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Recruiting within AMSs

Recruiting within AMSs. AMSWS can recruit patients for studies like SCIPPS but note: Must have ethics approval from Aboriginal ethics committee I.e. Aboriginal Health & Medical Research Council Ethics Committee for NSW involve AMS early needs to be approved by Board partnership approach.

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Recruiting within AMSs

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  1. Recruiting within AMSs • AMSWS can recruit patients for studies like SCIPPS but note: • Must have ethics approval from Aboriginal ethics committee • I.e. Aboriginal Health & Medical Research Council Ethics Committee for NSW • involve AMS early • needs to be approved by Board • partnership approach

  2. Cultural issues • Just because its 200 years + since invasion don’t think we have lost our culture • Modern urban Aboriginal culture is strong and alive • Every community is different

  3. Ownership of research by Aboriginal people • What is being collected? • The right researcher • Ownership of health information • Writing it up and publishing • also need approval of research findings & report by ethics committee and AMS before publication

  4. NSW Aboriginal Health Information Guidelines 1998 • guiding principles regarding the use of Aboriginal health information, including research data. • Access through “research and ethics” at http://www.ahmrc.org.au

  5. Other resources Coalition for Research to Improve Aboriginal Health (CRIAH) - a partnership between Aboriginal communities and researchers to encourage and facilitate research that will improve Aboriginal health • “CRIAH Tools for Collaboration”, also available at http://www.ahmrc.org.au

  6. Research linked to action “Don’t go into communities and promise things you can’t deliver”

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