Introduction to public health november 7 2004
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Introduction to Public Health November 7, 2004. Community Assessment with Health Disparities Groups Judith Bradford, Ph.D. Community Health Research Initiative Survey and Evaluation Research Lab [email protected] Defining the Population. Communities.

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Introduction to Public Health November 7, 2004

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Introduction to public health november 7 2004

Introduction to Public HealthNovember 7, 2004

Community Assessment with Health Disparities Groups

Judith Bradford, Ph.D.

Community Health Research Initiative

Survey and Evaluation Research Lab

[email protected]


Defining the population

Defining the Population


Communities

Communities

  • Of geography, such as a group of Census tracts, or a county or city

  • Of individuals with shared characteristics, such as demographic and/or other personal characteristics

  • Of affiliation, such as faith communities


Critical concepts

Critical Concepts

  • Community health is profoundly affected by the collective behaviors, attitudes, and beliefs of everyone who lives in/belongs to the community.

  • Partnerships are effective tools for improving health in communities.


Core issues and challenges

Core Issues and Challenges

  • Definition of community members -- who is in the community?

  • Trustworthy understanding of their characteristics and needs.

  • Feasible methods of gathering needed information about them.

  • Effective methods for involving community members in assessment and interpretation.


Policy framework

Policy Framework


Healthy people movement

Healthy People Movement

  • 1979: The Surgeon General’s Report on Health Promotion and Disease Prevention

  • 1980: Promoting Health/Preventing Disease

  • HP2000: National Health Promotion and Disease Prevention Objectives


Healthy people 2010

Healthy People 2010

Overarching purpose: promoting health and preventing illness, disability, and premature death

... grounded in science, built through public consensus, and designed to measure progress


Healthy people 20101

Healthy People 2010

Two overarching goals:

  • Increase quality and years of life

  • Eliminate health disparities

    Format: 467 objectives to improve health, organized into 28 focus areas.


Hp2010 perspective

HP2010 Perspective

  • …increase life expectancy and quality of life over the next 10 years by helping individuals gain the knowledge, motivation, and opportunities they need to make informed decisions about their health

  • …encourages local and state health leaders to develop community-wide and statewide efforts that promote healthy behaviors, create healthy environments, and increase access to high-quality health care.


Subgroups of concern for eliminating disparities

Subgroups of Concern for Eliminating Disparities

Differences that occur by….

  • gender

  • race or ethnicity

  • education or income

  • disability

  • living in rural localities

  • sexual orientation


Major hp2010 data sources

Major HP2010 Data Sources

  • National Health Interview Survey (NHIS)

  • National Health and Nutrition Examination Survey (NHANES)

  • National Vital Statistics System - Mortality (NVSS-M)

  • School Health Policies and Programs Study (SHPPS)

  • National Survey of Family Growth

  • National Vital Statistics System - Natality (NVSS-N)

  • National Hospital Discharge Survey

  • National Household Survey on Drug Abuse (NHDA)

  • National Profile of Local Health Departments (NPLHD)

  • Behavioral Risk Factor Surveillance System (BRFSS)

  • HIV/AIDS Case Surveillance System

  • Youth Risk Behavior Surveillance System (YRBSS)

  • Medical Expenditure Panel Survey (MEPS)


10 leading health indicators

10 Leading Health Indicators

  • Physical activity

  • Overweight and obesity

  • Tobacco use

  • Substance abuse

  • Responsible sexual behavior

  • Mental health

  • Injury and violence

  • Environmental quality (social)

  • Immunization

  • Access to health care


Public health infrastructure

Public Health Infrastructure

HP2010 Goal: Ensure that ... health agencies have the infrastructure to provide essential public health services effectively

  • Data and information systems

  • Workforce

  • Public health organizations

  • Resources

  • Prevention research


Essential public health services

Essential Public Health Services

  • Monitor heath status

  • Diagnose and investigate

  • Inform, educate, and empower

  • Mobilize community partnerships

  • Develop policies and plans

  • Enforce laws and regulations

  • Link people to personal health services

  • Assure a competent health care workforce

  • Evaluate effectiveness, accessibility, and quality

  • Research for new insights and solutions


Focus areas 1

Access to quality health services

Arthritis, osteoporosis, and chronic back conditions

Cancer

Chronic kidney disease

Diabetes

Disability and secondary conditions

Educational and community-based programs

Environmental health

Family planning

Food safety

Health communication

Focus Areas - 1


Focus areas 2

Heart disease and stroke

HIV

Immunization and infectious diseases

Injury and violence prevention

Maternal, infant, and child health

Medical product safety

Mental health and mental disorders

Nutrition and overweight

Occupational safety and health

Oral health

Focus Areas - 2


Focus areas 3

Physical activity and fitness

Public health infrastructure

Respiratory diseases

Sexually transmitted diseases

Substance abuse

Tobacco use

Vision and hearing

Focus Areas - 3


Limitations of current system for hp2010 community assessment

“Disparities populations” ….

are not always easy to find

are sometimes difficult to define (and therefore to count)

may be poorly understood by the “system”

may have low political/social priority

may even be considered less valuable or otherwise inconvenient

Limitations of Current System forHP2010 Community Assessment


For example sampling for heath needs of lgbt communities

For example, sampling for heath needs of LGBT communities

What’s the question?

