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EACTS Congenital Heart Disease Committee

EACTS Congenital Heart Disease Committee. Annual Database Report Bohdan Maruszewski. March 24th 2007. Database growth No of patients and Procedures. New data harvest. www.eactscongenitaldb.org. 250 Centers from 5 8 countries 103 active Centers from 30 countries Number of patients

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EACTS Congenital Heart Disease Committee

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  1. EACTS Congenital Heart Disease Committee Annual Database Report Bohdan Maruszewski March 24th 2007

  2. Database growthNo of patients and Procedures New data harvest www.eactscongenitaldb.org

  3. 250 Centers from 58 countries 103 active Centers from 30 countries Number of patients ALL 44.721 Children 18.097 Infants 15.200 Neonates 8.626 Adults 2.796 Number of Procedures ALL 51.148 Children 20.617 Infants 16.790 Neonates 9.887 Adults 3.854 Yesterday Stockholm, September 2006 Today Windsor, March 2007 209 Centers from 55 countries 88 active Centers from 30 countries Number of patients • ALL 37.307 • Children 15.028 • Infants 12.689 • Neonates 7.163 • Adults 2.427 Number of Procedures • ALL 42.313 • Children 17.759 • Infants 13.900 • Neonates 8.141 • Adults 2.513 www.eactscongenitaldb.org

  4. Standard report All patients No of patients: 44.721 No of operations: 51.148 30 days mortality: 4,64% No of deaths: 2.077 www.eactscongenitaldb.org

  5. Standard report Infants No of patients: 15.200 No of operations: 16.790 30 days mortality: 4,53% No of deaths: 688 www.eactscongenitaldb.org

  6. Standard report Neonates No of patients: 8.626 No of operations: 9.887 30 days mortality: 11,06% No of deaths: 954 www.eactscongenitaldb.org

  7. Standard report - March 2007 Standard report All patients International Nomenclature for CHD - 2005 International Nomenclature for CHD - 2000 www.eactscongenitaldb.org

  8. Standard report - March 2007 Standard report Infants International Nomenclature for CHD - 2005 International Nomenclature for CHD - 2000 www.eactscongenitaldb.org

  9. Standard report - March 2007 Standard report Neonates International Nomenclature for CHD - 2005 International Nomenclature for CHD - 2000 www.eactscongenitaldb.org

  10. Mortalty vs primary procedure All patients

  11. Mortalty vs primary procedure Infants

  12. Mortalty vs primary procedure Neonates

  13. User name No of visits First visit Last visit Website visitsexample www.eactscongenitaldb.org

  14. Website visits- dB users, 20061.484(all visits since June 2004 – 4.689) www.eactscongenitaldb.org

  15. Activities 2006 • Continuous development of the data collection software (Java, PgSQL) • network installations, validation procedures moved to client software, multilingual (6 lang.) • Development of website software • national reports, some on line reports publicly available, new age groups (neonates, Infants, children, adults) • Continued Source Data Verification – 5 Centers in 2006 • Cooperation with STS • Data analysis, cooperation with Aristotle Institute, Data submission to Aristotle project • Increased number of registered Centers 183 -> 242 • Publications and presentations

  16. Verified Centers 11 institutions 2003 data (verified in 2004) 1. Pediatric Cardiac Surgery - Eppendorf University Hospital (UKE) Hamburg, Germany 2.Ist. Di Chirurgia Cardiovascolare " V.Gallucci" - Ospedale Civile, Padova, Italy 3. Dipartimento di Cardiologia Pediatrica - Ospedale Pediatrico Bambino Gesù, Roma, Italy 4. Thoracic Surgery - Leiden University Hospital, Leiden, Netherlands 5. Department for Paediatric Cardiothoracic Surgery - The Children's Memorial Health Institute, Warsaw, Poland 2004 data (verified in 2005) 1. Department for Paediatric Cardiothoracic Surgery - Polish Mother's Health Centre - Research Institute, Lodz, Poland 2. Klinik für Herz- und Gefäßchirurgie - Deutsches Herzzentrum München, München, Germany 3. Department of Cardiovascular Surgery - Baskent University Ankara Hospital, Ankara, Turkey 4. Department for Paediatric Cardiothoracic Surgery - The Children's Memorial Health Institute, Warsaw, Poland 5. The Dprtm. of Cardiothoracic Surg. Division for Congenital Heart Diseases, Onassis Cardiac Surgery Centre, Athens, Greece 2005 data (verified in 2006) 1. Klinik für Herz- und Gefäßchirurgie - Deutsches Herzzentrum München, München, Germany 2. Pediatric Cardiac Surgery - University Childrens Hospital, Zürich, Switzerland 3. Dept. of Thoracic, Cardiac and Vascular Surgery - Tuebingen University Hospital, Tuebingen, Germany 4. Department for Paediatric Cardiothoracic Surgery - The Children's Memorial Health Institute, Warsaw, Poland 5. The Dprtm. of Cardiothoracic Surg. Division for Congenital Heart Diseases, Onassis Cardiac Surgery Centre, Athens, Greece www.eactscongenitaldb.org

  17. Source Data Verification2004-2006(data of 2003 – 2005) No of verified procedures vs age groups: adults : 763 children :1.684 infants : 845 neonates:1.711 ----------------------------------- All operations: 5.003 No of all collected procedures for 2003 – 2005: 22.536 Verified procedures: 5.003 = 22,2 % for 2003 - 2005 and 11,8% of all procedures in Database www.eactscongenitaldb.org

  18. Verification reports and certificates distributed in March 2007

  19. Cooperation with National Societies Italy (17)L. Zannini Germany (24) ? Spain (11)? Poland (5)B. Maruszewski Netherlands(5)M. Hazekamp Belgium (5) P.Sergeant www.eactscongenitaldb.org

  20. Cooperation with National Societies • 2005 • German CTS and Pediatric Cardiology Society – Berlin, 13th July • 2006 • Italian CTS Society Meeting - Rome 4-5 December (Database booth) • French CTS Society Meeting – Paris 7-8 December • Polish CTS Society Meeting – Katowice, 5th of May • 2007 • The Netherlands - Meeting with reprezentatives of all cardiac units • – 4th April in Utrecht www.eactscongenitaldb.org

  21. Database presentations - 2006 • Annual Meeting of Society of Thoracic Surgeons – January, Chicago • Annual Meeting European Congenital Heart Surgeons Association – May, Tuebingen, Germany • Annual Meeting of Polish CTS Society – May, Katowice • Annual meeting of EACTS – September, Stockholm • Annual Meeting of Italian CTS Society – December, Rome • Annual Meeting of French CTS Society – December, Paris

  22. Database publications

  23. Activities for 2007 • Data verification in 7 Centers (2 in Poland) • New format of National report as sugested by L.Zannini – under discussion • Merging data of two nomenclatures (2000 & 2005) • Update of publicly available reports • Database presentations: • April: Amsterdam,Padova • May: Washington (AATS), Athens • September: Geneva (EACTS) • November: Bergamo (Rastelli lecture)

  24. Thank you for attention

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