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Psychosocial Issues in Cystic Fibrosis Adherence and Quality of Life. Yvonne D. Gathers, MSW,LCSW Clinical Social Worker Pediatric Pulmonary Center. Objectives. Psychosocial Issues in children, adolescents and adults with Cystic Fibrosis Psychological complications of cystic fibrosis

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psychosocial issues in cystic fibrosis adherence and quality of life

Psychosocial Issues in Cystic Fibrosis Adherence and Quality of Life

Yvonne D. Gathers, MSW,LCSW

Clinical Social Worker

Pediatric Pulmonary Center

objectives
Objectives
  • Psychosocial Issues in children, adolescents and adults with Cystic Fibrosis
  • Psychological complications of cystic fibrosis
  • Obstacles of Transition to adult Care
  • Obstacles for parents/Caregivers
  • View video tape of adolescents with cystic fibrosis
introduction
Introduction
  • Children (age birth-10 yrs.)
  • Early adolescence (age range 11-14 yrs.)

Am I normal

  • Mid-adolescence (age 14-16 yrs.)

Independence/self image

  • Late adolescence (age 17-older yrs.)

Future oriented, intimacy /career goals

what are psychosocial issues
What are Psychosocial Issues?

Process of acquiring relevant information needed to decide on and develop a rational plan for helping clients or patients.

Cultural Values

Environment Health Beliefs

Resources Education

Economics Housing

Support system Family

psychological complications of cystic fibrosis
Psychological Complications of Cystic Fibrosis
  • Severity of Disease
  • Shock, disbelief, fear, anger, depression & guilt
  • Treatment Regiment
  • Nutritional habits/Bonding time vs vest therapy
  • Length of Hospitalizations/Outpatient Office Visits
  • Employment/Marriage
psychological complications
Psychological Complications
  • Body image
  • Mature 1 ½ - 2 yrs. later
  • Younger and small body size
  • Relationship with peers
obstacles affecting transition
Obstacles Affecting Transition
  • Dependent behavior
  • Immaturity
  • Severe illness or disability
  • Mental Health
  • Lack of support systems
  • Lack of trust in caregivers
  • Poor adherence to treatment regiment
  • Parental involvement
obstacles for parents caregivers
Obstacles for Parents/Caregivers
  • Excessive need for control
  • Emotional dependency
  • Parenting styles/overprotective
  • Heightened perception of disease severity
  • Lack of trust in caregivers
  • Denial about the severity of the disease
ad