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Synchronicity and Self-Help Support in Flanders

Synchronicity and Self-Help Support in Flanders. Patient participation: pillars, partners and projects 10th European Expert Meeting on Self-Help Support 2-4 September 2009, Berlin. Synchronicity and self-help support. 1. Self-help in Flanders 2. Pillars of patient participation

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Synchronicity and Self-Help Support in Flanders

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  1. Synchronicity and Self-Help Support in Flanders Patient participation: pillars, partners and projects 10th European Expert Meeting on Self-Help Support 2-4 September 2009, Berlin

  2. Synchronicity and self-help support 1. Self-help in Flanders 2. Pillars of patient participation 3. Experiential expertise 4. Provincial clearinghouses 5. Professionals 6. Questions for discussion

  3. 1. Self-Help in Flanders • 1.400 self-help groups • 1 Flemish and two provincial clearinghouses • Indirect support by policymakers • Increased interest in patient participation by (non)governemental actors

  4. 2. Pillars of patient participation 1. Strengthening self-help groups to mobilize their experiential expertise 2. Reinforcing and developing provincial clearinghouses 3. Sensitizing, informing and educating health and welfare professionals

  5. 2. Pillars of patient participation 1. Strengthening self-help groups to mobilize their experiential expertise 2. Reinforcing and developing provincial clearinghouses 3. Sensitizing, informing and educating health and welfare professionals

  6. 3. Experiential expertise 3.1 Definition 3.2 Added value 3.3 Partners and projects

  7. 3.1 Experiential expertise: definition • Source of social support (Vaux, 1986) • Social support as coping assistance (Thoits, 1976) • New concept for the analysis of self-help groups (Borkman, 1976) • Often confounded with experiential knowledge

  8. 3.1 Experiential expertise: definition Experiential knowledge is the ultimate source of patient-specific knowledge – the often implicit, lived experiences of individual patients with their bodies and their illnesses as well as with care and cure. (Caron-Flinterman e.a., 2005)

  9. 3.1 Experiential expertise: definition Experiential expertise is the shared experiential knowledge, the communal body of knowledge that exceeds the boundaries of individual experiences. (Caron-Flinterman e.a., 2005) Self-help groups are “experiential learning communities”. (Borkman, 1976)

  10. 3.2 Experiential expertise: added value • Legitimized patient participation • Improved quality of life, care, policy, research • On the micro, meso and macrolevel • For patients, their families, health and welfare professionals, policymakers

  11. 3.3 Experiential expertise: partners and projects • King Baudouin Foundation (KBF) • Research on “Reliable, high-quality information for people suffering from a chronic disease” (2008, Trefpunt Zelfhulp) • Course on developing and mobilizing experiential expertise in representants of self-help groups (2010-2011, Trefpunt Zelfhulp) • Call for projects to implement patient participation in Belgium (2010-, shg’s)

  12. Pillars of patient participation 1. Strengthening self-help groups to mobilize their experiential expertise 2.Reinforcing and developing provincial clearinghouses 3. Sensitizing, informing and educating health and welfare professionals

  13. 4. Provincial clearinghouses 4.1 Definition 4.2 Added value 4.3 Partners and projects

  14. 4.1 Provincial Clearinghouses: definition • WGO-model: self-help support on different geographical levels (WHO/Euro,1982) • Adapted by Germany and Switzerland

  15. 4.2 Provincial Clearinghouses: added value • Self-help groups • Access to resources • More members through referral • Cooperation on the local level • Provinces • Increased access to users’ views • Access to a complementary form of help

  16. 4.3 Provincial Clearinghouses: partners and projects • Flemish Government, Ministery of Welfare, Public Health and Family • Provinces • Project on “Developing intermediairy self-help support in Flanders” (Trefpunt Zelfhulp, 2008-2009) • Reinforcing existing centres (East-Flanders, Limburg) and developing centres in Antwerp, Flemish-Brabant and West-Flanders • Concluding a covenant

  17. Pillars of patient participation 1. Strengthening self-help groups to mobilize their experiential expertise 2. Reinforcing and developing provincial clearinghouses 3.Sensitizing, informing and educating health and welfare professionals

  18. 5. Professionals 5.1 Definition 5.2 Added value 5.3 Partners and projects

  19. 5.1 Professionals: definition • Integration of self-help support in the formal health and welfare services • Norwegian model

  20. 5.2 Professionals: added value • Self-help groups • Access to resources • More members through referral • Professionals • Access to a complementary form of help • Opportunity to improve the quality of their work (Joseph Rowntree Foundation, 1994)

  21. 5.2 Professionals: added value • Individuals in difficulty • The option of an additional or alternative source of help • Professional system of care • More help for people in need • Prevention of some inappropriate demands • Increased access to users’ views (Joseph Rowntree Foundation, 1994)

  22. 5.3 Professionals: partners and projects • Flemish Government, Ministery of Welfare, Public Health and Family • Working groups of self-help groups and professionals • Project on “Developing intermediairy self-help support in Flanders” (Trefpunt Zelfhulp, 2008-2009) • Course on self-help groups and self-help support for health and welfare professionals

  23. 6. Questions for discussion • What additional skills are needed to adequately mobilize the experiential expertise of self-help groups? • What tasks should provincial/regional clearinghouses perform? What does their relationship with the national centre consist of? • Should patient representatives become proto-professionals?

  24. Trefpunt Zelfhulp vzw www.zelfhulp.be Peter Gielen Peter.Gielen@soc.kuleuven.be Jozefien Godemont Jozefien.Godemont@soc.kuleuven.be

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