Dr leah jones yr athro professor richard hastings dr vaso tostika
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Ymwybyddiaeth O falgar er L les Rhieni P lant ag A nableddau Deallusol a D atblygiadol Mindfulness-Based Support for Parents of Children with Intellectual and Developmental Disabilities. Dr Leah Jones Yr Athro / Professor Richard Hastings Dr Vaso Tostika.

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Dr Leah Jones Yr Athro / Professor Richard Hastings Dr Vaso Tostika

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YmwybyddiaethOfalgarerLlesRhieniPlant agAnableddauDeallusol a DatblygiadolMindfulness-Based Support for Parents of Children with Intellectual and Developmental Disabilities

Dr Leah Jones

YrAthro / Professor Richard Hastings

DrVasoTostika


Ymwybyddiaethofalgarerllesrhieni plant aganableddaudeallusola datblygiadolMindfulness-Based Support for Parents of Children with Intellectual and Developmental Disabilities

  • Pam foangencefnogi’rrhieniyma? Why do these parents need supporting?

  • Pam ymwybyddiaethofalgar? Why mindfulness?

  • Datblygucwrsargyferrhieni Developing a course for parents

  • Cynnal y cwrsyngNgogleddCymru Hosting a course in North Wales

  • Gwerthuso’rcwrs Evaluating the course


Pam foangencefnogi’rrhieniyma?Why do these parents need supporting?

  • Rhieni plant aganableddau- ynenwedigawtistiaeth- ynadroddlefelauuchel o ofid, yncynnwysstraen, gorbryder ac iselderParents of children with disabilities- autism in particular- report elevated levels of distress, including stress, anxiety and depression

  • Gofidyngysylltiedigagymddygiad plant, ynogystalâffactoraueraill, e.e. statwseconomaidd, rhwydwaithcefnogol, brwydro am wasanaethauDistress associated with child behaviours, as well as other factors, e.g. economic status, support network, battling for services

  • Nidpobrhiantsyddyndioddef;mae’nbwysigdarganfodsutfodrhaiynaddasu/ymdopiynfwyeffeithiol nag eraillNot all parents experience negative outcomes; it’s important to understand how some paretns adjust more effectively than others

  • Tystiolaethfodprosesaugwybyddolsy’ngysylltiedigagymwybyddiaethynchwaraerhanmewnlles y rhienisyddynaddasuyn well (Jones et al, 2013) Evidence to suggest psychological processes associated with mindfulness are involved in better adjusted parents


Beth ywymwybyddiaethofalgar?What is mindfulness?

  • Talusylwynfwriadol at brofiadaucorfforol (meddyliau, ymdeimladaucorfforol, emosiynau, ymddygiad) fel y maentyndigwyddyn y foment Deliberately attending to our bodily experiences (thoughts, sensations, emotions and behaviours) whilst they unfold in the present moment

  • Ynchwilfrydig a gydag ‘meddwldechreuwr’ With curiosity and a ‘beginners mind’

  • Hebfarnu Without judgment

  • Hebgeisionewidy profiad Accepting without trying to change the experience

  • HebymatebynawtomatigWithout reacting automatically


Sutifeithrinymwybyddiaethofalgar?How to cultivate mindfulness?

  • CaiffeiddatblygudrwyymarferionmyfyrdodIt is developed through meditating


Wrthfeithrinyrymwybyddiaethymagallem:By fostering a mindful approach we are able to:

  • Gweldeinprofiadauynglir, a dewissutiymateb,ynlleymatebynawtomatigSee our experiences more clearly and choose how to respond rather than react automatically

  • Troituag at anawsterau a sialensiau Turn towards difficulties and challenges

  • Adnabodpatrymauymdeimladaucorfforol, emosiynau, meddyliau, ac ymddygiad Recognize sensations, emotions, thoughts and behaviours

  • Cydnabod, caniatau a derbyneinprofiadau Recognize, allow and accept experiences

  • Camu’nôl Take a step back

  • Sylwiar a gwerthfawrogiprofiadaudymunol Notice and appreciate positive experiences


DatblygucwrsargyferrieniDeveloping a course for parents

  • Mae ynagyrsiauymwybyddiaethwedieusefydlu: There are established mindfulness courses:

    Mindfulness-Based Stress Reduction (MBSR)

    Mindfulness-Based Cognitive Therapy (MBCT)

