Keeping young people with the early signs of psychosis on their normal life paths
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EARLY ASSESSMENT AND SUPPORT ALLIANCE (EASA). Keeping young people with the early signs of psychosis on their normal life paths. www.eastcommunity.org. Today’s Discussion. How we got here What we’ve accomplished so far Where we’re headed How you can help Questions & answers.

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Keeping young people with the early signs of psychosis on their normal life paths

EARLY ASSESSMENT AND SUPPORT ALLIANCE (EASA)

Keeping young people with the early signs of psychosis on their

normal life paths

www.eastcommunity.org


Today s discussion
Today’s Discussion

  • How we got here

  • What we’ve accomplished so far

  • Where we’re headed

  • How you can help

  • Questions & answers



What happens when you don t have early intervention
What happens when you don’t have early intervention? Program

  • Confusion and isolation

  • Barriers: insurance, symptoms, lack of recognition, fear, inability/unwillingness to do outreach

  • Delays and/or inappropriate care

  • Escalating crisis

  • Involuntary entry

  • Emphasis on disability pathway


Mid valley behavioral care network bcn
Mid-Valley Behavioral Care Network (“BCN”) Program

  • 5-County Intergovernmental Organization

  • Board of Directors are County Commissioners for each of 5 counties

  • Created in 1997 when OHP folded in mental health

  • Goal was to bring best practices & preventive approach to local communities


Early psychosis programs
Early Psychosis Programs Program

  • First programs began around 1990

  • Early psychosis intervention “standard of practice” in Australia, Great Britain, Canada, Scandinavia

  • BCN created Early Assessment and Support Team (EAST) in 2001 based on Australian guidelines (Early Psychosis Prevention and Intervention Center, Melbourne)

  • 2007 Oregon legislature allocated $4.3 million to disseminate EAST; the Early Assessment and Support Alliance programs began in 2008


Mission of east easa
Mission of EAST/EASA Program

  • Keep young people with the early signs of psychosis on their normal life paths, by:

    • Building community awareness and

    • Offering easily accessible, effective treatment and support

      • Network of educated community members & highly skilled clinicians

      • Most current evidence-based practices



Early assessment and support alliance1
Early Assessment and Support Alliance Program

  • 2007 legislature funded; re-funded in 2009: $4.3 million

  • EASA (including EAST) currently available in 11 counties, covering 60% of population.

  • Results so far have paralleled EAST’s

  • Lane Co. involved in national RAISE study

  • Clackamas is now starting program but not open to private insurance

  • Greater Oregon Behavioral Health discussing expansion beyond current sites (Union, Clatsop, Columbia)

  • Jefferson and Benton discussing starting programs


Schizophrenia prodrome progression into psychosis
Schizophrenia Prodrome: Progression into Psychosis Program

CASIS model (Cornblatt)

Increasing psychotic symptoms

Social & environmental triggers

Affective sxs

Social isolation

School failure

Cognitive

Disability

Biological Vulnerability


Early psychosis dissemination project overview of practice guidelines

Early Psychosis Dissemination Project: Program

Overview of Practice Guidelines


Core concepts
Core Concepts Program

  • Bringing in evidence-based practices as they develop

  • Educated and mobilized community

  • PARTNERSHIP!!!

  • Assertive engagement

  • Shared explanatory model

  • Transdisciplinary

  • Stress vulnerability model

  • Cyclical response

  • Transitional


Practice guideline elements
Practice Guideline Elements Program

  • Systemic change

  • Prodromal focus

  • Community education

  • Accessibility

  • Assessment and treatment planning


Practice guideline elements1
Practice Guideline Elements Program

  • Treatment approach

    • Transdisciplinary team

    • Family partnership

    • Psychoeducation

    • Counseling

    • Groups

    • Psychopharmacological

  • Transition planning

  • Least restrictive environment

  • Non-English speaking

  • Rural and remote areas


Systemic infrastructure
Systemic Infrastructure Program

  • Part of broader long-term system change

    • Know your champions!

  • Intensive team

  • Internal access procedures; crisis linkage

  • Productivity, nights & weekends, up-front investments

  • All funding types


Prodromal focus
Prodromal focus Program

  • Onset of disability

    • Cognitive, Affective

  • Cyclical condition

    • Relapse signature


Community education
Community Education Program

  • Goals:

    • Referent awareness & skill level

    • Awareness of program as distinct program element

    • Positive understanding of psychosis


Performance changes to watch for
Performance Changes to Watch For Program

  • New trouble with:

    • reading or understanding complex sentences

    • Speaking or understanding what others are saying

    • Coordination in sports (passing ball, etc.)

