of Genetics for so called ordinary people?
Genetics as a form of identity and affiliation?Recognizing the need for privacy
Katharina Liebsch, Hamburg
Field of Medicine:
1.Labelling from above, from a community of experts (scientists, legal experts and politicians)
2. behaviorof the person labelled as being “genetically at risk”, which presses from below.
Cystic Fibrosis (CF) is most common among Caucasians:
But:Beyondit’sethnicspecificity, CF points to a characteristic of manyforms of geneticdisorders:
How to deal withtheconditionalprobability of thegeneticknowledge?
Theexample of Mr. and Mrs. Jahn:
„Puzzlingexperience“ brougt up concerns:
One half of theparentsinterviewed
„Wedecidedthatit was importantforourdaughter to have a sibling, regardless, so thattheywouldhaveeachother. That’skind of howwelooked at it. So wedecided to do that“.
Twogroups of parentsinterviewed:
Dealing with genetic and ethnic information: