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Issues in respite and carer support

Issues in respite and carer support. Chris Gration, National Respite 30 June, 2014. 1 . Respite in 3 service systems. Care recipient. Carer. CHSP. NDIS. Mental Health. Respite Care . Carer support. ?. ?. ?. Family resilience model?. 2. Trends .

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Issues in respite and carer support

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  1. Issues in respite and carer support Chris Gration, National Respite 30 June, 2014

  2. 1. Respite in 3 service systems Care recipient Carer CHSP NDIS Mental Health Respite Care Carer support ? ? ? Family resilience model?

  3. 2. Trends • Unmet demand up 33% between the 2009 and 2012 SDAC • 15.8% or 121,660 carers • Unmet demand for respite care increases with age: • > 65 the unmet demand is 16.9%, • > 75 it is 19.61% (compared to general unmet demand in 2009 of 11.8%) • Respite is already targeted to higher dependency: • Respite use increases dramatically (60% of respite use is for carers < 40 hours of care a week). • But respite users have higher wellness and satisfaction deficits: • indicating need for more support (significantly more angry, dissatisfied, weary, worried or depressed, stressed related illness) • 2/3s of unmet demand in 2012 was from those who have never had access to respite. • 12% of carers have never used respite because the primary recipient (aged person) doesn’t want to use it (2012) • 10% of those who don’t use respite are simply not aware of their entitlements or what services are available (2012)

  4. 3. CHSP issues Respite & Carers • Unmet need – 15.8% • Eligibility for carers • Access: • 12% not used because primary recipient unfavourable • 10% information gaps • Carer support? • Carelink information? • Transition for NRCP clients • Innovation and evaluation: • Early intervention respite • Flexible respite General • Key directions – access and equity, role of carers, pathways, person centred • “Basic”? • Pathways and packages • Case management & linkage • Vulnerability • Transition principles: • No client loses – person centred • Contestability

  5. 4. NDIS issues • NDIS Act tension between: • Section 31 (da) “build capacity of families and carers to support participation by the individual in life” • Section 34 (e) “ what is reasonable for families, carers, informal networks and the community to provide” • NDIS Supports for Sustaining Informal Supports • 2 major issues for respite services • Resolving dual outcomes • Small and medium not-for-profit • We seek from the Government • Clear guidance in operational guidelines • Focus on structural adjustment • Flexible respite • Family resilience model

  6. 5. National Respite • Raise the respite voice • Member services • Research: • Mapping respite outputs • NDIS transition cost/benefit/impact carers, participants, communities government • Volunteer, flexible, family based – cost benefit; social capital • Evaluate innovation: flexible, early intervention • Business transformation : CMS • National Conference 23-24 October

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