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Introduction – Anna Conlan. Role Regional Care Development Advisor (RCDA). Terminal disease Incidence: 2 per 100,000 Bradford and Airedale 28 cases Prevalence: 5000 people in UK. Motor Neurone Disease. Onset and progression is variable – can progress swiftly

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Role regional care development advisor rcda

Introduction – Anna Conlan

Role Regional Care Development Advisor (RCDA)


Motor neurone disease

Terminal disease

Incidence: 2 per 100,000

Bradford and Airedale 28 cases

Prevalence: 5000 people in UK

Motor Neurone Disease


Onset and progression is variable – can progress swiftly

90%-95% of people have the sporadic form

Adult illness

Motor Neurone Disease


Amyotrophic Lateral Sclerosis (ALS)

Most common 65%

Progressive Bulbar Palsy (PBP)

Affects 25%

Progressive Muscular Atrophy (PMA)

Affects 10%

Motor Neurone Disease


Muscle wasting & weakness

Fasciculation (muscle twitching)

Cramps

Spasticity

Pain

Physio & OT

Complimentary therapies

Medication

MND-Riluzole

Antispasmodics - Quinine / Baclofen / Zanaflex / Diazepam

(Restless leg-Ropinerole / Cabaser)

Symptoms & Management


Speech & swallowing

Saliva & mucus problems

Weight Loss

Speech & language therapy

Dietician

Physio & OT

PEG/RIG

Medication

Saliva control - Amitriptyline / Hyoscine / Buscopan / Robinul / Low dose beta blockers / Mucodyne

Symptoms & Management


Fatigue

Emotional problems

Counselling

Alternative therapies

Medication

Anxiety - Benzodiazepines ie Diazepam / Lorazepam / Midazolam

Antidepressants - including amytriptyline / nortriptyline

Symptoms & Management


Clues to respiratory muscle involvement in mnd

Breathlessness

Poor sleep

Daytime

Headaches

Nocturnal Sweating

Observation

Physiotherapy

Respiratory assessment

Overnight pulse oximetrey

Referral to respiratory consultant

Clues to Respiratory Muscle Involvement in MND


Rarely affected

Senses

Bowel & bladder function

Sexual function

Eye muscles

Heart muscles

Intellect

Rarely Affected


Cognitive impairment

Manifestations

Management issues

Dementia

Cognitive Impairment


Diagnosis

Tests may include blood tests, MRI, LP, EMG/NCS, myelogram, muscle biopsy

Diagnosis


Choking

Explain cause and management

Refer to advice of S&LT

Physiotherapy

Management of secretion

Review use of equipment

Choking








Anna Conlan, telephone: 0845 3751841

Website – www.mndassociation.org

MND Connect 08457 626262 (lo-call rate) for all.

[email protected]

Leeds care centre 01133926078.

Thank you for listening



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