10 years of the aspergillus website
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10 years of the Aspergillus Website. 1998-2008. Evolution and revolution.

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10 years of the Aspergillus Website

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10 years of the Aspergillus Website

1998-2008


Evolution and revolution

Original summary of purpose“This site is designed to provide information on pathogenic Aspergilli for clinicians and scientific researchers. The site includes DNA sequence data, a comprehensive bibliographic database, laboratory protocols, treatment information and discussion groups.”


Evolution: 10 years ago…


Evolution: 5 years ago…


Evolution: 4 years ago…


Evolved: Now…


Evolution: Statistics

  • 1999

    • Nearly 4000 members

    • 500 pages per day

    • 71 countries reached

  • 2008

    • 35 000 members

    • 12 000 pages per day


Latest figures

  • 14 000 page requests per day (up to 5 million per year)

  • 26 000 distinct IP addresses per month

  • 110-120 countries reached each month (2/3rds of the total number of countries in the world)

  • 1975 sites link to website (20th Feb 2008)


Evolution: Sections

Diagnosis: 3800ppm Treatment: 2400ppm

Research: 500ppm Articles:25 000ppm Conferences: 4600ppm

33 000 images per month

6700 ppm


Revolution: new sections and services

37 000 pages downloaded per month

12 000 pages downloaded per month

A search is carried out every 2-3 seconds somewhere in the world

21 000 pages downloaded per month

23 000 pages downloaded per month


The Aspergillus Search Engine

  • 68 000 readable files indexed by Google(html, php, pdf, ppt, doc)

  • 17 requests per minute

  • Used twice as much in UK night-time (USA/Asia users)


Search terms – WWW Google


Nova Plantarum Genera


Site structure

  • 40 indexed sections

  • 5 forums for questions & answers

  • Patients support group (very active with 539 members and 10-20 messages per day

  • Technical support group (73 members)

  • Active collaboration with the Aspergillus Trust (UK patients only)


A. fumigatus sequence release


Doing well so far – what next?


The Way Forward

  • Quality and ‘added value’ of content

  • Newsletters

  • Better internal searching – better internal navigation

  • Better external indexing (Domain names, specific pages aimed at improving ranking)


The Way forward

  • Better public relations

  • Improve existing sections for existing audiences – Patients (50% of audience)

  • More sections designed to attract new audiences (Industrial applications)


Acknowledgments

  • Present sponsors

    • Schering-Plough

    • Pfizer Inc

    • The CGD Research Trust

    • The Moulton Trust

    • Biocompare

  • Past sponsors

    • Alza

    • OrthoBiotech

    • Merck & Co Inc.

    • AB Biodisk


Patients website – the beginning

  • Discussion group – simple email based group allowing group ‘conversations’

    • Around 100 members

    • Demanding on moderator & editors

  • Bulletin board – 2 subjects (allergic & invasive) Questions & answers

    • Not popular – 1 or 2 questions a week

    • No group support


Bulletin Board


Shortcomings

  • For me

    • Repetitive – tending to answer the same or similar questions

    • Text only

  • For patient

    • Not easy to find (have to find website, then the right section)

    • Not easy to understand

    • Difficult to find information you want


Improvements

  • Patients website

    • Contains fact sheets on all repeated information, links to useful websites

    • Open to all, no membership required

    • Data gathering to profile users

    • Aspergillus Support Group


What is Aspergillus?


Non-English page requests

Top 6 downloaded ‘What is aspergillus’ in January 2008

  • Italian

  • Polish

  • Spanish

  • Dutch

  • Chinese

  • Arabic


Essential Information


Advice


Aspergillus Support Group


Success of Patient Sections

  • 37 000 website pages requested

  • 543 members of the support group

  • 10-20 messages per day

  • Far less time spent answering repetitive questions (Patient moderators)

  • ‘Body’ of information supported by Patients group

  • The Aspergillus Trust


Public Relations

  • Patients section is a good potential source of stories for journalists, as well as a good source of ideas for story lines and pictures that will be of interest to wider audiences.

    • Patient stories – successful treatment

    • Flood damage – better ways to clean up

    • Building work – ways to protect the vulnerable

    • Composting – sensitivity of siteing

  • Increased public interest = increased viewing figures


The Aspergillus Trust

Rose out of the Aspergillus Support Group

Led by UK based people suffering from Aspergillus illnesses

Originally envisaged (by me) to be a group offering the patients perspective on what information is given to patients during their illnesses, how to improve that information and even how to improve the treatments offered (ABPA/itraconazole)

A think tank to suggest new areas to cover

But they became so much more…


Trust website


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