Ms barometer 2009
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MS Barometer 2009. EMSP is…. is the umbrella organisation of the predominant national MS-Societies in currently 34 European countries and represents more than half a million people with and more then 1,5 million people daily affected by MS (such as family and other care givers) .

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Emsp is
EMSP is…

is the umbrella organisation of the predominant national MS-Societies in currently 34 European countries and represents more than half a million people with and more then 1,5 million people daily affected by MS (such as family and other care givers)

Contrary to other disease areas, people with Multiple Sclerosis in Europe are represented by only one European MS umbrella organisation.


Structure of the ms barometer
Structure of the MS Barometer

  • 7 Areas:

    • Section 1: Access to treatment & therapies (19 questions)

    • Section 2: Research (3 questions)

    • Section 3: Employment (8 questions)

    • Section 4: Empowerment (7 questions)

    • Section 5: Reimbursement of Costs (6 questions)

    • Section 6: Data Collection (5 questions)

    • Medication coming to the market (3 questions)

    • Structure of the Barometer inspired by European Code of Good Practice (1st four categories)

    • Extensive transnational consultation with the medical and patient communities to review content in 2009


Barometer 2009 at glance
Barometer 2009 at glance

  • 29 countries represented versus 32 countries in 2008Reasons: time consuming – some organisations would like to participate once every two years, difficulties to gather information, etc.

  • Maximum scoring of 225 points

  • Comparison between results 2008/2009 has to be cautious (questions have been reformulated, participating countries are not the same, etc.)



Access to treatment and therapies
Access to treatment and therapies



Pwms receiving symptomatic treatment
%PwMS receivingsymptomatictreatment


Of pwms receiving in patient rehab
% of PwMS receiving in-patient rehab.


Pwms receiving out patient rehab
% PwMSreceiving out-patient rehab.



Research agenda on ms total score in the section per country
Research Agenda on MS(total score in the section per country)


Employment total score per country in the section
Employment(Total score per country in the section)




Ms society having consultative status with the national administration
MS Society having consultative statuswith the national administration



Data collection
Data collection

Only 13 countriesstate

having MS registers (national

or regional):

Austria, Bosnia-Herzegovina, Croatia, Denmark, France, Greece, Germany, Latvia, Malta, Norway, Russia, Sloveniaand Sweden.



Thank you!

[email protected]


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