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UK Stem Cell Strategic Forum Recommendations C Craddock, University of Birmingham . Our Aims and Objectives . The UK Stem Cell Strategic Forum was established at the request of the Minister of State for Public Health in February 2010. Led by NHS Blood and Transplant.
C Craddock, University of Birmingham
The UK Stem Cell Strategic Forum was established at the request of the Minister of State for Public Health in February 2010.
Led by NHS Blood and Transplant.
To deliver a comprehensive strategy to meet the needs of UK patients for unrelated haemopoietic stem cells.
Working with stakeholders, service providers, experts to:
Understand the healthcare and economic challenges of alternative donor transplantation
Find new ways of working together to save and improve patients’ lives.
Allogeneic stem cell transplantation remains the only curative therapy
for children and adults with high risk haematological malignancies
Initially confined to patients with matched sibling donors but excellent
outcomes now achievable using unrelated and cord blood donors
Major barriers limit the extension of a curative option to all:
Absence of a suitable donor-particularly affects patients from BME communities
Delays in identifying a suitable donor
Death from transplant toxicity or disease relapse
Lack of a coordinated UK strategy to deliver alternative donor stem cells and high quality transplant care
Historic opportunity to increase number of lives saved by Tx and establish
the UK as a leader in stem cell provision and transplant
Review structured to be as inclusive as possible – hence Working Groups supporting the Forum.
Other ‘Reference’ Groups established as required to further draw on available expertise and opinion.
Key stakeholder engagement via workshop and/or briefings:
Orin Lewis - The African Caribbean Leukaemia Trust (Chair)
The Cord Blood Charity
The Jeanette Crizzle Trust
The Adrian Sudbury Campaign
Private cord blood banks
The All-Party Parliamentary Group on Umbilical Cord Blood and Adult Stem Cells
Professor David Marks (chair) – consultant transplant physician
Dr Mary Horowitz (Head CIBMTR, USA)
Prof Eliane Gluckman (Hospital St Louis, Paris)
Dr Fred Appelabuam (Fred Hutchinson Cancer Centre, Seattle USA)
Dr Paul Veys - consultant transplant physician
Dr Sergio Querol - consultant transplant physician
Dr Derwood Pamphilon – Medical Director BBMR and NHS-CBB
Stephen Dobra - DH Principal O.R. Analyst
Dr. Rachael Hough - Chair BSBMT CB Working Group
Dr Paresh Vyas – Research and Development
Kate Bingham - Schroder Venture Capital
Dr Andrew Hadley (chair) – Review co-ordinator
Dr Carlheinz Müller – Director, German Bone Marrow Registry
Henny Braund – CEO Anthony Nolan Trust
Lynda Hamlyn – CEO NHSBT
Colin Pavelin – Department of Health
Dr Derwood Pamphilon – UK Blood Services
Dr Kieran Morris – NI Blood Transfusion Service
Dr Geoff Poole – Welsh Blood Service
Keith Thompson – Scottish National Blood Transfusion Service
Prof Antonio Pagliuca (chair) – President BSBMT
Dr Jackie Cornish – Consultant Transplant Physician
Mike Millen – Specialist Commissioner
Cathy Edwards – Specialist Commissioner
Jessica Whitton, Commissioning Manager, South West specialised Commissioning Group
These measures are intended to create a ‘fit panel’ of volunteer donors. Collectively, they would:
Improve the Provision of Cord Blood Stem Cells