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Parental Engagement and Confidence. National Network of Parent Carer Forums ‘Our Strength is our Shared Experience’. Context NNPCF Next steps. 1. Context. Unique journey of parent carers.

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Parental Engagement and Confidence

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Parental Engagement and Confidence

National Network of Parent Carer Forums

‘Our Strength is our Shared Experience’

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Next steps

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1. Context

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Unique journey of parent carers

  • Early Stage: anxiety and effort to secure diagnosis; shock and feelings of helplessness; denial; guilt; crisis as life will now be different; eagerness to put child in hands of expert; isolation.

  • Middle Stage: coping with conflicting advice; realising things cannot always be fixed; noticing unsustainable physical and emotional effort; ; emergence of chronic sorrow; navigating service systems; exposure to disability discrimination and lack of opportunities.

  • Later Stage: reframing ‘normality’; drawing on range of expertise; developing confidence; connecting with other families; advocating for services.

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Two perspectives in one

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NNPCF : reminder shared values

  • Open to all parent carers

  • Pan disability- Across all disabilities and conditions/spectrums

  • Children/young people aged 0-25 years

  • All sectors of community (BME, faiths, LGBT and other minorities)

  • Issues across service boundaries (health, education, social care, and leisure)

  • Urban and rural

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  • Who are we?

  • A network of 151 local forums into 9 regions

  • Steering group of 9 regional representatives

  • Up to 3 non regional

  • Democratic process begins this term

  • Transition period and wise use of a scarce resource

    • Expectation that additional commissioned work is resourced (rates agreed this week)

    • Basic funding through Parent Participation Strategic Partner Contact a Family: Sue North, PP Director

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  • What we do?

  • Network 151 local forums into 9 regions

  • Use a solution focussed approach

  • Provide a national focus for parent participation

  • Model and grow participation at all levels

  • Build good practise resources

  • Three way communication – updates (local, regional, national)

  • Contribute with partners to building a participative community!

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Top 10 tips!

  • What works and makes a difference

    • Meaningful parent carer participation; from planning through to implementation and beyond

    • Holistic and whole family

    • Build on good practice; share where involvement has made a difference

    • Invest in parent carer training and support

    • Honest and transparent communication using clear and simple language

    • Joined up planning, delivery and monitoring

    • Information and people with insider knowledge

    • Proactive; being prevention minded, building resilience

    • Responsive services; will listen and respond

    • Solution focussed: skilled network of parent carers working in partnership with skilled, creative practitioners and commissioners

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3. Next steps

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  • Next Steps

  • Good practise Parent Carer Participation

  • All pathfinders and grant holders

  • Linking between grant holders

  • All levels

  • Across service boundaries

  • Fair and safe (governance and policies)

  • Sustainable practise

Thank you website www nnpcf org uk email info@nnpcf org uk l.jpg

Thank you Website:

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