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Professor Sheena Reilly and Will Siero Murdoch Childrens Research Institute

The Victorian Children’s Study. Professor Sheena Reilly and Will Siero Murdoch Childrens Research Institute Royal Children’s Hospital University of Melbourne . “If we had population-wide capacity to link information

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Professor Sheena Reilly and Will Siero Murdoch Childrens Research Institute

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  1. The Victorian Children’s Study Professor Sheena Reilly and Will Siero Murdoch Childrens Research Institute Royal Children’s Hospital University of Melbourne

  2. “If we had population-wide capacity to link information collected in different administrative systems which captured relevant background information on individuals and their service participation, and collected outcomes of interest to ECD then it would a) increase capacity to routinely evaluate the equity effectiveness of changes in service delivery at any time, and b) enable explanatory and pragmatic trials to be embedded in population- wide information systems for enhanced data collection and longer- term follow-up” Lynch et al 2012 Social Science & Medicine

  3. Our campus Co-located and Integrated Clinical, Research, Educational, Diagnostic and Biobanking facility Children’s Bio-resource Facility

  4. Food Allergy Obesity Mental health problems Cardiovascular disease Diabetes Why: Challenges in child & adolescent health • New conditions • Rapidly increasing • Long term consequences • (adult health & well-being) Opportunities for prevention/early intervention

  5. Our Focus • What is the prevalence/cumulative incidence? • What are the biodevelopmental (genetic/epigenetic) and environmental pathways? • What pre-, peri and postnatal factors influence outcomes? • Are there modifiable risk factors? • How does the modern environment (technology, lifestyle etc) impact on child health? • What early life exposures/illnesses relate to chronic adult conditions?

  6. Sampling Frame • Australian population: 22,806,558 • Victorian Population: 5,620,000 • All babies born in Victoria in • 2 calendar years (75,000/year) • Biological samples • Surveillance of health and • Development • Linkage to state and national • data sets • Repository of prospective • clinical data on children • attending the RCH

  7. A Birth Cohort linked to RCH data • 73,602 emergency presentations • 34,784 inpatients • 246,140 outpatient visits • 10,660 surgeries Developmental problems Cancer Cardiac defects

  8. A Birth Cohort linked to Victorian and Australian data

  9. Child development, health and well being MCH surveillance Immunisation schedule 2 & 3 year health checks Cohort measures Birth 1 year 5 years Ultrasounds Guthrie cards Cord Blood Demographics Parental DNA Infant buccal swab English on line AEDI NAPLAN Maternal Serum Screening Neonatal hearing screening School entry health Q Health & Education encounters Routine data capture Additional measures

  10. Timeline - November 2011 Approved by Campus research Council and campus council - February 2012 Funding to scope and pilot - March 2012 Benchmarking - August 2012 Consent and Ethical Issues - September 2012 RCH pilot site clinics - December 2012 Commence pilot studies - January 2014+ Commence Study

  11. Involvement with I4C • Victoria Cancer Registry • Harmonisation of measures • Pool data/bio-specimens • Collaborations

  12. Questions?

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