Perspective Matters. The Importance of Family/Professional Partnerships in the Medical Home. by Gina Pola -Money, Mo.M . Who Are Our Kids?.
The Importance of Family/Professional Partnerships in the Medical Home
by Gina Pola-Money, Mo.M.
THE FAMILY-CENTERED CONCEPT
Health Care services
Educational & Vocational Services
Financial/ Funding Services
A good partnership happens when parents and professionals want to work together to reach the same goal. It is not always easy, especially if there is disagreement about the best thing to do. Partners work together to find answers and respect the expertise of all involved.
Collaborative partnerships often take time and effort to achieve.
Knowing how to interact can be critical to the successful advocacy for children.
Ptacek, JAMA 1996: 496-502
Eden, Pall Med 1994: 105-114
Denial; Anxiety; Fear
Inner and outer thoughts; Guilt; Shame; Depression; Anger
Settled In State -
Hope, New Dreams, Different expectations
Singer, G., Narquis, J.G., Powers, L.K., Blanchard, L., DiVenere, N., Santelli, B., Ainbinder, J., & Sharp, M. (1999). Journal of Early Intervention. 22(3), 217-229.
“A FAMILY WITHOUT INFORMATION CANNOT TAKE RESPONSIBILITY AND FEELS HELPLESS; A FAMILY WHO IS GIVEN INFORMATION CANNOT HELP BUT TO TAKE RESPONSIBILITY AND FEELS EMPOWERED.” GP-M 2000
FAMILIES WANTS, NEEDS AND DESIRES ARE DEPENDENT AND FEELS HELPLESS; A FAMILY WHO IS GIVEN INFORMATION CANNOT HELP BUT TO TAKE RESPONSIBILITY AND FEELS EMPOWERED.” GP-M 2000UPON
THE INFORMATION, TRUST, COMPASSION, RESPECT, EMPOWERMENT AND SERVICES THEY RECEIVE!
family support services
National Survey of CSHCN
Families of children with special health care needs are among the most knowledgeable people about what is working well and not so well in the system. They can be essential sources of information and support to providers in helping to improve policies, procedures and programs, and important allies in more general efforts to create better systems of services and care.
HUMOR, LOVE FOR OUR CHILDREN AND EFFECTIVE SUPPORT IS WHAT GETS US THROUGH!