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Our Mission …

Our Mission …. To ensure that all those impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. The Universal Challenges of Cancer. Increased Stress Loss of Control and Hope Social Isolation. GCSF Program Model. 5 Core Components:

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Our Mission …

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  1. Our Mission… To ensure that all those impacted by cancer are empowered by knowledge, strengthened by action and sustained by community.

  2. The Universal Challenges of Cancer • Increased Stress • Loss of Control and Hope • Social Isolation

  3. GCSF Program Model 5 Core Components: • Support Groups & Services • Education • Healthy Living Classes • Social Connections • Linkage and Referral

  4. Core Component 1: Support • New Member/Newcomer meetings • Psychosocial Screening & Personal Support Plans • Decision Assistance/Question List Counseling (Open to Options™) • Group Support for people with cancer • Group Support for Family, Friends, & Caregivers

  5. Core Component 1: Support Cont… • Groups/other activities for children/teens who have a family member with cancer or who have cancer themselves • Cancer-related bereavement support for all ages • Short-term cancer counseling for individuals and families (Optional) • Awareness of & access to individual/group support online

  6. Core Component 2 : Education • Lectures/workshops about: • cancer and its treatment • psychosocial issues • Skill-building programs • Workplace, school & • Faith-based education/support programs • Awareness of & access to educational materials and programs online

  7. Core Component 3 : Healthy Living Classes • Mind-body programs • Exercise & physical activity programs • Nutrition education & awareness activities • Expressive Arts • Health maintenance & awareness

  8. Core Component 4: Social Connections • Activities interaction, play, & humor (e.g. , Pot Lucks, Gilda’s Got Talent, Noogiefest) • Social activities for families facing cancer who have children and/or teens • Awareness of & access to social networking opportunities online

  9. Core Component 5: Linkage & Referral • Personalized assistance & referral to resources within CSC and in the broader community as needed • Resource library & computer access • Awareness of & access to online information about local/national resources

  10. National Helpline • Provides emotional support counseling for cancer patients, survivors, loved ones, and caregivers • Provides navigation on practical resources available to you • English & Spanish counselors available • Translation service available for 200 additional languages • M-F 9am – 9pm ET • Live web chat also available

  11. www.MyLifeLine.org • Interactive Blogging & Updates • Let family and friends know how you’re doing. We’ll email them when you post an update. • Helping Calendar • Coordinate volunteers to help with meals, rides to treatment, errands, child care, pet care, and more. • Discussion Boards • Connect with other patients and caregivers in an online forum to support each other with information, opinions, stories, and inspiration. • Care Coordinators • Make life easier by setting up family and friends as “Care Coordinators” to help manage your site and organize volunteers. • Privacy Controls • Your cancer experience is personal. Ensure the right people have access to comment on your site and volunteer.

  12. What is it? • Research survey to identify and understand emotional and social needs unique to the cancer experience • Informs medical professionals and patient advocates about patient needs to improve quality of care • Confidential and secure

  13. Who is it for? • Caregivers (loved ones who help patients) • Cancer Patients/Survivors • People facing any cancer, including: • Acute Myeloid Leukemia (AML) • Breast Cancer • Metastatic Breast Cancer • Chronic Lymphocytic Leukemia (CLL) • Chronic Myeloid Leukemia (CML) • Lung Cancer • Melanoma • Multiple Myeloma • Prostate Cancer • Stomach Cancer

  14. How to Join? • Go to www.CancerExperienceRegistry.org • Register in 3 steps • Agree to informed consent • Submit your email & select a primary cancer or caregiver status • Complete your profile 3. Fill out the survey to share your experience 4. Set up your personalized page 5. Check back for education resources and new surveys

  15. Join Our Grassroots Movement • Help ensure that people touched by cancer have access to quality, comprehensive cancer care that includes social and emotional support. • This community will provide you the opportunity to: • Get up-to-date information on key issues that are important to patients with cancer and their loved ones • Be part of a network that interacts with Capitol Hill and other policymakers on important issues to cancer patients • Have your voice heard along side other voices of patients with cancer and their loved ones • To join, visit: http://bit.ly/BecomeCSCAdvocate

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