Investigating the decision making process in patients with non-curative cancer who have been invited to join a clinical research trial. Student: Mary Murphy Supervision team:Prof Donna Fitzsimons Prof Eilis McCaughan Dr Richard Wilson
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Investigating the decision making process in patients with non-curative cancer who have been invited to join a clinical research trial
Student: Mary Murphy
Supervision team:Prof Donna Fitzsimons
Dr Richard Wilson
This is an R & D HSC funded fellowship
To understand the decision making processes of patients with incurable cancer, within the context of clinical research trials.
Nothing to Lose
Trial information-balanced or skewed?
Trusting the research team
Increased personalised care
Clinging to a straw
‘I just don’t think…. It’s a no brainer, really. If a consultant says to you, “Listen this is what we’ve got, an opportunity here to improve your situation. It hasn’t been done before. Would you be interested in doing it?” And you have nothing else. There is no other hope in the room, this is the only thing on the table, what are you going to do?’ (P01)
‘Mostly we are offering them a carrot that maybe this is the next magical drug for their disease…..I’d say, “I haven’t got another treatment that offers you any benefit and therefore we are hoping that this might be a drug that is the magical drug but it is a very long shot.” ’(RT14)
‘She [clinical research nurse] says, “You will still be looked after the same way. You will still be getting the same appointments to come up. You will be coming up more often.” Which is what I want. I want to get a bit more attention. “You’ll be treated like a VIP” she says. I went, “That’s fine.” ’ (P06)
‘Well I think if you are offered something that you have no access to ordinarily, I think that probably would make you feel special.’ (RT08)
‘I just want to live. I’ll take anything.’ (P02)
‘And so I sort of thought in one way it did give a sense of hope, that at least there are trials, but on the other hand you sort of think, he’s referring you to that, because he’s got nothing else.’ (P01)
Many believed that their oncologist was offering them a trial because they believed it to be their best option
‘I didn’t think to bother to question it because I just took the view that they’re not going to give me something that’s absolutely stupid. I trust them and I’m not going to question this’. (P02)
‘I’m not trying to pretend that it’s all for someone else. I’m hoping that this treatment will be of benefit to me.’ (P04)
-Clinging to a
Nothing to lose