the history of ais dsd support group
Download
Skip this Video
Download Presentation
The History of AIS-DSD Support Group

Loading in 2 Seconds...

play fullscreen
1 / 23

The History of AIS-DSD Support Group - PowerPoint PPT Presentation


  • 92 Views
  • Uploaded on

The History of AIS-DSD Support Group. Charmian A. Quigley, MBBS Associate Professor of Pediatric Endocrinology Indiana University School of Medicine. Medical Advisor to AIS-DSD Support Group (USA). San Francisco, CA 20 th July, 2014. History of AIS-DSD SG.

loader
I am the owner, or an agent authorized to act on behalf of the owner, of the copyrighted work described.
capcha
Download Presentation

PowerPoint Slideshow about ' The History of AIS-DSD Support Group' - trilby


An Image/Link below is provided (as is) to download presentation

Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author.While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server.


- - - - - - - - - - - - - - - - - - - - - - - - - - E N D - - - - - - - - - - - - - - - - - - - - - - - - - -
Presentation Transcript
the history of ais dsd support group

The History of AIS-DSD Support Group

Charmian A. Quigley, MBBS

Associate Professor of Pediatric Endocrinology

Indiana University School of Medicine

Medical Advisor to AIS-DSD Support Group (USA)

San Francisco, CA

20th July, 2014

history of ais dsd sg
History of AIS-DSD SG

1950 1990 1995 2000 2005 2010 2015

1953: Morris describes

"Testicular Feminization“

AKA “Morris Syndrome”

dr j morris 1953
Dr J Morris, 1953:

“It goes without saying that it would be unwise to inform the patient of the true state of affairs . . it seems only necessary to state that childbearing is impossible.”

history of ais dsd sg1
History of AIS-DSD SG

1953: DNA

discovered

1959

Chromosomes

discovered

1950 1990 1995 2000 2005 2010 2015

1953: Morris describes

"Testicular Feminization“

AKA “Morris Syndrome”

1988:

Margaret Simmonds

starts AISSG (UK)

1988 androgen insensitivity support group uk
1988: Androgen Insensitivity Support Group (UK)
  • Established by Margaret Simmonds
history of ais dsd sg2
History of AIS-DSD SG

1953: DNA

discovered

1959

Chromosomes

discovered

1993: Bo Laurent

Founds ISNA

1950 1990 1995 2000 2005 2010 2015

1953: Morris describes

"Testicular Feminization“

AKA “Morris Syndrome”

1988:

Margaret Simmonds

starts AISSG (UK)

history of ais dsd sg3
History of AIS-DSD SG

1953: DNA

discovered

1995:

Sheri Groveman

attends AISSG

meetings in UK

1995:

Sheri Groveman

starts AISSG-USA

1959

Chromosomes

discovered

1993: Bo Laurent

Founds ISNA

1950 1990 1995 2000 2005 2010 2015

1953: Morris describes

"Testicular Feminization“

AKA “Morris Syndrome”

1988:

Margaret Simmonds

starts AISSG (UK)

sherri groveman morris founder of ais sg
Sherri GrovemanMorris: founder of AIS-SG
  • Sherri shared the incredible thrill she experienced “to realize there was support after feeling alone on the planet for 36 years.”
  • Sherri: “It is the culmination of my life’s dream to have others with whom to share my thoughts and feelings about having AIS.”
history of ais dsd sg4
History of AIS-DSD SG

1953: DNA

discovered

1995:

Sheri Groveman

attends AISSG

meetings in UK

1995:

Sheri Groveman

starts AISSG-USA

1959

Chromosomes

discovered

1993: Bo Laurent

Founds ISNA

1950 1990 1995 2000 2005 2010 2015

1953: Morris describes

"Testicular Feminization“

AKA “Morris Syndrome”

Sept 7 1996:

1st meeting

of AISSG in NYC

1988:

Margaret Simmonds

starts AISSG (UK)

history of ais dsd sg5

Created by webmaven Cindy Stone

History of AIS-DSD SG
  • Annual meetings
    • 1996 - New York
    • 1997 – San Diego
    • 1998 – Chicago
    • 1999 – Seattle
history of ais dsd sg6

Created by webmaven Cindy Stone

History of AIS-DSD SG
  • Annual meetings
    • 1996 - New York
    • 1997 – San Diego
    • 1998 – Chicago
    • 1999 – Seattle
    • 2000 – Boston
    • 2001 – Denver
    • 2002 – St Louis
    • 2003 – Toronto
history of ais dsd sg7

Created by webmaven Cindy Stone

History of AIS-DSD SG
  • 2011 – Seattle
  • 2012 – Oklahoma City
  • 2013 – Boston
  • 2014 - San Francisco (#19)
  • Annual meetings
    • 1996 - New York
    • 1997 – San Diego
    • 1998 – Chicago
    • 1999 – Seattle
    • 2000 – Boston
    • 2001 – Denver
    • 2002 – St Louis
    • 2003 – Toronto
    • 2004 – Madison
    • 2005 – Palo Alto
    • 2006 – Bloomington
    • 2007 – Raleigh
    • 2008 – Chicago
    • 2009 – Dallas
    • 2010 - Nashville
history of ais dsd sg8
History of AIS-DSD SG

~2001: AISSG

listerv begins

1953: DNA

discovered

2000: Arlene Baratz

attends her

1st meeting

1995:

Sheri Groveman

attends AISSG

meetings in UK

2011

AISSG becomes

AIS-DSD-SG-FWAF

2006

“Chicago Consensus

Statement”

published

2006

Teen track added to

meeting program

1995:

Sheri Groveman

starts AISSG-USA

1959

Chromosomes

discovered

2014:

Beyond gender binary

(all gender bathroom)

1993: Bo Laurent

Founds ISNA

1997: Donna L

joins Sherri in

organizing AISSG

1950 1990 1995 2000 2005 2010 2015

1953: Morris describes

"Testicular Feminization“

AKA “Morris Syndrome”

2004: start of

parents’ email circle

2013: men’s track

added to

meeting program;

AIS-DSD SG drops

the “FWAF” part

Sept 7 1996:

1st meeting

of AISSG in NYC

1988:

Margaret Simmonds

starts AISSG (UK)

2002: Susie D

becomes

treasurer

2000: 501(c)(3)

status achieved

changes over time
Changes Over Time
  • Membership
  • Website/logo
  • Support group name
  • 2011: group changes name AISDSDSGFWAF
  • = “Androgen Insensitivity Syndrome-Disorders of Sex Development Support Group for Women and Families” (AISDSDSGFWAF)
thank you
THANK YOU
  • Jeanne Nollman
  • Jane Goto
  • Amber Jones
  • Georgiann Davis
  • Other board members
  • AND . . . . . .
changes over time1
Changes Over Time
  • Membership
  • Support group name
  • Name used at annual meetings
    • and names on name badges
  • Website
  • Logo
  • Diversity
  • Balance (support/advocacy)
ad