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Ryan White Title II Consumer Needs Assessment Southwest/Piedmont HIV Care Consortium HIV/STD Resources. November 2007. Living with HIV or AIDS - 2007. 22 million people worldwide 18,814 people in Virginia 1,430 people in the Southwest Region of Virginia. HIV consumer needs assessment.

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November 2007

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November 2007

Ryan White Title IIConsumer Needs AssessmentSouthwest/Piedmont HIV Care ConsortiumHIV/STD Resources

November 2007


Living with hiv or aids 2007

Living with HIV or AIDS - 2007

  • 22 million people worldwide

  • 18,814 people in Virginia

  • 1,430 people in the Southwest Region of Virginia


Hiv consumer needs assessment

HIV consumer needs assessment

  • Provides the Southwest/Piedmont HIV Care Consortium with a management tool to maximize the effectiveness and efficiency of HIV services

  • Satisfies the requirement that the Southwest/Piedmont HIV Care Consortium, a Part B Consortium, carry out an assessment of needs as outlined in the Ryan White HIV/AIDS Treatment Modernization Act of 2006


Purpose of the assessment

Purpose of the assessment

  • To identify issues and concerns of individuals living with HIV/AIDS in Health Region III of Virginia

  • Information is used by the Consortium to ensure effective and efficient planning, for implementation and evaluation of HIV health and social services in Southwest Virginia


Methodology

Methodology

  • In October 2007 - six hundred seventy four(674) consumer surveys were distributed to 7 Ryan White Title II subcontractors in Southwest Virginia

  • Surveys were then distributed via case managers to clients between October 1 and October 31, 2007.

  • The four-page survey contained both closed and open-ended questions.

  • Self-addressed envelopes were provided for clients who chose to return the survey individually.

  • A total of two hundred seventeen (217) clients returned the consumer survey for a response rate of 32% of Ryan White clients.


Section i

Section I

Demographics of Survey Respondents


Mostly males

1

13

1

Male

Female

Male to Female

74

Transgendered

Female to Male

127

Transgendered

Missing in System

Mostly males

  • GENDER

  • Male 58.8% [127]

  • Female 34.3% [74]

  • Trans.Male to Female .5% [1]

  • Trans. Female to Male .5% [1]


Majority between ages of 40 49

More People in the 40-49 Age Range Participate in Ryan White

Survey

90

80

70

60

50

Number

40

30

20

10

0

0-19

20-29

30-39

40-49

50-59

60+

Majority between ages of 40-49


Mostly caucasian

Race

African American

4

2

Caucasian/White

1

Asian

87

Pacific/Islander

112

Native

American/Alaskan

Other

Mostly Caucasian


48 1 report college experience

Educational Attainment

80

60

40

20

0

Less than 12th Grade

High School

Some College

Undergraduate Degree

Postgraduate

Degree

51

51

64

29

11

Number

48.1% report college experience


47 2 on disability

Employment

Other

5

Retired

9

On disability

102

8

Unemployed waiting on disability

Unemployed looking for work

15

17

Part time

Full time

49

0

20

40

60

80

100

120

47.2% on disability


44 4 have incomes of 10 000 or less

Total Household Income

5

Less than

$10,000

7

$10,001-

28

$20,000

$20001 to

96

$30,000

$30,001-

59

$50,000

$50,000 and

above

44.4% have incomes of $10,000 or less


22 7 have no health insurance

None

Medicaid

45

49

Medicare

1

9

Medicaidand

Medicare

34

Medicare and

57

Supplemental

Veteran’s Benefits

54

Private

Insurance

22.7% have no health insurance


Section 2

Section 2

Primary HIV Positive and AIDS Information


63 4 report having sex with men

63.4% report having sex with men


Men having sex with men

Men having sex with men


41 2 were diagnosed by doctors

AIDS Diagnosed by Doctor

8

89

Yes

No

Don't Know

110

41.2% were diagnosed by doctors


57 9 experience symptoms of hiv

Have Had Symptoms of HIV

140

125

120

100

80

71

60

40

17

20

0

Don't Know

Yes

No

57.9% experience symptoms of HIV


Section 3

Section 3

HIV Positive/AIDS Services Information


74 9 receive care within 6 months

Length of Time to Start Receiving Services

After Testing Positive

120

104

100

80

60

54

44

40

20

9

0

Within a month

1-6 months

More than 6 months

More than 1 year

74.9% receive care within 6 months


Importance of early care being afraid

What Would have Helped to get Services Sooner

Nothing- I got help right

away

18.0

Knowing how important

32

early care was

Not having to take care

11

of family or others

Knowing who to

141

call/where to go

25

Not using drugs or

alcohol

9

Not being so Afraid

38

Other

Importance of early care/being afraid


Ryan white reaches 78 7 with services

Currently Receiving RW Services

180

160

140

120

100

80

60

40

20

0

Don't Know

Yes

No

Ryan White reaches 78.7% with services


55 6 visit doctor 3 or more times yearly

In the Last Year, How Often have You Seen

Your Doctor about HIV?

