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Problems and reality of Russian Registry of PID

Problems and reality of Russian Registry of PID. Paschenko O., Kondratenko I., Sidorenko I., Ilyina N., Kousnetsova M., Pashanov E., Bologov A. Russian State Children`s Hospital, Research Institute for Pediatric Hematology, Institute of Immunology, Medical Academy Moscow, Russia.

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Problems and reality of Russian Registry of PID

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  1. Problems and reality of Russian Registry of PID Paschenko O., Kondratenko I., Sidorenko I., Ilyina N., Kousnetsova M., Pashanov E., Bologov A. Russian State Children`s Hospital, Research Institute for Pediatric Hematology, Institute of Immunology, Medical Academy Moscow, Russia

  2. 1991 - USSR registry of PID 372 patients with 18 forms of PID for 1982 – 1991 years • 1996 - Russian Registry of PID 154 patients with PID • 2002 - renewed Russian Registry 307 patients - 22 PID forms • 2004 – Russian Registry 377 patients – 30 PID forms

  3. The form of Russian registry includes the data about - the age of the first manifestation - common clinical features – infectious and noninfectious complications - gene and molecular defects - immune defects - therapy and it`s effects

  4. Russian database of PID • 377 patients with 30 different forms of PID • Children – 325 patients (86%) • Adults – 52 patients (14%) • 50 regions of Russia • Mortality - 12,2%

  5. The forms of PID in Russian registry

  6. The causes of death of the patients with PID

  7. Thank`s to • The doctors of the clinical immunology department of Russian State Children`s Hospital, Research Institute for Pediatric Hematology: • Kondratenko I., Kousnetsova M., Galkina E., Yurasova A., Usacheva A., Konopleva E., Pashanov E., Bologov A. • Medical Academy: • Sidorenko I. • Institute of Immunology: • Latisheva T., Setdikova N. • Republic Children`s Hospital of Kazan`: • Sigbatulina F. • Republic Children`s Hospital of Buryatia: • Bambaeva Z. • Republic Children`s Hospital of Vologda: • Klyukinova T.

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