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Welcome! Ligas Family Advocates A Progra m of :

Welcome! Ligas Family Advocates A Progra m of :. April 24, 2014. This is what The Arc of Illinois does:. Public Policy Advocacy The Voice of the Disability Community Education and Training Advocacy Systems Coordination Linkages to Support Groups and Services Information and Referral

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Welcome! Ligas Family Advocates A Progra m of :

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  1. Welcome!Ligas Family Advocates A Program of : April 24, 2014

  2. This is what The Arc of Illinois does: • Public Policy Advocacy • The Voice of the Disability Community • Education and Training • Advocacy Systems Coordination • Linkages to Support Groups and Services • Information and Referral • Technical Support and Assistance • Research and Model Dissemination • Convene Networks and Collaboration • Support Progressive Legislation • Improves Funding Streams To learn more about the work The Arc of Illinois, go to www.thearcofil.org

  3. Programs of The Arc of Illinois include: Consumer Involvement Program Consumer Stipend Funds

  4. Established January 1, 2014

  5. LFA’S Missy Toni Kimberly Shirley

  6. Ligas Family Advocate ProgramLearning About Options Where you live and receive services 2014!

  7. Ligas Family Advocate Program The Ligas Family Advocate Program has one purpose – to connect recipients of Ligas award letters seeking Home Based or CILA services and their families with family advocates who are knowledgeable about creative ways to utilize their Ligas funding to build successful lives in the community.

  8. Ligas Family Advocate Program Focus • This program will initially focus on Ligas class members within the areas served by three Independent Service Coordination agencies: • Community Service Options Inc. • Developmental Disabilities Services Metro East • Suburban Access. • Our advocates will work closely with a designated representative from within each of these agencies, sharing information with families. Two of these agencies serve the greater Chicago area and the third serves the St. Louis metropolitan area.

  9. What Information will be shared with Ligas Class Members and How? • Information about the Ligas Consent Decree and the rights of class members • Information about choices for living and receiving services • The history of, and current parameters for Home-Based Support Services Program and CILA • Information on Illinois’ Employment First legislation and resources for employment assistance • Effective advocacy strategies and resources • Potential questions for use in choosing a service provider • Person-centered planning and self-determination information/resources Information will be shared in face-to-face meetings, at trainings, at outreach events and presentations, and through brochures and other informational documents.

  10. What We Hope To Accomplish • Collect data that identifies: • Services needed but unavailable • Observed trends • Barriers to employment • Barriers to successful development and implementation of an individual’s service plan • Level of consumer/family satisfaction with the Home-Based Support Services Program or CILA as implemented • Descriptions of successful strategies used to reach individuals/families The end result of this data collection will be the ability to provide program data summaries and recommendations to both the Ligas Court Monitor and the Illinois Department of Human Services that will ultimately result in positive systemic change.

  11. Small or large? Have you ever thought about what your dream home might look like?

  12. Apartment or House? Which would you choose?

  13. In a city or small town?

  14. Lots of shops or a park?

  15. Who would you live with or near?

  16. What supports would you want?

  17. Right now!

  18. Ligas v. Hamos In 2005, Stanley Ligas and David Cicarelli and 7 other people filed a class action lawsuit, now you may have some other options. Picture from http://news.meddilll.northwestern.edu/chicago/news.aspz?d=106795

  19. Homes in the Community Six years later, in 2011, the state of Illinois and the people in the lawsuit reached an agreement called a Consent Decree. This Consent Decree supported Mr. Ligas’ desire to move. He and Mr. Cicarelli now share a home in the community.

  20. Home and Community Based Waiver

  21. Options

  22. Your Rights:

  23. You can make a choice to…

  24. Basic Needs and More… Services can include supports to keep in touch with family, have opportunities for hobbies and exercise, and help you buy and do things you enjoy.

  25. Supports and Services

  26. Let’s concentrate on living options • There are two types of supported living arrangements. • The first is called Community Integrated Living Arrangements, or CILAs, and the second is called Home-Based Services. • CILA services are bundled so that a person receives supports at home and could be employed or participates in a day program.

