Research Issues in Children’s Palliative Care. Dr Nicola Eaton Director of Children’s Palliative Care and Complex Needs Research. Introduction. Size and nature of the problem Literature review Research programme Education programme Future research.
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Dr Nicola Eaton
Director of Children’s Palliative Care and Complex Needs Research
Dr Simon Lenton Sonia Ezergailis (ACH)
Dr Fiona Finlay Lizzie Chambers (ACT)
Vineeta Gupta Dr Nicky Harris (CHSW)
Jacky McCallum CPC Teams around England
“Palliative care is an active and total approach to care, embracing physical, emotional, social, and spiritual elements. It focuses on enhancement of quality of life for the child and support for the family and includes the management of physical symptoms, provision of respite, and care following death and bereavement. It is provided for children for whom curative treatment is no longer an option and may extend over many years.” ACT/RCPCH (2003)
(ACT = Association for Children’s Palliative Care)
Estimates of the prevalence of non-malignant life threatening illness in childhood
(Lenton et al 2000)