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Cancer Survival Toolbox. Lynn Barwick, LCSW Oncology Social Worker . ¡ Vida! Educational Series - Promoting Good Health. What is the Cancer Survival Toolbox?. A free, self-learning audio program Survivors can learn at their own speed and in their choice of settings.

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Cancer survival toolbox

Cancer Survival Toolbox

Lynn Barwick, LCSW

Oncology Social Worker

¡Vida! Educational Series - Promoting Good Health


What is the cancer survival toolbox
What is theCancer Survival Toolbox?

  • A free, self-learning audio program

  • Survivors can learn at their own speed and in their choice of settings


History of the cs toolbox
HISTORY OF THE CS TOOLBOX

  • Collaborative effort of patient advocacy, social work and nursing…

    • National Coalition for Cancer Survivorship (NCCS)

    • Oncology Nursing Society (ONS)

    • National Association of Social Work (NASW)

    • Association of Oncology Social Work (AOSW)

  • A confirmed need, several studies showed the need existed in the field


Definition of a cancer survivor
Definition of a Cancer Survivor

From the moment of diagnosis and for the balance of life, a person with cancer is a survivor. Because they are impacted by a loved ones diagnosis - family, friends, and caregivers are survivors too.

- National Coalition for Cancer Survivorship


The goal of using the cancer survival toolbox
The Goal of Using theCancer Survival Toolbox

To teach newly diagnosed cancer survivors, their caregivers, and those who have been living with cancer for some time, important life skills that foster empowerment and successful self-advocacy.


The toolbox addresses a demonstrated need
The Toolbox addresses a demonstrated need………

Only 25% of oncology nurses and oncology social workers believe their clients have the skills needed to be active partners in the health care team.


Arizona ranking:

Lowest in cancers among men

Second lowest in cancers among women.


So why are we here today if arizona has the lowest numbers
So why are we here today if Arizona has the lowest numbers?

  • According to ACS 2010 statistics:

    • 1,529,560 deaths in US from Cancer

    • 10, 630 deaths in Arizona from cancer

    • 29, 780 new cases of cancer diagnosed in Arizona alone

  • Of the newly diagnosed, many are uninsured and/or underinsured to cover the costs of care


The cancer survival toolbox is important because survivors need to
The Cancer Survival Toolboxis important because survivors need to...

  • know how to find information

  • make the best decisions

  • interact effectively with health care team members, family members, insurers, and employers


Why should social workers and nurses use the toolbox
Why Should Social Workers and Nurses Use the Toolbox?

  • There are many issues that are common to people who are dealing with cancer

  • Potential issues can become real and major challenges when they are not dealt with in timely ways.


Why promote the toolbox to survivors and their families
Why promote the Toolbox to survivors and their families?

  • The Toolbox gives survivors a basic level of information from which to develop an understanding of their cancer and their treatment plan

  • The CST helps health care professionals use their time effectively and efficiently


The cst is a validated culturally sensitive tool
The CST is a validated, culturally sensitive tool………

  • The Toolbox has been validated for use in culturally, economically, geographically, and cognitively diverse populations

  • The Toolbox case studies are culturally sensitive and varied


The cancer survival toolbox
The Cancer Survival Toolbox

  • Can be given to:

    • Individual survivors, especially those who are newly diagnosed

  • Can also be used in:

    • Support group settings

    • Psycho educational group settings


Cst all the tools you need for effective self advocacy training
CST: All the tools you need for effective self-advocacy training

  • Six Basic Skills Programs

  • Six Special Topics Programs

  • Disease-Specific Programs

  • Resource Book and Web Links

  • Most in English and Spanish

  • Group Facilitator’s Manual

  • Evaluation tools


The cancer survival toolbox basic skills programs
The Cancer Survival ToolboxBasic Skills Programs

  • Communication

  • Finding Information

  • Making Decisions

  • Solving Problems

  • Negotiating

  • Standing Up for Your Rights


Program one introduction to communication
Program One:Introduction to Communication

Audio Clip from Communication

Communication is “Saying what you need to say in ways that make it clear to others that what you have

to say is important.”


