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Quality Cancer Data Saves Lives. The Vital Role of Cancer Registrars in the Fight against Cancer. 18 Million. 1.5 million. 67%. Cancer Registries. Statistics Treatment strategies Public health initiatives. Goal.

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quality cancer data saves lives

Quality Cancer Data Saves Lives

The Vital Role of Cancer Registrars in the Fight against Cancer

cancer registries
Cancer Registries
  • Statistics
  • Treatment strategies
  • Public health initiatives
slide7
Goal

The ultimate goal of collecting cancer information is to prevent and control cancer and improve patient care

result
Result

Assist physicians in assessing the efficacy of diagnostic and therapeutic methods

result1
Result

Aid in the decision making about unmet needs, physician recruitment, space needs, resource allocation, and health planning

result2
Result

Respond to local needs through an assessment of referral patterns, cancer trends, and development opportunities

slide11
Cancer Registries collect a wide range of cancer-related information; including —
  • Demographics
cancer related information
Medical history

Diagnosis and prognosis indicators

Treatment patterns

Cancer recurrence

Survival rates

Health care coverage

Patient eligibility

Cancer-related Information
slide14

Health care providers record patient information and diagnosis

Hospital-based cancer registrar abstracts patient information into uniform data sets and checks for an existing record for each patient

Patient data is aggregated on a state level, and then sent to national registries (SEER or NPCR)

national center for health statistics
National Center for Health Statistics

Cancer mortality comes from State Health Depts. to the CDC’s NCHS

slide20

Today, NPCR and SEER registries work collaboratively to collect and report cancer statistics on the entire U.S. population.http://www.cdc.gov/cancer/npcr/uscs/

npcr provides national leadership to cancer registries
NPCR provides national leadership to Cancer Registries

NAACCR Certified State Registries 2011

Gold

Silver

Black- did not meet certification requirements

npcr is expanding efforts to improve and use cancer data by
NPCR is expanding efforts to improve and use cancer data by:

Providing technical assistance to registries to help ensure data completeness, timeliness, and quality

slide23
Coordinating and convening meetings of registry personnel for information sharing, problem solving, and training
slide24
Helping states and national organizations use cancer data to describe state and national disease burdens, evaluate cancer control activities, and identify populations at risk for certain cancers
slide25
Collaborating with federal, state, and private organizations to design and conduct research using data collected through state registries
cdc national standards
CDC: National Standards
  • CDC has established national standards to ensure the completeness, timeliness, and quality of Cancer Registry data
national cancer data base
National Cancer Data Base

http://www.facs.org/cancer/ncdb/index.html

slide31
Standard setting organizations provide guidance and direction to the Cancer Registrar
slide33

Abstracting

Abstracting is converting a patient’s medical information to uniform cancer data

cancer registries exist within a national framework of health monitoring and data collection
Cancer Registries exist within a national framework of health monitoring and data collection
diagnosis to treatment
Diagnosis to treatment
  • Jane Smith learns from her internist that she likely has breast cancer
diagnosis to treatment1
Diagnosis to treatment
  • Further tests are completed at the hospital
diagnosis to treatment2
Diagnosis to treatment
  • Jane’s doctor proposes a course of treatment
diagnosis to treatment3
Diagnosis to treatment
  • Follow-up tests show Jane to be cancer free
diagnosis to treatment4
Diagnosis to treatment
  • Jane’s data is added to other SEER and Michigan central Cancer Registry data, and the National Cancer Data Base, where it will go through more quality processes and refinement
diagnosis to treatment5
Diagnosis to treatment
  • The Cancer Registrar will regularly follow-up
slide45

Cancer information is used in thousands of ways, including

Evaluate patient outcome, quality of life, and satisfaction issues and implement procedures for improvement

provide outcome information for cancer surveillance http www cdc gov cancer npcr uscs
Provide outcome information for cancer surveillance http://www.cdc.gov/cancer/npcr/uscs/
slide48

Report cancer incidence as required by state and federal laws

http://www.ccrcal.org/pdf/Reports/Physicians.pdf

calculate survival rates by various data items such as sex race and age

Trends in Five-Year Relative Survival Rates

Calculate survival rates by various data items, such as sex, race, and age

Estimated Numbers of US Cancer Survivors by Sex

and Time Since Diagnosis as of January 1, 2012

  • Note: Percentages may not sum to 100% due to rounding.
  • Source: Data Modeling Branch, Division of Cancer Control and Population Sciences, National Cancer Institute.
slide54

