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EHDI Systems and the Medical Home Carlos Quezada-Gomez, PsyD National Center of Medical Home Initiatives for Children with Special Needs American Academy of Pediatrics What Is a Medical Home? A Medical Home ensures that:

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EHDI Systems and the Medical Home

Carlos Quezada-Gomez, PsyD

National Center of Medical Home Initiatives for Children with Special Needs

American Academy of Pediatrics



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A Medical Home ensures that:

Care is accessible family-centered comprehensive continuous coordinated compassionate culturally effective

Primary care physicians serve as the medical home.

A pediatric sub-specialist may be appropriate in complex cases.


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Accessible

Philosophically

  • Efforts made to meet needs of all patients and families

    Geographically

  • Care is provided in the child’s community

    Financially

  • All insurance, including Medicaid, is accepted and changes are accommodated


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Family-centered

Recognition that:

  • Family is the principal caregiver and the center of strength and support for children

  • Parents are experts on their own children and are a source of essential information

  • Unbiased and complete information is shared on an ongoing basis


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Continuous

  • Same primary health care professionals are available from infancy through adolescence

  • Primary care physician assists with transitions

    - Hospital to home

  • - Home to school

  • - School to job or independent living

  • - Primary to secondary to tertiary medical care


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Comprehensive

  • Preventive and primary care is provided

  • As part of coordinating the child’s care

    • makes contacts with all other providers, including audiologist, otolaryngologist, therapists, EI, & school

    • discusses needs for respite care, equipment, transportation, etc.

    • provides information on Title V, SSI, SCHIP

    • assesses emotional, educational & health status at each visit

    • provides written information on relevant issues and support groups


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Coordinated

  • Makes referrals (and assists with setting up appointments) to sub-specialists as needed, including mental health

  • Families are linked to appropriate support, educational, and community-based services

  • Information from other service providers is centralized

  • Primary Care Physician communicates effectively and collaborates with all service providers on plan for child’s care

  • Participates in the IFSP or IEP by phone, letter, or in person


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Compassionate

  • “Gets to know” the family & has a comfortable relationship

  • Makes an effort to understand the family’s needs

  • Concern for well-being of child and family is expressed and demonstrated

  • Families’ values, beliefs, and behaviors are respected


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Culturally Effective

  • Uses interpreters where appropriate (including sign language)

  • Has materials translated into the families’ primary language

  • Attempts to understand families’ beliefs and customs


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Shared Responsibility

  • Accepts responsibility for services rendered

  • Maximizes quality while minimizing cost

  • Ensures that all needed services are delivered and avoids duplication


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EHDI and the Medical Home

Birthing Hospital

Audiology

Parent Groups Mental Health

PrimaryProvider

Child/Family

ENT

3rd Party Payers

Deaf Community

Early Intervention Programs

Genetics

Services for Hearing Loss


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Addressing Medical Home Issues in Your Grant Application

  • Identify references in Application Guidance

    • MCHB Core Outcomes (p. 2)

    • Requirements for Narrative (p. 13)

    • Purpose of funding program (p. 20)

    • Review criteria (pp. 21-22)

  • Demonstrate your familiarity with the issues involved in linking EHDI with Medical Homes

  • Describe your plan for addressing the above issues

  • Link your plan to the evaluation procedures


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Strategies to Link Screening to Medical Home

  • Identification of Medical Home provider prior to screening

  • Seamless transfer of results to the medical home

  • Involvement of primary care physicians in EHDI advisory groups


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For More Information:

The National Center of Medical Home Initiatives for Children with Special Needs

Phone: 800/433-9016, ext 7081

Fax: 847/228-6432

Email: [email protected]


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Technical Assistance

Sunnah Kim

Manager, Screening Initiatives

e-mail: [email protected]

phone: 847/434-4924

Amy Gibson

Manager, Technical Assistance

e-mail: [email protected]

phone: 847/434-4989


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National Center of Medical Home Initiatives for Children with Special Needs(1999 - 2004)American Academy of Pediatrics


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Funded by the Maternal and Child Health Bureau, Division of Children with Special Health Care Needs


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National Center Projects

  • General Newborn Screening Recommendations

  • Project Universal Preschool Vision Screening

  • Medical Home Training Program

  • Universal Newborn Hearing Screening

  • Technical Assistance


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Universal Newborn Hearing Screening

  • An AAP Task Force on Newborn and Infant

    Hearing was convened in Spring 1998

  • Developed a policy statement endorsing universal newborn hearing screening in 1999

  • AAP has 2 delegates to the Joint Committee on Infant Hearing

  • AAP endorsed the Year 2000 JCIH Position Statement


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Technical Assistance

  • Specialized TA provided to help link screening to medical home

  • Provided by National Center staff to all who are involved in community-based initiatives to ensure children with special needs have access to a medical home

  • Mentoring program


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