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Scientific Advisory Board Fragile X

Scientific Advisory Board Fragile X. AFrAHM asbl Monday November 18th, 2013. Olivier Crevoulin & François Rycx. Introduction. Round table - intro Simply using your native language Feel free to intervene at all time – this is your meeting. Agenda. Pre-mutation and related disorders

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Scientific Advisory Board Fragile X

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  1. Scientific Advisory BoardFragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin & François Rycx

  2. Introduction • Round table - intro • Simply using your native language • Feel free to intervene at all time – this is your meeting

  3. Agenda • Pre-mutation and related disorders • Awareness campaign for doctors and non-medical professionals • PAH: Plateforme Annonce Handicap • Conference for families 2014 • How to best support schools and related centers • Latest news –clinical trials; medical & non-medical research

  4. Pre-mutation Diagnostic for child, teenager FXTAS & FXPOI in Belgium

  5. Awareness Campaignearly detection & right intervention Postcard for pediatricians & GP European folder Quid non-medical staff ?

  6. PlateformeAnnonceHandicap

  7. Conference 2014for Families Round table - hot topics in your field

  8. Supporting schools & related center Round table

  9. Latest News to share? Round table

  10. Thank you! Your personal commitment makes the difference and gives hope to families

  11. Association X fragile Belgique • Website:www.x-fragile.be • Facebook: https://www.facebook.com/AssociationXFragileBelgique • Contact for SAB:Olivier Crevoulin – o.crevoulin@gmail.com – 0477 81 13 18François Rycx – francois.rycx@bt.com – 0496 57 35 19

  12. Fragiel • Website:www.fragiel.be

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