  • Gwnaethomni (gydaGanolfanYmwybyddiaethOfalgarYmchwil ac Ymarfer, Prifysgol Bangor) ddatblygucwrsnewyddargyferrieni: We developed a new course for parents in collaboration with the Centre for Mindfulness Research and Practice:

    Mindfulness-Based Well-Being course for Parents (MBW-P)

  • Wedieisefydluar MBSR, ondymarferionbyrrach, a deunyddmwypenodolargyferrieni, a mwy o bwyslaisarhunan-drugareddBased on MBSR, with shorter practices, materials more specific to paretns, and with greater emphasis on self-compassion


CynnwysCwrsYmwybyddiaethOfalgarerLlesRhieniMindfuless-Based Wellbeing Course-Parent Course Content

Gweithgareddauymarfercartref bob wythnosynseiliedigargynnwysdosbarthyrwythnoshwnnw / Weekly home practices basaed of content of that week’s session


Cynnal y cwrsyngNgogleddCymruHosting the course in North Wales

  • 3 cwrsmewn 3 ysgolAnghenionArbennig 3 courses in 3 Special Educational Schools

  • Dros 300 gwahoddiad- 10% ynymateb Over 300 paretns invited- 10% responded

  • O’rrhainwnaeth 21 rhiantyngwblhaucwrs (18 mam, a 3 tad; 1 cwpl) Of which 21 paretns completed a couse (18 mothers, 3 fathers, 1 couple)

  • 17 rhiantyncyd-fywgydaphartner, 4 ynsengl17 parents were cohabiting with a partner, 4 paretns were single

  • 44.65 mlwyddoedargyfartaleddOn average 44.65 years of age

  • 16 rhiantyngweithio, 5 ynddi-waith16 parents were employed, 5 unemployed

  • Canolrifincwmteulu £25,000- £35,000 Modal household income £25,000-£25,000


Cynnal y cwrsyngNgogleddCymruHosting the course in North Wales

  • Plant y rhieniyn 10.53 mlwyddoed, argyfartaledd Parents’ children were on average 10.53 years of age

  • Wediderbyn diagnosis 5.11 blyneddyngynharachChildren received their diagnosis on average 5.11 years previously

  • 16 diagnosis o AnhwylderSbectrwmAwtistiaeth16 children had a disganosis of an Autism Spectrum Disorder

  • 1 x syndrom Down / Down syndrome; 2 x ParlysyrYmennydd/ Cerebral Palsy; 2 x anabledddeallusolcyffredinol/ general learning disability

  • 13 x bachgen/ boys; 8 x merch/girls

  • 15 o’r pant mewnysgolangenionarbennig/ 15 children attending a special educational school

  • I gydynbywgartraheforhieni/ all children living at home with parents


Gwerthuso’rCwrsEvaluating the Course

  • Rhieniyncwblhaupecyn o holiaduroncyn ac wedi’rcwrsParents complete a questionnaire pack before and after the course

  • Cyfranwyrynsylweddol: Participants were significantly:

    Mwyymwybodol/ more mindful (p = .008; d = 0.49)

    Mwyhunandosturiol/ more self-compassioante(p = .039; d = 0.39)

    Llaidanstraen/ less stressed (p = .031; d = 0.49)

  • Erddimynsylweddol, roeddhefydnewidiadaumewnlefelau: gorbryder, iselder a phrofiadaucadarnhaolAlthough not to significant levels, there were positive changes to levels of anxiety, depression and positive gains


Boddhadgydawahanolagweddau’rcwrs Satisfaction with different aspects of the course


Casgliadau/ Conclusions

  • Mae’nanodddodigasgliadpenodolwediastudiaeth ‘peilot’ It’s difficult to come to definitive conclusions following a pilot study

  • Mae’rcanlyniadauynawgrymu bod hyfforddiantymwybyddiaethofalgarynfuddiolirieni, ac ynannogymchwiliadpellach The results do suggest that mindfulness-based support is beneficial to parents and therefore warrants further investigation


Adnoddau / Resources

www.bangor.ac.uk/mindfulness (CMRP Bangor)

www.bemindful.co.uk(Mental Health Foundation)

www.bemindfulonline.com (Mental Health Foundation)

www.franticworld.com/ (Finding Peace in a Frantic World)


Diolch am wrandoThank you for listening

  • Am fanylionpellachcysylltwchâ:

    For further information please contact:

    [email protected]


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