    • Attendance or grades


Behavior changes
Behavior changes Program

  • Extreme fear for no apparent reason

  • Uncharacteristic, bizarre actions, statements or beliefs

  • Incoherent or bizarre writing

  • Extreme social withdrawal

  • Decline in appearance and hygiene

  • Sleep (sleep reversal, sleeping all the time, not sleeping)

  • Dramatic changes in eating


Perceptual changes
Perceptual changes Program

  • Fear others are trying to hurt them

  • Heightened sensitivity to sights, sounds, smells or touch

  • Statements like, “I think I’m going crazy” or “My brain is playing tricks on me”

  • Hearing voices or sounds others don’t

  • Visual changes (wavy lines, distorted faces, colors more intense)

  • Feeling like someone else is putting thoughts in your brain or taking them out


Rapid easy access
Rapid, Easy Access Program

  • Psychiatric emergency focus

  • Team handles own intake

  • Referrals from all sources

    • Cultivation of referent relationships

  • Outreach & problem solving

    • Hospital outreach

    • Attention to barriers


Assessment
Assessment Program

  • Comprehensive biopsychosocial

    • Phenomenology

    • Primary & secondary symptoms

    • Course & duration

    • Prodromal symptoms

    • Precipitants & relieving factors

    • Explanatory model

    • Effect of treatment already tried

    • Associated physical conditions

    • Current & past substance abuse (ASAM)

    • Strengths of person & family

    • Cultural beliefs & practices

    • Premorbid functioning

    • Mental state exam

    • Risk

    • Personal & family history

    • Screening for neurological concerns


Assessment treatment planning
Assessment & Treatment Planning Program

  • Lab tests

  • Health screening & monitoring

  • Routine review meetings w/team & family

    • Initiation, after assessment, every 90 days, when initiating transition


Treatment recovery plans
Treatment/Recovery Plans Program

Who’s the owner?


Transdisciplinary team
“Transdisciplinary” Team Program

  • Strong family focus

  • Collaborative consultation

  • Integrative approach


Transdisciplinary team1
Transdisciplinary Team Program

  • Individual & family

  • Lead counselor

    • Takes lead on coordination for individual

    • Individual counseling

  • Psychiatrist

  • Nurse

  • Occupational therapist

  • Vocational/educational specialist

  • Dual diagnosis

  • Peer support/mentoring


Transdisciplinary team2
Transdisciplinary Team Program

  • Intensity

  • Coordination


Psychopharmacological approaches
Psychopharmacological Approaches Program

  • Voluntary

  • One tool

  • Low-dose

    • Antipsychotics avoided for sleep/anxiety

  • Careful monitoring


Individual family partnership
Individual/Family Partnership Program

  • Transparency of decisions

  • Their words

  • Shared explanatory model

  • Model partnership with professionals

  • Goal is establishing knowledge, skills, supports for long-term success


Multi family psychoeducation
Multi-Family Psychoeducation Program

  • Joining with families (3 sessions)

  • Day-long workshop (weekend)

  • Twice-monthly groups (evenings)

  • Follow-up joining

  • Preferable for clinicians to be serving the individuals as primary clinician


Psychological strategies
Psychological Strategies Program

  • Illness Management & Recovery Framework

    • Psychoeducation

    • Motivational Interviewing

    • Cognitive Behavioral Therapy

      • Self esteem/positive view of future

      • Symptom mastery

      • Adaptation & recovery


Attention to trauma
Attention to Trauma Program

  • Pre-existing

  • Traumatizing events


Group programs
Group Programs Program

  • Based on need & interest

  • Opportunity to interact with peers


Psychopharmacology
Psychopharmacology Program

  • Low, slow

  • Avoid antipsychotics for sedation or anxiety

  • Emphasis on choice

  • Doctor relationship is essential, with or without medicine


Transition planning
Transition Planning Program

  • Start Day 1

  • In earnest 6 months ahead

  • Relapse plan/advance directive

  • Ongoing prescriber & counselor

  • Social support & progress toward goals

  • Follow up to be sure connection is solid


How do we get there
How do we get there? Program

  • Letting people know it’s working

  • Quantifying the difference

  • Technical assistance

  • Systems leadership and reform

  • Diversified funding

  • “Critical mass”


Results
Results Program


Since march 2001
Since March 2001 Program

  • Approx. 400 served

  • Over 800 referred & assisted

  • 74% symptom remission or only mild disruption by 1 year

  • 95% maintain strong family support & involvement


In school or working Program

%

Hospitalized in last 3 months

Months in EAST Program

Vocational & Hospital Outcomes prior to Service Enhancements (Intensive Staffing Standards & Universal Access to SE)


Preparing for the future
Preparing for the future…. Program

  • Robert Wood Johnson Foundation Early Detection and Intervention for the Prevention of Psychosis Program (EDIPPP)

    • 4-year national study looking at people at high risk due to lower level symptoms consistent with psychosis (possibly prodromal)

    • Now in year 3

    • We’ve learned a lot!

      • Lower hospitalization rates; easier to engage; less disability

      • High risk identification still needs refinement


What can you do to help
What can you do to help?? Program

  • If you live in an EASA county:

    • Help get the word out by identifying opportunities for the EASA staff; spread the word directly

    • Refer people

    • Keep advocating for effective services and helping to organize informal supports

    • Look for ways to support EASA families and graduates: What should people’s experience be like (versus what we’ve experienced in the past)

    • Let policy makers know this is the type of change families need!


What can you do to help1
What can you do to help? Program

  • If you don’t live in an EASA county:

    • Educate and encourage key decision makers- mental health directors, county, state, etc. about what happens now when people look for help & how it could be different with EASA

    • Organize a local educational session with your local community team (EAST staff can come visit and talk about how we got where we are)


More information
More Information Program

Program Coordinator: Tamara Sale, [email protected]

Clinical Supervisor, Ryan Melton, [email protected]

EAST website: www.eastcommunity.org

State EASA website:

www.oregon.gov/DHS/mentalhealth/services/easa/main.shtml


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