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World Bank/Yale University Global Survey on HIV/AIDS and Disability. Nora Groce, Ph.D: Yale University Dr. Debrework Zewdie Global HIV/AIDS Program, World Bank Hon. Judith Heumann- World Bank Office of the Advisor on Disability and Development.

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World bank yale university global survey on hiv aids and disability

World Bank/Yale UniversityGlobal Survey on HIV/AIDS and Disability

Nora Groce, Ph.D: Yale University

Dr. Debrework Zewdie

Global HIV/AIDS Program, World Bank

Hon. Judith Heumann- World Bank

Office of the Advisor on Disability and Development



Incorrectly believed that
Incorrectly believed that: included in AIDS outreach efforts

  • They are not sexually active

  • They are unlikely to use intravenous

    drugs

    * They are less likely to be victims of violence – including sexual abuse & rape


Embarked on project to
Embarked on Project to included in AIDS outreach efforts

  • Assess current state of knowledge about the impact of HIV/AIDS on disabled individuals and populations

  • Document current activities related on HIV/AIDS and disability worldwide

  • Identify models of good interventions currently in place or in planning

  • Identify gaps in the current system


Over the past year have done the following
Over the past year, have done the following: included in AIDS outreach efforts

  • Global literature search to identify all knownscientific articles/resources/training manuals/researchers

  • Developed and disseminated a Survey via e-mail & ground mail on HIV/AIDS


Two key questions
Two Key Questions included in AIDS outreach efforts

  • Is AIDS a significant concern to disabled population around the globe

  • Are AIDS messages reaching disabled populations?


Mailed or e mailed to

Mailed or E-mailed to: included in AIDS outreach efforts

* 2800 compiled for the project on on our listserv

* Carried by additional listservs to another 2000-3000 sites


Distribution of responses 978 responses from 57 countries
Distribution of Responses: 978 responses from 57 Countries included in AIDS outreach efforts

  • Governmental, NGO, Disability Advocacy organizations

  • From Organizations serving 5 to > 100,000

  • From India and China to Faroe Islands

    • 43% Sub-Saharan African; 23% Asia, 10% Americas, 3% Pacific Islands


What we currently know
What we currently know: included in AIDS outreach efforts


All risk associated with hiv are increased for individuals with disability
All risk Associated with HIV are increased for individuals with Disability

  • Stigma

  • Poverty

  • Lack of Education

  • Risk of violence and rape

  • Substance abuse

  • Lack of accessible and affordable care


Disability and sexuality
Disability and Sexuality with Disability

  • Adolescents with many (although not all) types of disability reach puberty at the same age as their peers;

  • Adolescents and adults with disability are as likely to be sexually active as non-disabled peers;

  • Homosexuality and Bisexuality occurs at the same rate as among non-disabled


Even when in school
Even when in School with Disability

  • Less likely to receive education in science and health education

  • More likely to routinely be excused from sex education courses

  • Far more likely than peers to drop out of school & drop out of school at an earlier age

    • UNICEF. A Global Overview of Young People Living with Disabilities. 1999


Why they are not being reached
Why they are not being reached: with Disability

  • Lack of education inhibits ability to

    obtain information

    * Information in Inaccessible Formats:

    - Radio campaigns miss the Deaf;

    • Billboards do not reach the Blind;

    • Complex/ vague messages do not reach those with intellectual impairments

    • Clinics/services are inaccessible


Subgroups are at still higher risk
Subgroups are at still higher risk with Disability

  • Women

  • Minorities

  • Individuals with disability who are homosexual or bisexual

  • AIDS Orphans who have an existing disability


Also lack of access to
Also Lack of Access to with Disability

  • Health care for HIV/AIDS if infected

  • Drug and alcohol program

  • Domestic violence intervention programs

  • Community Centers, clinics and other places where condoms are distributed, AIDS education is held, etc.,etc.,


Missing
Missing with Disability

  • Understanding of what programs work and why they work to provide education, intervention & etc. for disabled populations

  • What specific clinical needs might exist for individuals with disability vis-à-vis AIDS

  • For those few pilot projects already available, monitoring or evaluation


Interventions a continuum
Interventions: A Continuum with Disability

  • Type I: Inclusion as part of the general population with little or no adaptation needed

  • Type II: Inclusion as part of the general population with low/moderate cost adaptations

  • Type III: Disability-specific, targeted interventions; Involvement of disability advocacy as AIDS educators


Conclusion
Conclusion with Disability

  • Individuals with Disability face all known risk factors for HIV/AIDS and at equal to up to three times greater risk of HIV infection than non-disabled individuals


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