Program two finding information
Program Two: Finding Information

Being able to use many of the different available resources, to find information that will help in understanding cancer and its treatment.


Use reliable resources
Use Reliable Resources:

  • My Favorite Resources are:

    • American Cancer Society (ACS)

    • www.cancer.org

    • National Cancer institute (NCI) Cancer Information Service www.cancer.gov

    • NCI Physician Data Query (PDQ) www.cancer.gov/cancertopics/PDQ

    • Cancer Care www.cancercare.org


Program three making decisions
Program Three: Making Decisions

Identifying how you make decisions, how your style can work or how it can be improved, and how to weigh the pros and cons of deciding about cancer treatment.


Program four solving problems
Program Four:Solving Problems

Following the steps needed to solve a difficult situation in your life or daily activity.


Program five negotiating
Program Five: Negotiating

Talking with people involved in your health care, so you can get what you need to achieve the best quality of life possible


Program six standing up for your rights
Program Six:Standing Up for Your Rights

Learning to actively do something in your own best interest…

Also known as self-advocacy


Self advocacy
Self-Advocacy

  • It’s not about activism

  • Not just for those who are energetic, vocal and assertive

  • Begins at a very personal level

  • Includes the ability to understand information

  • Make informed choices about treatment, including 2nd opinions or no treatment if that is their choice

  • Find resources and support systems


Cst special topics
CST Special Topics

First Steps for the Newly Diagnosed

Topics for Older Persons

Finding Ways to Pay for Care

Caring for the Caregiver

Living Beyond Cancer

Dying Well - The Final Stage of Survivorship


First steps for the newly diagnosed
First Steps for theNewly Diagnosed

Information that needs to be gathered and decisions that need to be made in the initial days and weeks following a cancer diagnosis.


Topics for older persons
Topics for Older Persons

Cancer is common among older persons but being “older” should not add to the burden of the disease.


Finding ways to pay for care
Finding Ways to Pay for Care

Premise:

Insurance problems can pose barriers to getting quality cancer care.

Finding and paying for care is difficult, but not impossible.


Finding ways to pay for care1
Finding Ways to Pay for Care

Goal:

Help survivors prepare for and cope with the challenges of paying for care, medicines, and supplies, when dealing with cancer and its treatment.


Caring for the caregiver

Caring for the Caregiver

Goal:

To assist the caregiver in meeting his or her individual needs, while providing the best care and attention to the cancer survivor.


Caring for the caregiver1
Caring for the Caregiver

  • Strengthen skills and abilities and find and use new resources

  • Do a much better job of nurturing everyone involved – including the caregiver


Living beyond cancer
Living Beyond Cancer

  • Common physical effects of cancer and its treatment, and maintaining a personal health history

  • Sexuality and fertility 

  • Supporting family relationships

  • Emotional aspects

  • Health directives, wills and trusts, power of attorney, and financial planning 

  • Living with hope: Dealing with uncertainty


Dying well the final stage of survivorship
Dying Well – The Final Stage of Survivorship

An informative, supportive, and reassuring program designed to offer guidance and understanding about choices, resources, and what to expect during this last stage of survival.


The cancer survival toolbox1
The Cancer Survival Toolbox

Available at no cost!

To order, call toll-free:

877-NCCS-YES

877-622-7937

Listen, read or order online:

www.canceradvocacy.org

Also Available:

In Spanish

In Chinese (print only)


Local resources
Local Resources

American Cancer Society (ACS) 1-800-227-2345 www.cancer.org

Positive Impact, contact Holly at www.positiveimpactinc.org or call at 1-480-899-7791 or fax to 480-659-7581

Well Woman, provides exams, mammograms, pelvic and pap www.wellwomanhealthcheck.org LinkIN.nursing.arizona.edu


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