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EHDI Systems and the Medical Home Carlos Quezada-Gomez, PsyD National Center of Medical Home Initiatives for Children with Special Needs American Academy of Pediatrics What Is a Medical Home? A Medical Home ensures that:

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ehdi systems and the medical home

EHDI Systems and the Medical Home

Carlos Quezada-Gomez, PsyD

National Center of Medical Home Initiatives for Children with Special Needs

American Academy of Pediatrics

slide3

A Medical Home ensures that:

Care is accessible family-centered comprehensive continuous coordinated compassionate culturally effective

Primary care physicians serve as the medical home.

A pediatric sub-specialist may be appropriate in complex cases.

slide4

Accessible

Philosophically

  • Efforts made to meet needs of all patients and families

Geographically

  • Care is provided in the child’s community

Financially

  • All insurance, including Medicaid, is accepted and changes are accommodated
slide5

Family-centered

Recognition that:

  • Family is the principal caregiver and the center of strength and support for children
  • Parents are experts on their own children and are a source of essential information
  • Unbiased and complete information is shared on an ongoing basis
slide6

Continuous

  • Same primary health care professionals are available from infancy through adolescence
  • Primary care physician assists with transitions

- Hospital to home

  • - Home to school
  • - School to job or independent living
  • - Primary to secondary to tertiary medical care
slide7

Comprehensive

  • Preventive and primary care is provided
  • As part of coordinating the child’s care
    • makes contacts with all other providers, including audiologist, otolaryngologist, therapists, EI, & school
    • discusses needs for respite care, equipment, transportation, etc.
    • provides information on Title V, SSI, SCHIP
    • assesses emotional, educational & health status at each visit
    • provides written information on relevant issues and support groups
slide8

Coordinated

  • Makes referrals (and assists with setting up appointments) to sub-specialists as needed, including mental health
  • Families are linked to appropriate support, educational, and community-based services
  • Information from other service providers is centralized
  • Primary Care Physician communicates effectively and collaborates with all service providers on plan for child’s care
  • Participates in the IFSP or IEP by phone, letter, or in person
slide9

Compassionate

  • “Gets to know” the family & has a comfortable relationship
  • Makes an effort to understand the family’s needs
  • Concern for well-being of child and family is expressed and demonstrated
  • Families’ values, beliefs, and behaviors are respected
slide10

Culturally Effective

  • Uses interpreters where appropriate (including sign language)
  • Has materials translated into the families’ primary language
  • Attempts to understand families’ beliefs and customs
slide11

Shared Responsibility

  • Accepts responsibility for services rendered
  • Maximizes quality while minimizing cost
  • Ensures that all needed services are delivered and avoids duplication
slide12

EHDI and the Medical Home

Birthing Hospital

Audiology

Parent Groups Mental Health

PrimaryProvider

Child/Family

ENT

3rd Party Payers

Deaf Community

Early Intervention Programs

Genetics

Services for Hearing Loss

addressing medical home issues in your grant application
Addressing Medical Home Issues in Your Grant Application
  • Identify references in Application Guidance
    • MCHB Core Outcomes (p. 2)
    • Requirements for Narrative (p. 13)
    • Purpose of funding program (p. 20)
    • Review criteria (pp. 21-22)
  • Demonstrate your familiarity with the issues involved in linking EHDI with Medical Homes
  • Describe your plan for addressing the above issues
  • Link your plan to the evaluation procedures
strategies to link screening to medical home
Strategies to Link Screening to Medical Home
  • Identification of Medical Home provider prior to screening
  • Seamless transfer of results to the medical home
  • Involvement of primary care physicians in EHDI advisory groups
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For More Information:

The National Center of Medical Home Initiatives for Children with Special Needs

Phone: 800/433-9016, ext 7081

Fax: 847/228-6432

Email: [email protected]

slide16

Technical Assistance

Sunnah Kim

Manager, Screening Initiatives

e-mail: [email protected]

phone: 847/434-4924

Amy Gibson

Manager, Technical Assistance

e-mail: [email protected]

phone: 847/434-4989

slide18

National Center of Medical Home Initiatives for Children with Special Needs(1999 - 2004)American Academy of Pediatrics

slide19

Funded by the Maternal and Child Health Bureau, Division of Children with Special Health Care Needs

slide20

National Center Projects

  • General Newborn Screening Recommendations
  • Project Universal Preschool Vision Screening
  • Medical Home Training Program
  • Universal Newborn Hearing Screening
  • Technical Assistance
universal newborn hearing screening
Universal Newborn Hearing Screening
  • An AAP Task Force on Newborn and Infant

Hearing was convened in Spring 1998

  • Developed a policy statement endorsing universal newborn hearing screening in 1999
  • AAP has 2 delegates to the Joint Committee on Infant Hearing
  • AAP endorsed the Year 2000 JCIH Position Statement
slide22

Technical Assistance

  • Specialized TA provided to help link screening to medical home
  • Provided by National Center staff to all who are involved in community-based initiatives to ensure children with special needs have access to a medical home
  • Mentoring program
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