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Developing Local Solutions for Local needs . Dementia café Market Harborough June 2013. Some information about Dementia. NHS own figures suggest 60 % of Dementia is underdiagnosed by GP’s

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developing local solutions for local needs

Developing Local Solutions for Local needs

Dementia café

Market Harborough

June 2013

some information about dementia
Some information about Dementia
  • NHS own figures suggest 60 % of Dementia is underdiagnosed by GP’s
  • In 2009 5% of County Population 600,000+ diagnosed with dementia – nearly 9% if under diagnosis is taken into account
  • Harborough has highest proportion of 65+ age group in County
  • CMHT estimates that by 2025 10-15% of population will suffer from some form of dementia
how did we get into this
How did we get into this?
  • Father diagnosed with Alzheimer’s disease three years ago
  • 88 years old with an 82 year old partner who is caring for Dad
  • Living independently in Kibworth (partner in Leicester)
  • Carer ‘burn-out’ evident
  • Social isolation increasing by the week
what do those with dementia and their carers need
What do those with dementia and their carers need?
  • A place where:
    • carer and cared for could both attend
    • people could begin to address their crushing isolation and socialise
    • share experiences
    • Listen to ‘expert professionals’ and meet support agency workers
    • By coming together support each other emotionally
what else did we find
What else did we find
  • No one organisation was supporting both carer and cared for – most were carer orientated
  • What carers need in the early stages is somewhere where they can go with cared for to have a bit of fun, social interaction, and information. Somewhere where they can meet others in the same boat.

A Dementia café!

how did we kick off
How did we Kick-Off
  • Volunteers funded 3 month trial in Settling Rooms Coffee Bar – based on 2 hour café per month
  • Massive press and publicity campaign
  • Worked closely with Community Mental Health Team and Age UK to develop local model of cafe

What happened:

By month 3 over 25 couples/family members were attending

In March 2011 Steering Group formed

In April 2011 Group registered as a small charity

where are we now
Where are we now
  • 140 members 35-40 regularly attending
  • Relocated to bigger hall, with better facilities
  • Developed a Members Resources Bank of books, information and materials.
  • Working with Rotary Club Harborough to deliver memory workshops at future café meetings.
where are we now cont
Where are we now (cont)
  • Introduced Singing for the Memory Groups in Sept 2011 as a ‘subsidiary’ activity of the café. 35-50 attending
  • Expanding café concept in Partnership with The Well in Kibworth
  • Developed Dementia café Website
  • Working with Schools on dementia awareness for 14-16 year olds
can the voluntary sector make a difference
Can the Voluntary sector make a difference?

When we started there was nothing in Harborough District for those with early stage dementia and their carers/families

Now there is something happening every week, every month throughout the year

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