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IL ASAP Retreat. March 21 & 22, 2012 Statehouse Inn Springfield, IL. Agenda Wednesday, March 21. 1:30pm: Lunch 2:00pm: Speakout , tell your story, about IL ASAP 3:00pm: Break 3:15pm: 2012 issues – Federal, State 4:00pm: Tell your story, practice, getting around the Capitol

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IL ASAP Retreat

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IL ASAP Retreat

March 21 & 22, 2012

Statehouse Inn

Springfield, IL

AgendaWednesday, March 21

  • 1:30pm: Lunch

  • 2:00pm:Speakout, tell your story, about IL ASAP

  • 3:00pm: Break

  • 3:15pm: 2012 issues – Federal, State

  • 4:00pm: Tell your story, practice, getting around the Capitol

  • 4:30pm: Adjourn

  • 5:30pm: IL Health Matters Legislator Reception

  • 7:30pm: Dinner


Tell your story

IL ASAP – An Overview


The mission of IL ASAP is to develop and support effective HIV policy and to nurture and support HIV advocacy leaders throughout Illinois.

Why Create IL ASAP?

  • Build advocacy leadership and contacts in each part of the state

  • Coordinate advocacy efforts and bolster participation of constituents outside of Chicago

  • Create working relationships between different regions

  • In short, form an all-star team to push for fair HIV/AIDS Policy!

Why Create IL ASAP? Con’t

  • A mutually-beneficial relationship where AFC and the participants could communicate and learn more about the unique needs of each region of the state

  • A structure where AFC can provide technical assistance to other areas of the state on a more consistent basis

  • A network where AFC can streamline large, grassroots advocacy efforts and target public officials anywhere in the state at the drop of a hat


  • To advocate for the HIV/AIDS community of Illinois and IL ASAP concerns at the local, state and national levels, while supporting the mission statement of IL ASAP.

  • Attendance and participation at all required IL ASAP events, meetings and retreats.

  • Participation on all IL ASAP mandated calls unless excused.

  • Provide input, if applicable, in the selection of new IL ASAP members.

  • Maintenance of a professional appearance and conduct at all public and political events and meetings.

  • To notify the IL ASAP Co-chairs regarding any barriers or issues that may impede or prevent their ability to comply with the minimum expectations of IL ASAP members.

  • Maintain confidentiality of all information per the AFC Confidentiality Agreement.

  • Maintain and support a positive environment in which all IL ASAP members may excel and grow, with more experienced members being mentors and examples to the newer members.

Failure to Meet or Maintain Minimum Expectations

  • The IL ASAP Co-chairs should be notified as soon as an issue is identified.

  • The IL ASAP Co-chairs engage the member(s) in question

  • In the event of repeated occurrences, the IL ASAP Co-chairs will engage the member(s) in question in a formal discussion,

  • If we cannot reach a satisfactory resolution, the matter will be referred to AFC leadership

  • Elected IL ASAP members who grossly or regularly fail to meet or maintain the minimum expectations may be:

    • Removal from a leadership or elected IL ASAP position.

    • Possible dismissal from IL ASAP.

    • Other actions deemed appropriate by AFC leadership.

IL ASAP Confidentiality Statement

AIDS Foundation of Chicago and IL Alliance for Sound AIDS Policy (IL ASAP) members are expected to maintain the strictest confidentiality regarding AFC’s internal documents and personal information of other IL ASAP members. All AFC staff, IL ASAP members, interns, and volunteers are expressly prohibited from discussing client information (including but not limited to: HIV status or other medical information; personal information such as Social Security numbers, addresses, phone numbers and other related data; other demographic information) with anyone whose job responsibilities do not require them to have access to such information.

Staff and IL ASAP members shall also not disclose any other confidential information encountered during their work with AFC. Other confidential information may include, but is not limited to: AFC budgetary or contractual information, AFC donor information, and AFC proprietary information. When in doubt as to whether information being released is considered confidential, members should consult with an AFC staff member.

Unauthorized release of client or other confidential information and/or failure to comply with the above policies may result in disciplinary action, up to and including termination of membership.

By signing below, I verify that I will observe strict confidentiality of any confidential information I may obtain from any source. This notice is in compliance with the IL AIDS Confidentiality Act and the Confidentiality Policies of the AIDS Foundation of Chicago’s (AFC’s) Personnel Policies and Procedures.

By signing I further verify that I have received information about confidentiality and understand the confidentiality policies of the AIDS Foundation of Chicago.

