End of Life Care Training Programme for Staff Working with People with Learning Disabilities

1. End of Life Care Training Programmefor Staff Working with People with Learning Disabilities Nicola Le Prevost Nurse Consultant End of Life Care / Flexi Clinical Lecturer Pilgrims Hospice Tracey Rose Matron Learning Disabilities Team

2. How did this all come about? • Patient experience story from the Hospice

3. How to improve ? • Reflection • Meet the experts

4. How to Improve? • Review evidence • Formulate a plan • Collaborate

5. Project • Collaboration between partner organisations to manage and deliver project • Participation across sectors in Kent • Funding from HEE KSS • Inter-agency working practice Aim • Improve and steer best practice for caring and supporting people with learning disabilities and those important to them. • Developing partnership and proactive education in end of life care

6. Outcome • Improved practice of those who are caring and supporting people with learning disabilities and those who are important to them. • Developed partnerships, education programme and resources for end of life care, for staff who are caring for people who have a learning disability

7. Practice development has been used in numerous ways to enhance clinical services, such as to increase quality and safety in healthcare within a unit, to develop shared values and service priorities and to improve communication within a healthcare team (McCormack, 2010 ; McCormack et al., 2013).

8. What has been achieved ? • Practice Improvements • Personal development

9. Professional practice reflecting the NMC Code of Conduct achieved

10. Resources / References https://www.caresearch.com.au/TEL/ • https://www.pcpld.org/ • CIPOLD: https://www.bristol.ac.uk/media-library/sites/cipold/migrated/documents/fullfinalreport.pdf • https://www.england.nhs.uk/wp-content/uploads/2017/08/delivering-end-of-life-care-for-people-with-learning-disability.pdfllfinalreport.pdf