Improving Newborn Screening Processes: How to Get it Done in Practice

1. http://www.nccrcg.org/ Improving Newborn Screening Processes: How to Get it Done in Practice Overview Newborn Screening Clinical Decision Support Tools & Resources Preliminary Conclusions • A group of 15 diverse practices were able to utilize quality improvement science to: • Increase documentation of NBS results • Increase documentation of the communication of results to parents • Increase identification of children with special needs and enter into practice registry • Establish practice policies regarding newborn screening process to clearly define roles, responsibilities, and expectations • Increase utilization of the ACTion sheets • Show that adequate documentation and communication of results did not increase total patient visit time Nearly all infants born in the United States receive newborn bloodspot and hearing screening tests. This project aimed to help primary care providers improve practices related to the short-term management processes for newborn screening (NBS). http://www.acmg.net/ Project Goal To assess the effectiveness of systems of care, including use of decision support tools including the ACT sheets, in assisting the pediatrician to provide appropriate responses in the short-term management of infants Methods • Fifteen primary care practice teams participating in the AAP Quality Improvement Innovation Network (QuIIN), representing a wide variety of practice types and geographic locations, participated in a quality improvement learning collaborative project. • Measurements of the primary care practices’ care processes, using patient chart review, was conducted at baseline and over a time period of six months, to track changes in performance of short-term management care processes for NBS. • Participants were also asked to examine their practice policies and documentation systems regarding NBS and to evaluate the usability of NBS ACTion sheets as a source for clinical decision support. QuIIN The AAP QuIIN, established in 2005, is a network of nearly 300 practicing pediatricians and their staff teams with the mission of improving care and outcomes for children and families. QuIIN serves as a practical working lab for pediatricians to test how improvements can be implemented in practice. Additional information about QuIIN can be found at http://quiin.aap.org. • NBS Resources • State NBS and Early Hearing Detection & Intervention (EHDI) Programs • National Newborn Screening and Genetics Resource Center; www.genes-r-us.uthscsa.edu • National Center on Hearing Assessment and Management; www.infanthearing.org • National Coordinating Center for the Regional Genetic and Newborn Screening Service Collaboratives; www.nccrcg.org • Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children; www.hrsa.gov/heritabledisorderscommittee • Newborn Screening Clearinghouse; www.nbsclearinghouse.org Participating QuIIN Practices Regional Genetic & Newborn Screening Services Collaboratives Support Support for this project was provided through a public/private agreement between the Maternal & Child Health Bureau, the American College of Medical Genetics, and the American Academy of Pediatrics Newborn Screen Positive Infant ACTion Project Expert Group Cosgrove L, Geleske T, Gubernick R, Hinton C, Kaye C, Kairys S, Kemper A, Saul R, Thompson B