The Online Action Bulletin


Golden Rules of the OAB

  • Take the OAB fact sheet to every meeting you attend

  • Include a mention of the OAB in every presentation you give

  • Respond to the OAB when you get it in your mailbox

  • Forward the OAB to your e-mail networks

  • Post the OAB on your Facebook

  • If your friends and colleagues are slow to take action, bribe them – candy works wonders

  • Follow up with your legislators, let them know you care about the issue and are paying attention

  • Follow up with your friends and colleagues, let them know you care about the issue and are paying attention

Policy Issues 2012

2012 Illinois General Assembly Legislative Update HIV/AIDS Issues

AIDS Foundation of Chicago

March 21 , 2011

State budget and HIV Funding

  • FY12 state HIV funding: $30.88 million

    • Quinn proposed an 11% or $3.5 million cut.

    • Final amount: $29.39 million (5% or $1.5 million cut)

  • Budget consolidate four HIV funding accounts into one

    • HIV & Corrections ($1.9 m),

    • Minority HIV/AIDS Prevention ($3.1 m),

    • HIV/AIDS Hotline ($355,000),

    • ADAP & other HIV programs ($25.4 m)

  • FY13 state HIV funding: $25.4 million

    • Quinn proposed an 14% or 4 million cut.

    • HIV Lump sum amount again.

    • ADAP flat funded from FY12

    • Entire $4 million funding cut would come out of community-based HIV prevention, housing, corrections, minority health-promotion and harm reduction programs– resulting in a 50% cuts in these programs.

FY 13 state HIV funding concerns

Based on public health evidence of average HIV treatment costs and anticipated HIV infections that result from those with undiagnosed HIV infection, we estimate that this reduction will increase costs to Illinois by $6.9 million in FY 13 because more people will need HIV treatment, and others will be re-incarcerated after re-entry programs are de-funded. In addition, the state will face an additional $40 million in lifetime health care costs for people newly infected with HIV because of the proposed funding cuts.

  • 108 additional people will be newly infected with HIV

    • 54 are likely to be African American, 17 Latino, and 37 white, based on the racial/ethnic distribution of HIV new cases in Illinois

    • 38 infants will be born with preventable HIV-infection because 150 HIV-positive pregnant women won't get intensive case management

    • 38 additional people will be newly infected because 6,467 fewer HIV tests and other services will be offered

    • 32 people will be newly infected because 1,262 drug users won’t get counseling & supplies

  • 563 people with HIV will lose life-supporting services

    • 563 low-income people with HIV will lose access to food, dental, primary physician care, medical case management, transportation, mental health and substance abuse treatment, likely worsening health outcomes and increasing health care costs

  • 114 people with HIV will lose housing

    • 114 highly vulnerable people with HIV will lose access to housing, resulting in homelessness and less adherence to medications. They will face worse health outcomes and higher health care costs.

  • 255 people with HIV will be re-incarcerated at a cost of $5.6 million

    • 255 people with HIV who left prison or jail will be re-incarcerated at a cost of $5.6 million per year (23% recidivism rate for participants vs. 51% general IDOC recidivism rate) because of funding cuts to a reentry program for people with HIV

    • 150 people with HIV released from prison or jail will not receive case management, housing, primary medical care, and mental health services, making them less likely to access HIV treatment

Additional funding cuts

Quinn also proposed spending cuts in several areas of concern for people with HIV:

  • Addiction Treatment for Medicaid Populations (-$5 million or 10 percent cut)

  • Mental Health Grants (-$58 million or 42 percent cut)

  • Emergency and Transitional Housing (-$4.4 million or 52 percent cut)

Cuts to Medicaid

The Illinois Medicaid program provides life-saving health coverage to nearly 2.7 million low-income children, parents, people with disabilities, and seniors.

However, the program faces a $2.7 billion deficit this year, and legislators are exploring a range of solutions.

On to Legislation…

  • Status: House on 3rd reading.

  • HIV rates are 2-3 times higher among inmates than the general population.

  • This bill would codify current practices and improve partner notification in correctional settings, requiring IDPH and IDOC to improve the system of partner notification.

  • Partner notification is voluntary and confidential.

Improving Community & Prison Partner Notification (HB 4453-Smith/Lightford)

  • Status: Passed Senate, awaits House floor vote.

  • If a public school in Illinois offers sex ed, it must be medically accurate, developmentally and age appropriate& must include the benefits of delaying or abstaining from sexual activity.

  • Parents can opt out.

