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OUR CANCER PATIENTS. Communication and Support. OUR CANCER PATIENTS. The Somerset Cancer User Group reports have consistently shown that newly diagnosed cancer patients appreciate being contacted by their Primary Health Care Team . OUR CANCER PATIENTS. QOF- Maintain Cancer Register
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OUR CANCER PATIENTS Communication and Support
OUR CANCER PATIENTS • The Somerset Cancer User Group reports have consistently shown that newly diagnosed cancer patients appreciate being contacted by their Primary Health Care Team
OUR CANCER PATIENTS • QOF- Maintain Cancer Register • - Review within 6/12 of diagnosis • HOSPITAL STANDARD-Contact GP within 24hrs of new cancer diagnosis
OUR CANCER PATIENTS • NOT ALWAYS AWARE OF ENTITLEMENTS (STATE/OTHER) • ( 77% not aware according to Macmillan survey) • NOT ALWAYS AWARE OF AVAILABLE SUPPORT
Primary Care New Cancer Patient Project-”PARAPET” • PILOT PROJECT IN SOMERSET • AGENDA SHARING ELEMENT PILOTED ALREADY AND VERY POSITIVELY RECEIVED BY PATIENTS
AGENDA SHARING • DOCTOR/PATIENT USE “SHARED AGENDA” DURING CONSULTATION • AIM IS TO BETTER MEET NEEDS OF THE PATIENT • SUCCESSFULLY PILOTED IN SOMERSET
OUR CANCER PATIENTS • PROPOSAL- • We contact each newly diagnosed cancer patient to offer an appointment with the GP of their choice • Consultation covers information needs/possible benefits/support groups/communication (key contacts) • Information pack (Macmillan will support)
PARAPET INFORMATION PACK • AGENDA/KEY CONTACTS • INFORMATION ON BENEFITS • INFORMATION ON AVAILABLE SUPPORT
OUR CANCER PATIENTS • RESEARCH- • “AGENDA SHARING” • Postal questionnaire
PATIENT SURVEY TRMC • All patients on TRMC/EQMC Cancer Registers (215) • Views on Agenda/Buddying • 60% Response • Likhert Scale 1-5 (5 very positively agree)
Patient Survey TRMC-Results • AGENDA • “I would use the agenda” 3.96 • “It would help me in decisions” 3.98 • “It would help me ask questions” 3.96 • “My GP would be willing to use” 4.08 • “It is easy to understand” 4.08 • “It is useful for my cancer type” 4.08 • “My Consultant would use it” 4.04
GP Survey-PARAPET GPs • 15 Pilot practices • 80% Response (68 GPs) • “The agenda is easy to understand” 4.01 • “The agenda would benefit patients” 3.96 • “I would be willing to use the agenda” 3.88 • “The agenda would be easy to use” 3.81 • “The agenda would improve communication with cancer patients 3.80
AGENDA SHARING • TREATMENT PLAN • PSYCHOLOGICAL STATE/MOOD • SOCIAL SITUATION • PHYSICAL WELL-BEING (Pain/Bowels/Breathing/Sleep/Others) • PLANS FOR THE FUTURE
CONTACTS (WITH AGENDA) • Lead GP • Hospital Specialist • Hospital Nurse support • Community Nurse support • Macmillan Cancer Support • CancerBacup • Patient support organisation • Hospice • Social Services
MAP AND COMPASS • MAP= CANCER JOURNEY • COMPASS=AGENDA/CONTACTS • CARD
“PARAPET” SUMMARY • Contact new cancer patients soon after diagnosis • Arrange “orientation consultation” • New patient package to include- • 1. Key contacts/Agenda • 2. Benefits information • 3. Support information • All you need is….A co-ordinator • PACKS WILL BE PROVIDED FREE OF CHARGE
PARAPET PROGRESS • 15 PRACTICES, >90 GPs RECRUITED • 100% UPTAKE • ADMIN SUPPORT FROM SOMERSET PCT • ENDORSED/SUPPORTED BY MACMILLAN CANCER SUPPORT • COUNTYWIDE ROLL-OUT FUNDED