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Siblings of People with Disabilities: The Next Generation of Supporters

Siblings of People with Disabilities: The Next Generation of Supporters. Pat Carver. TODAY.

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Siblings of People with Disabilities: The Next Generation of Supporters

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  1. Siblings of People with Disabilities:The Next Generation of Supporters Pat Carver

  2. TODAY At this session, we will share current sibling research and national Sibling Leadership Network (SLN) efforts underway that advance self-determination with and for our brothers and sisters. We will also examine how to organize siblings in Virginia.

  3. Siblings have longest relationship • As parents age, siblings provide more support • The sibling experience is varied and important Background

  4. Siblings have insights • Club sandwich generation • Support to families – “Family support” • Siblings need information The Sibling Movement

  5. Research: What do we know about Sibling Relationships?

  6. Research: What do we know about Future Planning? Siblings Rule PSAs: Supporting the Employment of Your Brother or Sister with a disability

  7. Future Planning Resources www.lookiris.com www.rrtcadd.org

  8. Essay collection, thirty-nine adult siblings (ages 20 to 70) reflect on how their lives have been indelibly shaped by their relationship with a brother or sister with special needs Resource: Adult Sibling Experience

  9. Mission: To provide siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families. www.siblingleadership.org

  10. http://www.youtube.com/watch?feature=player_embedded&v=Pc1CUf2DgOQhttp://www.youtube.com/watch?feature=player_embedded&v=Pc1CUf2DgOQ

  11. State Chapters also… New Hampshire and Utah

  12. Founded in 1990 • SABE BOD Member on SLN Board of Directors • Model for SLN Background: Self-Advocates Becoming Empowered (SABE) Eric McVay SABE Representative SLN

  13. National Forum on Disability Issues • SABE and SLN • Voter Registration • SABE 2012 Elections • Educated network about how siblings can support their brothers/sisters to vote 2012 Elections and Voting

  14. The Family Medical Inclusion Leave Act (FMILA) • The Lifespan Respite Care Act • The Achieving a Better Life Experience (ABLE) Act • The Convention on the Rights of Persons with Disabilities (CRPD) Key Legislative Policies

  15. Partnerships: • Grants Key Collaborations of the SLN

  16. MI SIBS activities

  17. Sibshops: gatherings for sibs to obtain peer support and education within a recreational setting • SibKids: young siblings connect over the internet • SibParent: a listserv where parents of kids with disabilities can talk about their “other” kids • SibNet: Listserv for adult siblings www.siblingsupport.org

  18. website: www.misibs.org www.Facebook.com/MISIBS

  19. Sibling Story

  20. Why SIBS in VIRGINIA? • Connect siblings • Provide information & resources • Promote advocacy • Develop sibling leadership • Honor & celebrate the sibling relationship

  21. Learn about the sibling relationship • Engage siblings early in the conversation • Seek out sibling input • Identify sibling support programs • Focus on the family as whole in service planning Engage adult siblings

  22. Siblings as advocates • Siblings enhancing self-determination • Siblings as professionals Why should siblings get involved?

  23. SIGN-IN SHEET • http://www.youtube.com/watch?v=PyOixKJJeXY&f • TRUE COLORS

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