  • Schools would be required to use evidence-based curriculums approved by the state. Parents can review the curriculum.

  • Funding is available from the feds to implement.

Comprehensive Sex Education in Schools (HB 3027 – Steans/Lilly)

  • Status: Senate on 3rd reading.

  • Would extend the expiration date on the “Quality of Life (Red Ribbon Lottery” until 2017.

  • Proceeds from the lottery fund HIV/AIDS prevention and care services for populations disproportionately affected by HIV/AIDS.

  • Fund raised $1.4 million for prevention and care last year.

Red Ribbon Lottery (SB 2971 J. Collins/Yarbrough)

  • Status: House amendment 3 on 2nd reading in Education committee.

  • In 2010, the General Assembly passed the School Prevention Act to define bullying and create a taskforce to look at ways to stop bullying.

  • This bill implements recommendations of the of the task force.

  • Adds physical appearance, socioeconomic status, academic status, pregnancy, parenting status and homelessness to protected classes from bullying.

  • Defines “policy on bullying” to give schools guidance to comply with the law.

Implementing effective anti-bullying measures (HB 5290 - Cassidy)


Register for AFC Lobby Day Wednesday, April 18th


Ramon Gardenhire,



Telling Your Story

  • YOU know HIV/AIDS issues

  • YOU are an expert on how HIV impacts your life

    • As a person living with HIV

    • As a person providing services to people living with HIV

  • Your personal experiences provide perspective and impact beyond statistics

  • Lawmakers need the human story and face to understand importance of policies

  • Introductions:

    • Give your name

    • Where you are from

    • Relevant background information about yourself

  • Talk about the expertise you bring:

    • As a person living with HIV

    • Someone working in the field

    • As a concerned community member

  • Talk about:

    • The issues and programs that matter to you and why

    • (ADAP, health care reform implementation, case management, housing assistance, mental health, substance use counseling and treatment, food and nutrition, prevention, etc.)

    • How those programs help/ed you

    • What would happen to you and others people living with HIV without these programs or if new programs were developed

  • Consult the fact sheets in your packets

  • Think about how the policy asks relate to your life and experiences

  • Use the testimony worksheet to help organize your thoughts

  • This is not the place to complain, but to offer viable solutions to problems and challenges

  • These are the policy and funding asks

  • Talk about what is working

  • Talk about where policies and programs can be improved

  • You may have only a few minutes

  • Make sure you and your group are well organized so you can deliver your message and ask clearly and concisely. Don’t use acronyms!

  • Stay on your issue

  • If conversation veers, bring it back!

  • Directly ask if you can count on the member’s support for:

    • Will you vote against a $4 million cut to HIV funding?

    • Will you vote against a $2 billion cut to Medicaid?

  • Wait and listen for a response

The Introduction:

  • My name is Jonathon Smith.

  • I am a lifelong resident of the district.

  • I am 29 years old and have lived with HIV for five years. My whole family lives in the area. I live alone and work for a small company that does not offer health insurance.

The Issue:

  • I am here to talk to you about the Illinois Personal Responsibility Education Program, which would require Illinois schools to teach age-appropriate, medically-accurate sexual health education programs.

The Personal Story:

  • When I was younger, I went to a school that taught that I should abstain from sex until I got married. I didn’t learn anything about how to use a condom or how HIV was transmitted.

  • My parents didn’t talk with me about sex either. I was forced to learn from TV and my friends.

  • The sex ed program set the tone that sex was a shameful act that I shouldn’t engage in. When I started to have sex, I felt I couldn’t ask anyone about how to prevent HIV or STDs. That’s just not right.

The Concern:

  • Illinois youth are not getting the facts they need to make responsible decisions about their health and future.

    The Consequences:

  • Providing medically-accurate and age-appropriate sexual health education programs must be one strategy to reduce HIV cases, unplanned pregnancies, and sexually transmitted diseases among youth.

The Solution:

  • The Illinois PREP Act requires schools that teach sex ed programs to provide medically-accurate and age-appropriate sex ed programs, using approved curriculums.

  • Schools won’t be required to offer sex ed; that remains optional.

  • Federal funding is available to help implement the programs in schools.

  • Any parent can remove their child from a sex ed class for any reason.

The Ask

  • Will you co-sponsor the Illinois PREP Act?

  • If the Senator answers no: “Will you vote yes on the bill?”

  • Make sure they give you a clear answer!

  • Ask politely: will you support or not?


  • Don’t argue—thank them and walk away.