Who is in the community?

On a scale of 1 - 10….

How complete are available data?

How difficult to obtain currently unavailable data?

Which sampling strategies are most effective?


Using existing data sets

Using existing data sets

How to determine the distribution of identified cases in a geographic area defined by Census tracts?

(using same-sex HH data from 1990 & 2000; difficulty 2)


Introduction to public health november 7 2004

How to capture reliable data on the local health priorities of sexual minority African American women?

No existing federal data system contains directly relevant data.

  • Successful example: Community forum and priority setting through partnership with community organizations.

  • Difficulty: 8


How to determine the hiv risks and prevention needs of transgender persons in virginia

How to determine the HIV risks and prevention needs of Transgender persons in Virginia?

No existing federal data system will do this.

  • Web-based and mail-back surveys.

  • Strategies: set up field study with regional managers and gatekeepers from; careful translation of concepts; even more careful selection of survey administrators.

  • Anticipated difficulty: 10


Conclusions

Conclusions

  • Current public health data systems are inadequate for comprehensive community assessment.

  • There is a “disconnect” between HP2010 goals and readiness of public health infrastructure to fully respond.

  • Additional assessment methods must be carefully chosen to fit the community of interest and challenges it presents.

  • Effective participation by community of interest is critical.


The need for social behavioral research

The need for social-behavioral research

…the nature of human relationships – the degree to which an individual is interconnected and embedded in a community – is vital to an individual’s health and well-being as well as to the health and vitality of entire populations.

Berkman LF, Glass T. Social integration, social networks, social support and health, in Social Epidemiology, Berkman LF and Kawachi I, Eds. New York: Oxford University Press, 2000.


What are our major challenges in conducting lgbt assessments

What are our major challenges in conducting LGBT assessments?

  • Acknowledging, accepting disparities within LGBT communities.

  • Placing higher priority on least understood areas.

  • Recognizing the power and implications of cultural context for LGBT health.

  • Finding common cause and forming strong affiliations to work across dividing lines.


So many questions

So many questions…

  • Who is the population we wish to study?

  • What factors influence their lives and lead to health disparities?

  • What are the questions we need to ask and answer?

  • What methods are best to use?

  • How do we put it all together?


Social ecological model for levels of influence

Social-Ecological Model for Levels of Influence

McElroy KR, Bibeau D, Steckler A, Glanz . An ecological perspective on health promotion programs. Health Education Quarterly 15:351-377, 1988.


Introduction to public health november 7 2004

Interpersonal: family, friends, peers that provide social identity, support and identity

Individual: awareness, knowledge, attitudes, beliefs, values, preferences

Public Policy: local, state and federal government policies, regulations, and laws

Community: social networks, standards and practices among organizations

Institutional/Organ-izational: rules, policies, procedures, environment, and informal structures within an organization or system


Community based participatory research

Community-based participatory research

CBPR…

  • recognizes community as a unit of identity

  • builds on strengths and resources within the community

  • Facilitates collaborative, equitable partnership in all phases of the research

  • Promotes co-learning and capacity building among all partners

  • Integrates and achieves a balance between research and action for the mutual benefit of all partners


Introduction to public health november 7 2004

CBPR…

  • emphasizes local relevance of public health problems and ecological perspectives that recognize and attend to the multiple determinants of health and disease.

  • involves systems development through a cyclical and iterative process.

  • disseminates findings and knowledge gained to all partners and involves all partners in the dissemination process.

  • involves a long-term process and commitment.

    Minkler M, Wallerstein N (Eds.). Community Based Participatory Research for Health. San Francisco: Jossey-Bass & Co., 2003.


Contributions to the field of social and behavioral health from lgbt health disparities studies

Contributions to the field of social and behavioral health from LGBT health disparities studies

  • Communities cannot be usefully studied without their own participation, through partnership and with mutual accountability.

  • As we do this work together, we are learning, and with each step forward, there is a general increase in knowledge. We are using what we learn.

  • LGBT community research provides a model for use by others – a foundation that can be built upon to address and to learn from diversity.


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