Ensuring access to data and information capacity building for tropical diseases
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Ensuring Access to Data and Information - Capacity Building for Tropical Diseases. Lester Chitsulo Special Programme for Research and Training in Tropical Diseases (TDR) World Health Organization, Geneva, Switzerland. Permanent Access to Scientific Information in Southern Africa

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Ensuring access to data and information capacity building for tropical diseases

Ensuring Access to Data and Information-Capacity Building for Tropical Diseases

Lester Chitsulo

Special Programme for Research and Training in Tropical Diseases (TDR)

World Health Organization, Geneva, Switzerland

Permanent Access to Scientific Information in Southern Africa

An International Workshop

5-7 September 2005, Pretoria, South Africa


Purpose of this presentation
Purpose of this presentation

  • To give an overview of Tropical Diseases Research (TDR) programme

  • To discuss capacity building efforts for ensuring that data and information from research are accurate, reproducible, robust and are disseminated


Tdr objectives
TDR Objectives

  • To support research to improve and/or develop new tools for preventing, diagnosing, treating, and controlling neglected infectious diseases

  • To strengthen the capacity of disease endemic countries to undertake the research required for disease control


Tdr disease portfolio
TDR Disease Portfolio

  • African trypanosomiasis

  • Chagas disease

  • Dengue

  • Leishmaniasis

  • Leprosy

  • Lymphatic filariasis

  • Malaria

  • Onchocerciasis

  • Schistosomiasis

  • Tuberculosis.


TDR Structure

Disease Coordinator 1

Disease Coordinator 2

Disease Coordinator 3

Director

SSK

PPM

Disease Coordinator n

SDR

PDE

IRM

RCS

LDCs

“RCS-Plus”



Tdr works through committee structures with external advisors
TDR works through Committee Structures with External Advisors

Secretariat @ 20+ persons

Advisors @ 200+ persons


Tdr support
TDR Support Advisors

  • Collaborative research grants – tenable globally

  • Research capacity strengthening grants for disease endemic countries

  • Research training grants,including career development fellowships

  • Re-entry grants

  • Project specific training, good practices

  • Establishment of networks

  • Access to scientific literature and communications – hardware, software and training

  • www.who.int/tdr


Capacity building approaches Advisors

`

Global

networks

A

p

p

r

o

a

c

h

mapping grants

(supply and demand)

N-S & S-S

partnerhips

MIM/TDR

Partnership grants

Regional

approaches

Regional networks

Small grants

Institution

Research systems

R&D-driven projects

Programme-based

Research

self-reliance

Degree training

Group training

Re-entry

Individual

Capacity Building Support




is Advisorsa global network for developing ethical review and promote ethical and scientific values in biomedical research

SIDCER

FECCIS

FOCUS

FERCAP

FLACEIS

PABIN

http://www.sidcer.org


Quality Practice in basic Advisors

biomedical research

  • Data from basic research must be reliable in order to ensure a solid basis for decision making

  • Fully described experimental conditions and properly collected and recorded data will ensure reproducibility and avoid controversies

  • QPBBR is concerned with the way the research work is organised, performed, reported and supervised

  • It is a non-regulatory quality guidance for researchers in basic biomedical research



Good Clinical Practices Advisors

Laboratory Assessment

SOPs Training


Clinical data management
CLINICAL DATA MANAGEMENT Advisors

  • Training in clinical data management

  • 8 Clinical data management centres

    • China, Colombia, Ethiopia, India (2), Japan (2), and Thailand

    • To ensure production of high quality databases that meet clinical and regulatory requirements

  • WHO/TDR Annual Meeting on Clinical Data Management, Second Military Medical University, Shanghai, September 26-28, 2005.  

  • http://www.cdmtdr.org/




Multilateral Initiative on Malaria (MIM). Advisors

Communication

Research grants

Coordination

from 2006

Reagents


  • Biggest global malaria conference Advisors

  • Major participation of African scientists (> 1500)

  • Strong interface with malaria control

  • Important malaria advocacy event

  • TDR sponsored symposia on R & D innovation in Africa


Partnerships for msc programmes
Partnerships for MSc programmes Advisors

L'Universite

D'Abomey-CalaviI


Centers of excellence for applied genomics
Centers of excellence for applied genomics Advisors

Latin American Course

on Bioinformatics

for Tropical Disease Research

FIOCRUZ

South African National Bioinformatics Institute


Conclusion
Conclusion Advisors

  • We should build capacity that insures that data and information from tropical diseases research are accurate, reproducible and accessible.

  • Thank you for the opportunity to share ideas with you.


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