Caring for the Caregiver Right to Flourish January 4, 2013. Introduction – Western Connecticut Area Agency on Aging: Who We Are / What We Do Caregiving for Your Loved Ones – Preparing for the Journey Managing Self Care: Basic Principles Managing Caregiving Stress
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Livia Fiordelisi, Care Manager
National Family Caregiver Support Program Coordinator, [email protected]
Western Connecticut Area Agency on Aging, 84 Progress Lane, Waterbury, CT 06705
203-757-5449 - 800-994-9422 - www.wcaaa.org
Return to normal
Dealing with certainty
Acute =/= Chronic
1 Challenges Alyce and her family faced?
2 Changes in Alyce?
3 How well did Alyce take care of herself?
What do you think?
1 What can I learn?
2 What changes do I need to consider?
3 What do I need to do to take better care of me?
Don’t become another Alyce
It’s up to me!
1 Recognize warning signs EARLY.
2 Identify sources of stress.
3 Identify what YOU can and cannot change.
4 Take action.
Don’t ignore it—Do address it!
Discuss àReport for partner
Ignore it—it festers
…grant me the serenity to
Accept the things
I cannot change,
Courage to change the things
I can, and the
Wisdom to know
—Reinhold Niebuhr, 1934
Accept what I cannot change
Benefits both listener and speaker
1. Have realistic expectations.
2. Keep it short and simple.
3. Use repetition.
4. Do not argue or correct.
5. Be aware of your body language.
6. Use touch.
Keys to open the door…
Western Connecticut Area Agency on Aging
Independence Northwest (disability services)
Alzheimer’s Association, CT Chapter
Parkinson’s Disease Association, CT Chapter
National Alliance on Mental Illness (NAMI) CT Chapter
Strike it Rich
CT Department of Social Services. Elder Serviceswww.ct.gov/agingservices Learn more about Connecticut’s National Family Caregiver Support Program page and other helpful programs.
Eldercare Locatorwww.eldercare.gov The Eldercare Locator, a public service of the Administration on Aging, U.S. Department of Health and Human Services, is a nationwide service that connects older Americans and their caregivers with information on senior services.
ElderCare Onlinewww.ec-online.net A site for those caring for aging and parents and elderly loved ones. They are committed to providing senior resources, home health care advice and an online community where supportive peers and professionals help improve the quality of life for caregivers and elders.
Family Caregiving 101www.familycaregiving101.org A joint venture of the National Family Caregivers Association (NFCA) and the National Alliance for Caregiving (NAC) to recognize, support and advise family caregivers.
Strike it Rich
FCA: Family Caregivers Alliancewww.caregiver.org/caregiver FCA is a public voice for caregivers. FCA programs—information, education, services, research and advocacy—support and sustain the important work of families nationwide caring for loved ones with chronic, disabling health conditions.
National Center on Grandparents Raising Grandchildrenchhs.gsu.edu/nationalcenter The National Center was established in 2001, within the College of Health and Human Sciences at Georgia State University. The group’s aim is to support grandparent-headed families in order that they may secure a promising future for their grandchildren.
National Family Caregivers Associationwww.nfcacares.org The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.
The Rosalyn Carter Institute for Caregivingwww.rosalynncarter.org Dedicated to establishing local, state and national partnerships committed to building quality long-term, home and community- based services. The Institute provides family caregivers with effective supports and making investments that promote caregiver health, skills and resilience.
Strike it Rich