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Patient and Public Engagement Purpose and People

Patient and Public Engagement Purpose and People. David Gilbert Director, InHealth Associates Co-Director, Centre for Patient Leadership 19 th March 2013. Engaging patients and the public - we all benefit... Moral Business Social and political Health Legal

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Patient and Public Engagement Purpose and People

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  1. Patient and Public EngagementPurpose and People David Gilbert Director, InHealth Associates Co-Director, Centre for Patient Leadership 19th March 2013

  2. Engaging patients and the public - we all benefit... • Moral • Business • Social and political • Health • Legal • Engaging with patients and the public can happen at two levels: • • Individual level – 'my say' in decisions about my own care and treatment (often referred to as shared decision-making) • • Collective level – ‘my’ or ‘our say’ in decisions about commissioning and delivery of services • The Engagement Cycle focuses on the collective level

  3. A conceptual framework for PPE Influence Feedback Information Individual My say in decisions about care and treatment Collective Our say in planning, design and delivery of services

  4. OUTCOMES OUTCOMES OUTCOMES A conceptual framework for PPE

  5. Key principles of effective PPE (1) • Be clear about what involvement means • Have a shared understanding of definitions and purpose • Ensure adequate resources - money, time and people • Focus on improvement • Demonstrate change as a result of engagement • Embed systems linking decision-making to impact • Ensure senior commitment and leadership • Support staff and equip them with the necessary skills • Be clear about why you are involving people • Clarify objectives & links to organisational priorities • Explain what can change & what is not negotiable • Use what is already known about people’s perspectives

  6. New Approaches (1) Being clear on purpose: The Engagement Cycle

  7. The Engagement Cycle : engaging with patients and public throughout the commissioning process

  8. New Approaches (2) Building capacity: Patient Leaders

  9. Why we need Patient Leaders • Patients = creative, solution-focused, innovators • Living with ill-health is seedbed of broader leadership • 1000s of patients want to help improve things • NHS turns only to clinical & managerial leaders • No learning opportunities for Patient Leaders

  10. Systemic Focus Located in community Individual focus Located inside system Patient Entrepreneur Project / initiative leader Business developer Community Enabler Health Champion Community Researcher Informal Representative CCG reference group PPG Programme Rep Patient/Public advisor Formal Representative FT Governor CCG Lay Member HW Member HWBB Activist Campaigner Improvement leader Peer to Peer Supporter Lay advocate Coach Online mentor

  11. Learning and support for Patient Leaders • Personalised learning • Focus on learning plan, inquiry proposal, learning objectives and goals aiding learning transfer • Inquiry-based learning • Action research methodology, critical reflection learning through work, practice and taking action, problem solving and thinking skills • Community of reflective practitioners • Collaboration, face to face & online, Challenge, dialogue with ‘experts’, support, sharing of findings, checking understanding, critical feedback • Using and working with the ‘here and now’ • Mindful of making assumptions, habits and making the unconscious explicit and conscious

  12. The Patient Leader Programme- Impact and outcomes - • Impact on self (confidence, well-being) • Enhanced dialogue and better relationships • More transparent decision-making • Improved service responsiveneness • Enhanced community well-being

  13. Thankyou david@centreforpatientleadership.com www.cpl-uk.com www.inhealthassociates.co.uk

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