Collection of Race, Ethnicity and Language by Health Plans in Massachusetts: D-r-a-f-t Expert Panel Recommendations for HCQCC Disparities Council Meeting February 23, 2009. HCQCC charge to health plans:. From HCQCC meeting on July 16, 2008:
Collection of Race, Ethnicity and Language by Health Plans in Massachusetts: D-r-a-f-t Expert Panel Recommendations for HCQCC
Disparities Council Meeting
February 23, 2009
From HCQCC meeting on July 16, 2008:
(1) The Maine Health Information Center (MHIC) will not reject health insurance carriers’ data submissions because they are missing patient race and ethnicity data, until July 1, 2009. The Council will publish completeness thresholds for these data elements before that date. In the meantime, health insurance carriers may continue to report patient race and ethnicity to the Council via the MHIC on a voluntary basis, in accordance with the data submission standards set forth in the Council’s data collection regulation 129 CMR 2.00.
(2) At this time, health insurance carriers may not report to the Council via the MHIC patient race and ethnicity data that was estimated using geo/surname coding or any other estimation methodology. Health insurance carriers should only report patient race and ethnicity that was reported by the patient or the patient’s representative.
Joel Weissman, PhD (EOHHS) - Chair
Keith Bell (NHP)
Bruce Cohen, PhD (DPH)
Kathy Coltin (Harvard Pilgrim)
Tom Sequist, MD (Harvard University)
Georgia Simpson-May (OHE)
Lauren Smith (EOHHS)
Robin Weinick, Phd (MGH-Consultant)
Katharine London (Consultant)
David Nerenz, Phd (HFHS-Consultant)
Engelberg Center, Brookings Institute
Goal: To develop consensus-based standards for race/ethnicity (and language) categories, reporting thresholds, and methods/modes for data collection.
Brookings Deliverable: Working paper with recommendations for HCQCC to promulgate mandate.
Recommendations for regulatory change;
Recommendations on guidelines for best practices of data collection;
Recommendations for Interim data collection.
Health plans must acquire self-reported race/ethnicity data on members directly from the member or from 3rd party sources (e.g., providers, employers), and should provide the data from the best source to QCC.
The QCC should establish thresholds for reporting race and ethnicity, and these thresholds should increase over time.
The QCC should amend its regulation to add patient language
Health plans should report using DHCFP categories, but should collect “Race” and “Hispanic Ethnicity” identifiers using the following categories:
Health plans should collect “ethnicity” using the DHCFP categories
Rolling up sub-ethnicities
Health plans should strive to use standard methods to collect language information from members
*U.S. Census Report: http://www.fairus.org/site/PageNavigator/facts/state_data_MA
**FLNE - a bi-annual publication of MDPH with language data collected by the Massachusetts Department of Education for students whose primary language is not English.
What is indirect estimation?
QCC should consider providing health plans with indirect estimation software, based on most up-to-date methodologies, in order to augment directly collected data and to assess racial/ethnic disparities at the State level
indirect estimation ….
Elliott MN, Fremont, et al. A new method for estimating Race/Ethnicity and associated disparities where administrative records lack self-reported Race/Ethnicity. Health Serv Res. 2008.
Fremont, et al, Health Affairs 2005