Welcome to the Circus

The Illinois General Assembly

Your quest…

59 Senate Districts:

2 House Districts for Each Senate District

Senators serve 4-year terms

118 House Members:

Representatives serve 2-year terms

The Illinois General Assembly

The legislative process

Illinois State Capital Building—where lawmakers debate and vote

Stratton Building is where most state representatives have their offices

All state senators have their office in the Capitol

Lobbying at the State Capital

Finding your senators:

Go with other advocates with the same legislators. Your group leader can help you out.

See if they are in their offices; ask their assistants where they are (be super-nice!)

If needed, go to the committee room and wait patiently…(good place to rest!)

As they walk out, ask if they have a minute.

Finding your new BFF – your Senator

Go with other advocates with the same legislators. Your group leader can help you.

See if they are in their offices; ask their assistants where they are (be super-nice!)

If needed, go to the committee room and wait patiently… (good place to rest!)

As they walk out, ask if they have a minute.


Your own Illinois Senator and Representative

If possible, go with others from your district or a nearby district

Check in with us to see if you can get a special assignment!

Who do I visit?

  • House & Senate Sessions at 12 pm

  • Most visits happen “at the rail,” the public area just outside the House and Senate chambers

  • To request a lawmaker visit, pass your card to the doorkeepers and wait patiently

  • Be prepared for the CHAOS

Lobbying at ‘the rail’

Advocates Lobbying At ‘the Rail’

You may only have 30 seconds

Fact sheets reinforce your message – give themto your legislators!

The Stratton Building

Office Visit

AFC staff, IL ASAP members and others will be in red shirts. Ask them for directions!

Ask anyone for directions.

Take the TUNNEL between Stratton and the Capitol. Otherwise, you’ll go through security again.

Also helpful to know

I can’t find my legislator?

It’s a zoo?

It didn’t seem like my lawmaker was listening?

I didn’t get a chance to say everything?

What if…

  • If conducting meetings with other advocates, determine who will cover which issues.

    • Practice delivering them together.

  • Be PATIENT, polite and courteous. Don’t use acronyms!

  • Take note of any questions or requests for additional information.


Hand over the fact sheet at end of meeting

Be gracious, attentive and organized

Stay on your issue – don’t stray

Say “I don’t know” if you don’t know the answer to a question

Thank them for support (if appropriate) and time

Follow up!


Thank the Rep. or Senator for their time

Tell them you will follow up with them soon

Send them any additional information they requested

Keep track of their support or opposition and call or write to say thank you or to keep pushing them


AgendaThursday, March 22

  • 8:30am: Breakfast

  • 9:00am-11:00am: Lobbying at the Capitol/Stratton Building

  • 11:15-12:30: Feedback, planning for Lobby Days

  • 12:30pm: Lunch

  • 1:00pm: IL ASAP work plan

  • 2:00pm: Adjourn



  • $54 B being allocated this year, there is money– Harris & Delgado

  • Need to target approps

  • Bug Sarah about budget issues

  • Hernandez and Soto needs to get on board

  • Advocates need pictures of reps

  • Facebooks on tables at hotel

Lobby Days Planning

Experiences from Previous Lobby Days and Suggestions for this Year?

  • Follow up with phone call, home visit

  • Training advocates how to do in district work

  • Have fact sheets in advance to send to networks about issues

  • Send flyer to LGBT groups

  • IL ASAP members to HIV groups – Chris, Scott and Tony/Sharon, Chad TPAN

  • Send out IDPH 12 budget so ASAPers can show agencies

  • Chad and Donte and Scott – maybe speaking at rally

  • Make signs the night before – noisemakers other than Eric L.

  • Quick research on legislators you will be seeing

IL ASAP Role at Lobby Days

  • Leading small groups on trip to Capitol and guiding them to meet their legislators

  • Helping to run “home base” operations in the rotunda

Leading Groups to Capitol

  • Bus by Senator’s last name

  • Lead groups to Senators’ offices and rail

  • Give assistance to those needing help finding Rep.’s office

Other Roles IL ASAP Could Play?


IL ASAP 2012 Work Plan

IL ASAP Work Plan

  • What issue will affect all parts of Illinois in 2012?

  • Stigma – community level intervention not much legislative

  • Client involvement/access to services

  • State and fed budget cuts

  • Implementing HCR

    • Educating community about benefits

  • Elections

  • Youth issues

  • Housing

  • Issue identification

    • What are the concrete and specific problems we most need to address?

    • What concrete solutions can solve the problem(s)?

