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Prevalence of Epilepsy in the Philippines

Prevalence of Epilepsy in the Philippines. Population of 83 million and an estimated prevalence of 0.9% an estimated 750,000 people with epilepsy in the country majority in the productive years of their life (Chua 2007).

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Prevalence of Epilepsy in the Philippines

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  1. Prevalence of Epilepsy in the Philippines • Population of 83 million and an estimated prevalence of 0.9% • an estimated 750,000 people with epilepsy in the country • majority in the productive years of their life (Chua 2007) Chua, Annabelle. Epilepsy surgery in the Philippines Neurology Asia 2007; 12 (Supplement 2) : 43 – 45

  2. WHO Western Pacific Region 2004 Key data on epilepsy: Epilepsy Professionals World Health Organization. "Epilepsy in the Western Pacific Region: A call to action." Global Campaign Against Epilepsy, 2004.

  3. WHO Western Pacific Region 2004 Key data on epilepsy: Epilepsy equipment, facilities, etc World Health Organization. "Epilepsy in the Western Pacific Region: A call to action." Global Campaign Against Epilepsy, 2004.

  4. WHO Western Pacific Region 2004 Key data on epilepsy: Major causes of seizures World Health Organization. "Epilepsy in the Western Pacific Region: A call to action." Global Campaign Against Epilepsy, 2004.

  5. WHO Western Pacific Region 2004 Key data on epilepsy: Available AEDs and cost World Health Organization. "Epilepsy in the Western Pacific Region: A call to action." Global Campaign Against Epilepsy, 2004.

  6. Awareness and understanding of epilepsy among patients, families, caregivers and health workers • Awareness • 32% of patients and caregivers and 11% of health workers have not heard or read any information about epilepsy • Etiology • 17% of health workers and 4% of patients and caregivers believe that epilepsy is contagious and can be transmitted by either marrying, caring for or living with a person with epilepsy or even by witnessing an epileptic attack Salonga, A.M. et al. 1999, Epilepsy Education Program: It’s Role In the Comprehensive Management of Children with Epilepsy”

  7. Awareness and understanding of epilepsy among patients, families, caregivers and health workers • Treatment • more parents and caregivers (86%) believe epilepsy can be cured with medications than health workers (68%) • 54-72% believe epilepsy can be cured with prayer Salonga, A.M. et al. 1999, Epilepsy Education Program: It’s Role In the Comprehensive Management of Children with Epilepsy”

  8. Awareness and understanding of epilepsy among patients, families, caregivers and health workers • What to do during an attack • about half of all the respondents will insert a spoon into the mouth • 1/3-2/3 will fan the patient • 1/3-2/3 will do nothing and wait • A smaller percentage will massage the patient, blow air on the face, put pressure on the stomach or even bite the patient. Salonga, A.M. et al. 1999, Epilepsy Education Program: It’s Role In the Comprehensive Management of Children with Epilepsy”

  9. Public Attitude and Awareness Towards EpilepsyA Public Pulse in a Tertiary Hospital • Awareness • 94.84% have heard or heard about epilepsy • 44.52% knows someone w/ epilepsy • 69.68% had seen an epileptic attack • Understanding epilepsy • 10.32% did not know what epilepsy was • 3.87% did not know what an epileptic attack looks like Piano, Anthony and Joanne Robles. "Public Attitude and Awareness Towards Epilepsy: A Public Pulse in a Tertiary Hospital ." (2008).

  10. Public Attitude and Awareness Towards EpilepsyA Public Pulse in a Tertiary Hospital • Attitude • 83.87% did not have any objections in having their children interact w/ persons w/ epilepsy • 31.61% would object to having their children marry someone w/ seizures • 76.77% believed that people w/ epilepsy should be employed • 8.39% believed that epilepsy is a form of insanity Piano, Anthony and Joanne Robles. "Public Attitude and Awareness Towards Epilepsy: A Public Pulse in a Tertiary Hospital ." (2008).

  11. Is Epilepsy a Burden? • Economic • Medical care is mostly shouldered out-of-pocket • Cost • Phenytoin 100mg/cap TID • P26/tab x 3 = P78/day • Levetiracetam 500mg/tab BID • P45/tab x 2 = P90/day

  12. Patient’s Perception Towards Epilepsy • Personal reaction to having epilepsy • fear • worry • uncertainty • anger, • confusion • self-pity • neutrality • heightened emotionality Cabral-Lim, Leonor. Epilepsy in the Philippines. September 28, 2001. http://www.plae.org.ph/web/epilepsy_information4.php.

  13. Patient’s Perception Towards Epilepsy • Difficulties encountered • taunting and irritability from others • difficulty in accomplishing tasks • feeling of being abandoned by family members • inability to pursue work and other activities • feeling of being a burden to family

  14. Patient’s Perception Towards Epilepsy • Reaction from others • being overprotective and restrictive • making fun of the person and labeling person as crazy • distancing and fear • majority of parents would not want their normal children nor themselves to marry a person with epilepsy Cabral-Lim, Leonor. Epilepsy in the Philippines. September 28, 2001. http://www.plae.org.ph/web/epilepsy_information4.php.

  15. Addressing the issues • Financing and budget • Increase health budget • Reduce OOP and increase health insurance coverage • Primary Prevention • Social • Increase awareness • Address social stigma

  16. Philippine League Against Epilepsy Awareness Campaigns http://www.plae.org.ph/web/plae_archives.php

  17. Philippine League Against Epilepsy Awareness Campaigns • Television Advertisement • "Tsismis" (Gossip) • Radio Advertisment • " Romy” • Raymonde please embed attached wav file http://www.plae.org.ph/web/plae_archives.php

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