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The research perspective

The research perspective. Will Dixon MRC Clinician Scientist & Honorary Consultant Rheumatologist Launch of The Professional Records Standards Body HC2013, Birmingham, 17 April 2013. Outline. Minute 1 Drug safety Minute 2 Electronic patient record (EPR)

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The research perspective

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  1. The research perspective Will Dixon MRC Clinician Scientist & Honorary Consultant Rheumatologist Launch of The Professional Records Standards Body HC2013, Birmingham, 17 April 2013

  2. Outline • Minute 1 Drug safety • Minute 2 Electronic patient record (EPR) • Minute 3 Requirements of EPR for research

  3. Epidemiology in UK • ‘Cradle to grave’ records • Cohort of 60 million patients

  4. Routinely collected data + scientific expertise World-leading health informatics research

  5. MRC Clinician Scientist Award Pharmacoepidemiology ✓ ? Benefit Harms Improve quality of data Extend analysis methodology Improve risk communication

  6. Ingredients for pharmacoepidemiology Confounder Outcome Exposure

  7. Information sources Clinical care Research Audit & Revalidation Structure clinical information systems to generate high-quality data for audit and research

  8. People Electronic Patient Record Clinicians 1⁰ care 2⁰ care Information Sources Patients Home Clinic Allied Healthcare Professionals EPR Clinicians & AHPs Home Clinic Investigations Imaging Blood and Tissue Samples

  9. People Quality Improvement Audit & Revalidation Clinicians 1⁰ care 2⁰ care Information Sources Researchers Patients Home Clinic Patients Allied Healthcare Professionals EPR Clinicians & AHPs Home Clinic Investigations Policy Makers Collect data once Multiple sources Multiple uses Imaging Regulators Blood and Tissue Samples Pharmaceutical Industry

  10. People Quality Improvement Audit & Revalidation Ingredients 1. Exposure 2. Outcome 3. Confounders Clinicians 1⁰ care 1⁰ care 2⁰ care 2⁰ care Information Sources Researchers Patients Home Clinic Home Clinic Patients Allied Healthcare Professionals EPR Clinicians & AHPs Home Clinic Investigations Policy Makers Imaging Regulators Research quality routine clinical data Blood and Tissue Samples Pharmaceutical Industry

  11. People Quality Improvement Audit & Revalidation Ingredients 1. Exposure 2. Outcome 3. Confounders Clinicians 1⁰ care 1⁰ care 2⁰ care 2⁰ care Information Sources Researchers Patients Home Clinic Home Clinic Information Governance Patients Allied Healthcare Professionals EPR Clinicians & AHPs Home Clinic Investigations Policy Makers Imaging Regulators Research quality routine clinical data Blood and Tissue Samples Pharmaceutical Industry

  12. MRC Clinician Scientist Award Pharmacoepidemiology ✓ ✓ Benefit Harms EPR for research Collect the right content Align clinical, research and other uses Improve quality of data Structured information Patient reported outcomes Develop trust from patients Understand research uses

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