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10 years of the Aspergillus Website

10 years of the Aspergillus Website. 1998-2008. Evolution and revolution.

keith
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10 years of the Aspergillus Website

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  1. 10 years of the Aspergillus Website 1998-2008

  2. Evolution and revolution Original summary of purpose“This site is designed to provide information on pathogenic Aspergilli for clinicians and scientific researchers. The site includes DNA sequence data, a comprehensive bibliographic database, laboratory protocols, treatment information and discussion groups.”

  3. Evolution: 10 years ago…

  4. Evolution: 5 years ago…

  5. Evolution: 4 years ago…

  6. Evolved: Now…

  7. Evolution: Statistics • 1999 • Nearly 4000 members • 500 pages per day • 71 countries reached • 2008 • 35 000 members • 12 000 pages per day

  8. Latest figures • 14 000 page requests per day (up to 5 million per year) • 26 000 distinct IP addresses per month • 110-120 countries reached each month (2/3rds of the total number of countries in the world) • 1975 sites link to website (20th Feb 2008)

  9. Evolution: Sections Diagnosis: 3800ppm Treatment: 2400ppm Research: 500ppm Articles:25 000ppm Conferences: 4600ppm 33 000 images per month 6700 ppm

  10. Revolution: new sections and services 37 000 pages downloaded per month 12 000 pages downloaded per month A search is carried out every 2-3 seconds somewhere in the world 21 000 pages downloaded per month 23 000 pages downloaded per month

  11. The Aspergillus Search Engine • 68 000 readable files indexed by Google(html, php, pdf, ppt, doc) • 17 requests per minute • Used twice as much in UK night-time (USA/Asia users)

  12. Search terms – WWW Google

  13. Nova Plantarum Genera

  14. Site structure • 40 indexed sections • 5 forums for questions & answers • Patients support group (very active with 539 members and 10-20 messages per day • Technical support group (73 members) • Active collaboration with the Aspergillus Trust (UK patients only)

  15. A. fumigatus sequence release

  16. Doing well so far – what next?

  17. The Way Forward • Quality and ‘added value’ of content • Newsletters • Better internal searching – better internal navigation • Better external indexing (Domain names, specific pages aimed at improving ranking)

  18. The Way forward • Better public relations • Improve existing sections for existing audiences – Patients (50% of audience) • More sections designed to attract new audiences (Industrial applications)

  19. Acknowledgments • Present sponsors • Schering-Plough • Pfizer Inc • The CGD Research Trust • The Moulton Trust • Biocompare • Past sponsors • Alza • OrthoBiotech • Merck & Co Inc. • AB Biodisk

  20. Patients website – the beginning • Discussion group – simple email based group allowing group ‘conversations’ • Around 100 members • Demanding on moderator & editors • Bulletin board – 2 subjects (allergic & invasive) Questions & answers • Not popular – 1 or 2 questions a week • No group support

  21. Bulletin Board

  22. Shortcomings • For me • Repetitive – tending to answer the same or similar questions • Text only • For patient • Not easy to find (have to find website, then the right section) • Not easy to understand • Difficult to find information you want

  23. Improvements • Patients website • Contains fact sheets on all repeated information, links to useful websites • Open to all, no membership required • Data gathering to profile users • Aspergillus Support Group

  24. What is Aspergillus?

  25. Non-English page requests Top 6 downloaded ‘What is aspergillus’ in January 2008 • Italian • Polish • Spanish • Dutch • Chinese • Arabic

  26. Essential Information

  27. Advice

  28. Aspergillus Support Group

  29. Success of Patient Sections • 37 000 website pages requested • 543 members of the support group • 10-20 messages per day • Far less time spent answering repetitive questions (Patient moderators) • ‘Body’ of information supported by Patients group • The Aspergillus Trust

  30. Public Relations • Patients section is a good potential source of stories for journalists, as well as a good source of ideas for story lines and pictures that will be of interest to wider audiences. • Patient stories – successful treatment • Flood damage – better ways to clean up • Building work – ways to protect the vulnerable • Composting – sensitivity of siteing • Increased public interest = increased viewing figures

  31. The Aspergillus Trust Rose out of the Aspergillus Support Group Led by UK based people suffering from Aspergillus illnesses Originally envisaged (by me) to be a group offering the patients perspective on what information is given to patients during their illnesses, how to improve that information and even how to improve the treatments offered (ABPA/itraconazole) A think tank to suggest new areas to cover But they became so much more…

  32. Trust website

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