Resource Guide for Piloting the Caregiver Policy Lens

1. Resource Guide for Piloting the Caregiver Policy Lens Dr. Penny MacCourt “Supporting Caregivers of Older Adults” B.C. Psychogeriatric Association 2011

2. Goals of presentation • Review development of CGPL • Review key components of the CGPL • Discuss diverse ways of implementing the CGPL • Incorporating the Service Provider Resource Guide • Sharing results of early adaptors of CGPL resource

3. What is the CGPL? • A resource to effectively identify unintended negative effects of policies and programs on caregivers, and to provide a common framework to develop and critique policy. • Generated from the perspective of caregivers of older adults, including those that provide services to them • Developed through a contribution from the Government of Canada

4. How do you use the CGPL? • A series of 11 main questions, with a list of sub-questions, organized as a checklist • Questions designed to be answered with yes/no/don’t know/need more information • Responses then scored • Creation of an action plan

5. How do you use the CGPL? • These questions are designed to: • Increase awareness about caregivers’ needs • Facilitate the identification of any unintended negative effects of policies on caregivers, and • Promote the inclusion of the caregivers of seniors. • Intended audience: policy makers and analysts, program managers, educators, service providers, researchers, caregiver advocates and organizations.

6. How do you use the CGPL? • Can be used for as an analytical tool (to systematically examine in detail a policy, program or practice). • Can be used as a process tool (to bring people together and generate discussion).

7. Why should you use the CGPL? • To frame development of programs and policies that value and support caregivers of older Canadians • To critique proposed policies and programs for potential unintended negative effects on caregivers • To assess policies or programs’ promotion of caregivers’ well-being • To identify gaps in current policies, programs and activities that affect caregivers • To guide studies of the impact of programs on caregivers • To develop a policy response to an issue or need

8. Development of the CGPL • Spoke with close to 300 interested parties across Canada • Front line service providers, program managers, administrators, policy analysts/developers, non-profit organizations, advocates, academics, health educators, caregivers • Targeted literature review of existing literature, assessments and policy

9. Key components of the CGPL • Overview of Canadian Caregivers • Background development and benefits of using the CGPL • Summary of CGPL questions • CGPL instrument • Creating an action plan • Appendix One: Challenges in obtaining support identified by caregivers • Appendix Two: Values, principles and key concepts underpinning the CGPL

10. Summary of CGPL Question Categories • Caregiver Inclusion & Voice • Collaboration • Evidence Informed • Respect & Dignity • Diversity & Marginalization • Choice, Self-determination & Independence

11. Summary of CGPL Question Categories • Accessibility • Caregiver Assessment • Sustaining Caregivers • Sustaining Systems • Fairness & Equity • caregivertoolkit.ca

12. Implementing the CGPL • Can be used as a tool for analysis (to examine, in detail, a specific policy or program) • Can be used as a process tool (to generate discussion and ideas) • Focus flexible: can use several or all questions to guide analysis/process

13. Benefits of using the CGPL • Increased awareness of the value of caregiving, and the challenges caregivers experience. • Development of policies and programs that integrate and reflect caregivers’ values and concerns.

14. Benefits of using the CGPL • Consistent approach to policy development and redevelopment, and critique, that facilitates: • an interdisciplinary, inter-jurisdictional and cross-sectoralapproach • information sharing regarding policies and programs • increased sensitivity to issues affecting caregivers • partnerships in identifying and meeting the needs of Canadian caregivers • less duplication and fewer gaps • a society that values and supports caregiving

15. Examples of a CGPL pilot • A private care organization is using the CGPL to review their “integration initiative”, including all new inter-professional collaboration programs • A health authority is using the CGPL to develop and support horizontal integration among 15 Community Integrated Health Services Practice Leads

16. Examples of a CGPL pilot • A provincial research center is using the CGPL to ensure their development of on-line resources for senior caregivers identifies key needs, perspectives, and challenges facing caregivers of older adults • The Manitoba Government is using the CGPL to facilitate required program changes of provincial and regional non-profits to reflect criteria outlined in the Manitoba Caregiver Recognition Act

17. Incorporating the Service Provider Resource Guide • A ‘companion’ resource for front-line service providers, program managers, administrators, health educators, advocates, and anyone interested in strengthening caregiver resiliency through service provision.

18. Incorporating the Service Provider Resource Guide • The Service Provider Resource Guide is a comprehensive document that includes: • A review of Caregiver Assessment Tools • A review of Caregiver Interventions • Issues in Ongoing Case Management • A directory of Federal and Provincial Economic Security Policies to Support Caregivers • A directory of Federal and Provincial Non-Profit Resources

19. Reasons to Use the Service Provider Resource Guide • Practical tools and resources to address gaps identified through application of the CGPL • Increased knowledge of issues affecting caregivers • Increased ability to identify, clarify, and solve issues that affect caregiver resiliency • Increased knowledge of system stressors in providing attention and resources to caregivers • Access to evidence informed support thereby increasing service provider resiliency.

20. Pilot examples using both resources • A private care organization is using the CGPL to assess intake policies to evaluate needs of mental health admissions in residential care, and to help develop a collaborative decision-making model for potential changes to admission policy • Using the SPRG resources to address issues and/or gaps identified through CGPL application

21. Pilot examples using both resources • A national non-profit caregiver organization is using the CGPL to review their respite programs • Will use the SPRG resources to address issues/gaps once they have been identified

22. Pilot Resources • Presentations on the CGPL and SPRG • Executive summaries of the CGPL and SPRG • Financial support for incidentals: travel in rural and remote communities, meeting space, refreshments • Possible face-to-face meeting with other early adaptors piloting resources

23. Pilot Resources • Website: caregivertoolkit.ca • Print and CD copies of resources • Resources are practical and easy to use • Can use part, or whole, of resources, depending on need • Can be used as companion documents

24. Sharing Your Results • Evaluation templates • Case study template: • Summary of implementation • Pilot outcomes • Lessons learned • Sharing your experiences with colleagues: • Hosted information session with colleagues who would benefit from information sharing and knowledge translation

25. Contact Information Dr. Penny MacCourt pennymaccourt@shaw.ca 1.250.756.2529 Marian Krawczyk mkrawczy@sfu.ca 1.250.400.2444