Cancer data form much of the body of knowledge used by medical professionals, epidemiologists, policymakers, and public health officials

slide55

Kentucky

Thousands of lives were saved in Kentucky through early detection of breast cancer

slide56

Minnesota

In Minnesota, a rare type cancer caused by asbestos exposure was identified, leading the state to look for increased state funding for occupational-related disease

slide57

New York

Cancer registry data are now used to educate New Yorkers about cancer risk factors

national data is only as good as state and local data
National data is only as good as state and local data

Health care providers record patient information and diagnosis

Hospital-based cancer registrar abstracts patient information into uniform data sets and checks for an existing record for each patient

Patient data is aggregated on a state level, and then sent to national registries (SEER or NPCR)

slide64
The Cancer Registrar must

have comprehensive

knowledge about cancer

diagnoses, treatment, and

information management

hospital based registrar s role goes beyond data collection
Hospital-based Registrar’s Role Goes Beyond Data Collection
  • Cancer Program Management
  • Cancer Committee Member
  • Monitor quality of Cancer Program Management
  • Provide benchmarks for quality comparison
hospital based registrar s role goes beyond data collection1
Hospital-based Registrar’s Role Goes Beyond Data Collection
  • Data Analysis for Studies
  • Compiling Cancer Program Annual Report
  • Assess referral patterns
hospital based registrar s role goes beyond data collection2
Hospital-based Registrar’s Role Goes Beyond Data Collection
  • Participate in cancer prevention
  • Present information to cancer committee, physicians, administration
slide70

Registrars in Central Cancer Registries are Key Players in Insuring Quality Health Care

  • Edit the data from all facilities
  • Query the database for data quality reports
  • Merge duplicate records
  • Audit healthcare facilities to insure accurate, timely, complete data
slide71

Registrars in Central Cancer Registries are Key Players in Ensuring Quality Health Care

  • Work with researchers
  • Contribute to data analysis for cancer program planning
  • Present data to the local community, schools, and others
  • Provide education and training for registrars
ctrs have pursued higher education
CTRs have pursued higher education

Some college, associates, bachelors

additional benefits certification
Additional benefits: certification
  • Establishing a standard of knowledge and competence
  • Measuring the requisite knowledge, skills and abilities of CTR® applicants
  • Promoting professional growth and individual study
  • Formally recognizing CTRs who meet recertification requirements
slide79

NCRA’s Certification Examination

In 1983, the National Tumor Registrars Association (now NCRA) administered the first certification examination for tumor registry professionals.

ncra mission statement
NCRA Mission Statement
  • Serve as the premier education, credentialing and advocacy resource for cancer data professionals.
ncra offers
NCRA offers:
  • Multiple educational and networking opportunities
  • Annual national conference to build knowledge and expertise
  • Promotion of professional standards and ethics
ncra offers1
NCRA offers:
  • Management of the CTR process and NCRA’s Council on Certification
  • Publication of a peer-reviewed scientific journal and a quarterly newsletter
ncra offers2
NCRA offers:
  • A Web site offering a wide range of publications and information about educational opportunities
  • http://www.ncra-usa.org*
cancer registry is a dynamic profession
Cancer Registry is a dynamic profession
  • Registrars are dedicated, enthusiastic, and self motivated professionals
  • Registrars work closely with physicians and administrators
cancer registry is a dynamic profession1
Cancer Registry is a dynamic profession
  • Registry data make a difference in patient care and cancer research
  • Registrars perform a wide variety of interesting tasks, including data analysis
cancer registry is a dynamic profession2
Cancer Registry is a dynamic profession
  • The profession offers regular work day hours with holidays and vacations
  • There is minimal supervision required for self motivated registrars
cancer registry careers are rewarding
Cancer Registry careers are rewarding

Masters Degree

$55,000

$39,000

Associates Degree

cancer registrars have many career opportunities
Cancer Registrars Have Many Career Opportunities
  • Hospitals and Health Care Facilities
  • Software Vendors
  • Government Agencies
  • Pharmaceutical Companies
  • Outsourcing or Contract services
you and cancer registries
You and Cancer Registries:

A Smart Choice for a Bright Future

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