thinking ahead supporting families to feel confident about the future
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Thinking Ahead: supporting families to feel confident about the future. Christine Towers: Foundation for People with Learning Disabilities. Why Thinking Ahead?. Parents saying they are living with high level of worry about the future

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thinking ahead supporting families to feel confident about the future

Thinking Ahead: supporting families to feel confident about the future

Christine Towers: Foundation for People with Learning Disabilities

why thinking ahead
Why Thinking Ahead?
  • Parents saying they are living with high level of worry about the future
  • At an extreme, parents considering taking the life of their son/ daughter
  • Yet many barriers to planning
    • day-to-day issues take priority
    • no-one to guide and support with planning
    • feel dependent on services for solutions
workshops with people with learning disabilities
‘Don’t wrap us in cotton wool- we need to learn to cope’

‘We need to be included when people are seriously ill or dying’

‘We need to go to funerals so we know what to expect’

People should talk to us more about our future life’

Workshops with people with learning disabilities
workshops with parents and siblings
‘We need to be less protective but it’s difficult when we see our relatives aren’t safe in their homes and when out and about’

‘We need to have confidence in organisations providing support and in the quality of staff’

‘There’s never a good time to plan but we need to stop burying our heads’

Workshops with parents and siblings
our response
Our response

Planning guide:

Campaign Report:

thinking ahead guide key themes
Thinking Ahead guide: key themes
  • Step-by-step approach- do what is relevant at the time but get started
  • Talk about it with others- get them involved in thinking and doing
  • Build commitment from others who will look out for relative when no longer able
  • Write things down – make sure ideas, plans and wishes are known
planning guide content
Planning guide content
  • Making decisions
  • Making future plans in a person centred way
  • Building friendships and support networks
  • Talking about difficult subjects
  • Making financial plans
  • Housing and support
  • Making a plan for emergencies
  • Keeping an eye on things
  • Making a plan for the future- a checklist
thinking ahead guide ideas for using it
Thinking Ahead guide: ideas for using it
  • Families can use it on their own or with other families they know or with their relative’s circle of support
  • Family support groups, peer support groups, carers’ organisations can run sessions – discussions, problem solving, putting things in place
  • Statutory services- signpost families to planning guide, use assessments, support planning and reviews to talk about issues and respond to families concerns and queries
  • Local authorities fund Thinking Ahead information days and programme of workshops
information about resources
Information about resources

Thinking Ahead guide is available as a free download at http://www.fpld.org.uk/our-work/family-friends-community/thinking-ahead/

or can be ordered for £10 plus P&P (ordered version comes in a ring-binder).

For information about training and support, contact Christine Towers [email protected]

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