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Patient Affairs Committee

Patient Affairs Committee. Regional Presentation Spring 2011 Laura Ellsworth - Chair Kristie Lemmon – Vice Chair. Educational Iniatives. The Committee completed the rewrite of What Every Patient Needs to Know – Proudly written ‘for patients, by patients”

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Patient Affairs Committee

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  1. Patient Affairs Committee Regional Presentation Spring 2011 Laura Ellsworth - Chair Kristie Lemmon – Vice Chair

  2. Educational Iniatives • The Committee completed the rewrite of What Every Patient Needs to Know – Proudly written ‘for patients, by patients” • Available at http://store.unos.org/

  3. Access to Educational Resources • The Committee expressed concern regarding the limited availability of OPTN/UNOS patient education resources • The Committee has worked with UNOS Communications to pilot a process called Print-on-Demand

  4. Print-on-Demand Features • Centers can customize/localize materials with their logo and contact information • Large-quantity ordering available with volume pricing • Smaller-quantity orders continue to be available during the pilot

  5. Print-on-Demand Resources • Pilot tentatively set to begin in April • What Every Patient Needs to Know booklet (English), • Living Donation brochures (English and Spanish) • If pilot is successful, additional materials and options will be added

  6. Collaboration • Current • Minority Affairs Committee (MAC) Kidney Referral Guidance Workgroup • Completed: • Membership and Professional Standards Committee (MPSC) on Waitlist Inactivity Focus Group • Donor Family Communication Workgroup

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