  27. CILA as a Living Option Everyone who receives CILA services also receive day or employment services… • Employment • Day Program • Adult Day Care • In Home Support May receive other supports based on Service Plan

  28. Home Based Supports as a Living Option Choose from a menu of services and supports Live with family, friends or independently • May choose day supports • May choose supports at home • May choose other supports to enhance success All based on personal needs and within budget 1 2 3 4 5 6

  29. Service Planning In both CILA and Home-Based services, you will work with an agency called a Pre-Admission Screening (PAS) Agency/ Individual Service Coordination agency (ISC). The agency will assign an Independent Service Coordinator to work with you to develop a Service Plan.

  30. Residential Services- CILA Options:

  31. Group Home When a person lives in a group home, they share the home with other people who also receive services. All of the people in the group home receive services through a state approved CILA agency that owns or rents the home.

  32. Host Family Home Here a family not related provide supports in their home. With help from a state licensed CILA agency, the host family arranges all of the supports described in your service plan.

  33. Support and Supervision In a Group Home and Host Family Home, you have 24 hour paid support 7 days a week.

  34. Family Home There are two other CILA options where the person does not have round-the-clock paid support. One is Family Home.

  35. Intermittent The other option is intermittent services. You live alone, with family or friends. You are usually making independent decisions about many things like when you pay your bills or where you want to live. The CILA supports you receive are for specific tasks .

  36. Licensed CILA Providers The state is responsible for ensuring that all CILA providers are qualified to provide services.

  37. Home Based Services Now let’s take a closer look at the Home Based Services option. With this option you manage your own services with the help of your family and friends.

  38. Home Based Services Options • You work with the Service Coordinator and a person called a Service Facilitator to develop your plan and to identify and select providers and to stay within your budget. • You may choose to live with family, friends or on your own. • You choose the supports and services you want from a menu of services, and where you want to purchase each support and service. • The Service Coordinator and Service Facilitator help you monitor services. • If you choose to hire your own support workers, you work with a fiscal intermediary to pay the workers. • New possibilities?

  39. Menu of Services

  40. Employment and Day

  41. Support Services

  42. Decisions If you decide to… Then… • Stay in the same home you live in now • Explore other options within the program • Explore options outside of what you now • Get more information • Take more time • You do • Connect with other families • We refer you to the PAS/ISC agency • We refer you to PAS/ISC • We call you back

  43. Acknowledgement The Family Support Network/Arc Ligas Family Advocate Program would like to acknowledge that many of the slides/information used in this PowerPoint were created by and are used with the permission of: CQL Outreach Project Cathy Yadamec, Project Manager 866.662.2225 or 217.718.4029 PO Box 53, Woosung, IL 61091-0053

  44. Contact Information: Shirley A. Perez, Executive Director Family Support Network 708-331-7370 Shirley@FamilySupportNetwork.org www.familysupportnetwork.org

  45. Ligas Contacts Department of Human Services Division of Developmental Disabilities 319 E. Madison Street, Suite 3M Springfield, IL 62701-1305 Phone: (217) 785-6171 Email: Troy.Markert@illinois.gov Or You may contact the federal Court Monitor for the Ligas Consent Decree: Mr. Tony Records Phone: 301-529-9510 Email: traconsult@mindspring.com

  46. Ligas Contacts Equip for Equality provides self-advocacy assistance, legal services, education, public policy advocacy, and abuse investigations. The offices are located at: 20 N. Michigan, Ste. 300 Chicago, IL 60602 (800) 537-2632 1 West Old Capitol Plaza, Ste. 816 Springfield, IL 62701 (800) 758-0464 Guardianship and Advocacy Commission is a state agency consisting of three divisions: Legal Advocacy Services, Human Rights Authority and the Office of the State Guardian. 160 N. LaSalle Street, Suite S500 Chicago, IL 60601 (312) 793-5900 521 Stratton Building 401 S. Spring Street Springfield, IL 62706 (217) 785-1540

  47. QUESTIONS?

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