Community task force on oral health needs of people with developmental disabilities
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Community Task Force on Oral Health Needs of People with Developmental Disabilities. KEY FINDINGS. Workgroup Leaders. Demographics: Who is Receiving What from Whom ? – Ann Costello and Brian Klafehn Consumer Perceptions and Satisfaction – Lenora Colaruotolo

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Community Task Force on Oral Health Needs of People with Developmental Disabilities

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Community Task Force on Oral Health Needs of People with Developmental Disabilities

KEY FINDINGS


Workgroup Leaders

  • Demographics: Who is Receiving What from Whom?

    – Ann Costello and Brian Klafehn

  • Consumer Perceptions and Satisfaction

    – Lenora Colaruotolo

  • Provider Experiences and Expectations

    – Lisa DeLucia

  • Current and Unfolding Policy

    – Rich Speisman

  • Model IDD Oral Health Care Programs

    – Maricelle Abayon.

  • Facilitator

    – Larry Belle


Demographics: Who is ReceivingWhat from Whom?

  • FLDDSO -9,300 individuals in 2012 - Monroe, Wayne, Ontario, Livingston, Orleans.

  • 12,000 in the 11 county Finger Lakes region.

  • Monroe County (55%); with 40% between the ages of 21-44 years; and 35% living in some type of certified residence.

  • EIOH, RGH, Anthony Jordon, CP Rochester and FLDDO Dental Clinic - 2,786 patients (2011)-Wait time -ambulatory <6 months, OR >12 months.

  • <17% private DDS see Medicaid.


Demographics: Who is ReceivingWhat from Whom?

  • Development of a standard patient classification system to be used by the community-based clinics as well as private practice dentists.

  • Clarify the actual number of individuals receiving dental services on an annual basis by using DOH Medicaid claims data.

  • Determine how many individuals are not receiving routine, preventive dental services and why?

  • Work collaboratively with local area hospitals to reduce wait-time for needed OR services and improve oral health to mitigate the need for OR services.


Consumer Perceptions and Satisfaction

  • Determine areas of oral health satisfaction, perception and need.

  • Survey of local agencies and Focus groups of constituents.


Consumer Perceptions and Satisfaction


Perceptions on Oral Health Care


Suggestions for Improvement

  • 80% of dental disease occurs in 20% of the population-the most underserved and least likely to access services and care.(NOT SAMPLED)

  • Patient-centered care.

  • Knowledgeable staff and practitioners.

  • Universal design.

  • The concerns and requests of the family members should be incorporated into any systemic design of oral health services for this population.


Provider Experiences and Expectations

  • Surveys and Focus Groups.

  • 7th District Dental Society and Dental Hygiene Society, RGH and EIOH.

  • 151 respondents – DDS 59% (high % specialists and institutional providers), OH 41%.

  • Close to 70% of respondents treated individuals with IDD and feel relatively comfortable and competent doing so.

  • Respondents felt more competent and prepared to treat patients with mobility issues than they did with patients who had communication and behavioral limitations.

  • High % wanted additional training.


Topics for Continuing Education


Current and Unfolding Policy

  • Managed Care.

  • Fragile and ever-changing dental reimbursement picture.

  • Reduction or elimination of services.

  • Dental Accreditation.

  • Role of Dental Hygienists.

  • Inefficient and limited use of OR care.

  • Dental Disco Advisory Group (DDSG).

  • Opportunity for demonstration projects.


Model IDD Oral Health Care Programs

  • Atlantic County Special Services School District by University of Medicine and Dentistry of New Jersey.

  • The Special Smiles Program – Philadelphia.

  • Tufts, Boston – closed.

  • Glassman, San Francisco.


Glassman Model California

  • Focuses on prevention of dental diseases.

  • Utilizes a case management approach.

  • Employs a tiered delivery system.

  • Provides care as close as possible to where individuals with IDD disabilities live, work and go to school.

  • Enables hygienists to play a major role in oral health maintenance, as well as in education of family and caregivers.

  • Use of Tele-health.

  • Uses existing community health professionals in new ways.

  • Rewards services that will improve oral health.


Website

Full report and executive summary can be found on the following website:

http://www.urmc.rochester.edu/dentistry/news-events.aspx


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