    • Health care reform unclear and confusing

    • How it benefits HIV/AIDS community

    • Incorporating issues like budget cuts, client involvement tying things together

    • Clear understanding of which parts of HCR may be overturned

  • Core Goal(s) & Objectives

    • What is our core goal(s)?

    • What are 2-4 clear objectives that IL ASAP can use to help determine the success of its plan?

    • Educate clients on impact of HCR – how many?

    • Educate IL ASAP on HCR

    • Documents/ppts/materials/toolkit

    • Humanizing the message/reframing issue

    • Educate state legislators on importance of HCR on HIV

  • Targets

    • Who are the decision makers and what influences their decisions?

  • Clients

  • Legislators

  • Community

  • Selves

  • Core Constituencies

    • What people/groups are most affected?

    • Who among them will be willing to participate in advocating for a solution?

    • Low-income

    • Medicaid

    • ADAP

    • Undocumented

    • LGBTQ

    • Sex workers

    • CBOs

    • Homeless pop

    • Domestic violence

  • Allies/Supporters

    • In addition to the core constituents, who will be supportive and helpful on the organizing effort?

    • How will you get their support?

  • AFC

  • Legislators

  • ASOs

  • Current HCR movement – CBHC

  • Medical community

  • Opposition

    • Who stands on the other side of this issue and will attempt to block/thwart or work against you?

    • How do you deal with them?

    • GOP

    • Budget hawks

    • Insurance / brokers

    • Self-insured orgs?

    • Small businesses

    • Some religious communities

  • Tactics/Activities

    • What tactics and activities will you use to accomplish your goal(s)?

    • What relationships does IL ASAP’s base, allies, supporters, etc. have with the targets?

    • Presentations

    • Town halls

    • Media campaign

    • Speaker meetings

    • Blogs

    • Youtube

    • Social network

    • Lobbying

    • Existing acitivities (CBHC)

    • Legislative visits

    • Webinars

    • Elections – GOTV, know candidates’ stances on HCR

  • Organizational Structure

    • How will you be organized to accomplish your goal?

    • Who makes what level of decision?

    • How will you communicate efficiently within the structure?

    • Working groups – possibly broken down by main objectives?

  • Key Messages

    • What are 2-4 key, clear, and publicly accessible messages for your campaign?

    • HCR is transform the fight against HIV/AIDS

    • Long-term money saver and life saver

    • Something about RW and Medicaid

  • Budget

    • What is the minimum amount of money you need to conduct a campaign?

    • How will you secure the necessary financial resources?

  • Community Building Activities

    • What are a few activities to build community and familiarity among the organizers?

  • Evaluation

    • How will you evaluate your campaign?

    • How will you know if you were successful?

    • Besides reaching our major goals, what other measurable outcomes are desirable?

Public Foundations & Non-Profits Must Abide by Same Restrictions

  • Who should IL ASAP actively outreach to support the work?

    • Organizations

    • Individuals

Public Foundations & Non-Profits Must Abide by Same Restrictions

  • What are specific actions IL ASAP could take to help advocates gain greater understanding about HIV/AIDS policy issues?

    Presentations/ teach in

    Lobby days


    Social media

    HCR bootcamp

    Text message campaign

    Direct action

    Survey community – what they know, need to know

Public Foundations & Non-Profits Must Abide by Same Restrictions

  • What are specific actions IL ASAP could take to help advocates enhance existing/learn new advocacy skills?

Public Foundations & Non-Profits Must Abide by Same Restrictions

  • What are specific actions IL ASAP could take to build client involvement?

  • Regional care reps

  • Support groups

  • Action coalitions

  • BTAN

  • Peer to peer


  • GSAs?

  • CORE

  • HB

  • TPAN

  • The Caucus

  • COH

  • iL prevention planning group

  • CABS

  • Planning bodies

  • CBOs

  • Rev Green FRA, prison work

  • CAN TV

Public Foundations & Non-Profits Must Abide by Same Restrictions

  • What simple, but concrete actions could IL ASAP develop for advocates to support the statewide policy agenda?

Public Foundations & Non-Profits Must Abide by Same Restrictions

  • For ASAP

    • Figure out organizational structure for work plan to meet objectives

    • IL ASAP members should make a list of orgs/people to reach out to

    • List of activities they could be involved in

  • For Pete

    • Plan HCR education for IL ASAP

    • Lucy to send out hotline list

    • Send this ppt to all and get input from absent members

Next Steps

Next Steps

  • AFC figure out how to target approps and others lobb days and in district visit

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