9

29

53

Never

1-2 times

3-4 times

More than 4 times

120

55.6% visit doctor 3 or more times yearly


Transportation interferes with visits

Transportation interferes with visits


Emergency room visits are few

Emergency Room Visits Because of HIV/AIDS

12

27

None

1-2

More than 2

176

Emergency room visits are few


81 5 feel the same or better

Physical Health Compared to a Year Ago

100

94

90

82

80

70

60

50

40

37

30

20

10

0

Same

Better

Worse

81.5% feel the same or better


Section 4

Section 4

Knowledge and Information about HIV+/AIDS


92 1 say it s easy to talk with doctors

Easy to Talk with Doctors about HIV Treatment

13

Yes

No

202

92.1% say it’s easy to talk with doctors


79 2 say doctors explain things clearly

Doctor Explains Things Clearly

250

207

200

150

100

50

6

0

Yes

No

79.2% say doctors explain things clearly


89 8 know consequence of missed drugs

Informed about Missed Doses of HIV Drugs

250

197

200

150

100

50

17

0

Yes

No

89.8% know consequence of missed drugs


Doctors practitioners information source

Your doctor/nurse

Who Gave You the Most Information About HIV+/AIDS

practitioner

Nurse/Other healthcare

worker

20

Case manager/Social

13

worker

11

Friends

18

18

Support groups

170

Newspaper/Books

38

Internet

47

Other

Doctors/Practitioners information source


Doctors give hiv information

Doctor has Discussed HIV Prevention

13

Yes

No

199

Doctors Give HIV+ Information


77 8 enrolled in ryan white

Currently Enrolled in RW Services

180

160

140

120

100

80

60

40

20

0

Yes

No

Don't Know

77.8% enrolled in Ryan White


Doctor visits lab services top list

Doctor visits/lab services top list

Number of People Reporting Priority of Services Offered


Services needed not offered

Services needed - not offered

Number of People Reporting Priority of Services Not Offered


Section 5

Section 5

Consumer Needs


Health care unmet needs

Health Care Needs and Unmet Needs

Enroll in Hospice Care

Stay in a Nursing Home

Children’s HIV care

Other rehabilitative therapy

Home health care

Physical therapy

Home med. and health supplies

Need

Advice on nutrition/healthy eating

Unmet Need

See a Mental Health Counselor

Get Help with Insurance Premium

Help paying for medications

Eye care

Dental care

See a Doctor or a Specialist

Laboratory tests related to HIV

0

50

100

150

200

Health care unmet needs


Support services need unmet need

Support Services Needs and Unmet Needs

Get Childcare

Help with translations/interpreting

Grief counseling

Help taking my HIV Drugs

Get education/non-medical HIV Serv

Spiritual counseling/support

An advocate (peer, lawyer)

Needs

UnmetNeeds

Get Transportation to Medical Apts

Legal assistance or advice

Support groups

Education about HIV Treatments

Get Food

Case management

0

20

40

60

80

100

120

Support services need/unmet need


Other services needs unmet needs

Employment training/counseling

Domestic Violence Services

Pet care

Household helpers

Volunteer companion (buddy)

Clothing

Financial Counseling

Needs

Information about Alternative Meds

Unmet Needs

Short Term Housing Assistance

Help with Private Insurance

Emergency payments for housing

Get Emergency Food

Help applying for Food Stamps

Assistance with paying Utilities

0

20

40

60

80

Other services needs/unmet needs


Barriers to care

Barriers to Care

Sexual Identity Discrimination

Lack of childcare

Language barrier

Racial discrimination

Gender Discrimination

Sexual Orientation Discrimination

Long wait to be seen at the clinic

Long waiting list

Confidentiality issue(s) with service provider

Transportation to services

Cost of medications/services

Too much income to qualify

Fear of disclosing HIV+ status

Services unavailable

Do Not Know where to go for services

0

10

20

30

40

50

60

Barriers to care


Summary

Summary

Overall, the 2007 Ryan White Client Needs Survey indicates that clients are pleased with the services they are provided and that these services result in more needs being met than not. Areas of need that consistently show are financial in nature and may be a reflection of the relatively low levels of annual income reported by the respondents. Finally, more attention needs to be given to removing the barrier of “Not knowing where to go for services.”


Ryan white program

Ryan White Program

In 1991 the Council of Community Services became lead agent for the Southwest/Piedmont HIV Care Consortium (S/PHCC) in central, Southside and Southwest Virginia. This coalition of agencies and individuals has provided HIV medical care and support services through local subcontractor sites in Covington, Danville, Floyd, Giles, Lynchburg, Marion, Christiansburg, Pulaski, Roanoke and Radford


Hiv resource and training center

HIV Resource and Training Center

  • Robert (Rob) Morrow is the Director of the HIV Resource and Training Center. He is a leading authority on HIV and AIDS in the Commonwealth of Virginia and across the United States. For more information regarding the Ryan White Program, the Southwest/Piedmont HIV Care Consortium or the Virginia HIV/AIDS Resource and Consultation Center, contact [email protected]


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