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The BC eHealth Legal/Privacy Scenario

May 28, 2013 Adam Stinson Manager, eHealth Privacy Services, PHSA. The BC eHealth Legal/Privacy Scenario. An Effective Patchwork. Faculty/Presenter Disclosure. Faculty: Adam Stinson Relationships with commercial interests: None Nothing to disclose. Agenda. Background eHealth progress

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The BC eHealth Legal/Privacy Scenario

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  1. May 28, 2013 Adam Stinson Manager, eHealth Privacy Services, PHSA The BC eHealth Legal/Privacy Scenario An Effective Patchwork

  2. Faculty/Presenter Disclosure • Faculty: Adam Stinson • Relationships with commercial interests: • None • Nothing to disclose

  3. Agenda • Background • eHealth progress • Legislative landscape • eHealth Viewer in BC • Agreement patchwork • Keys to success

  4. Background

  5. Background

  6. Legislative landscape Major Acts governing eHealth currently in BC • E-Health (Personal Health Information Access and Protection of Privacy) Act • Health Information Bank (HIB) • Disclosure Directives • Freedom of Information and Protection of Privacy Act (FIPPA) • Pharmaceutical Services Act • Public Health Act

  7. The Big Challenges • Technology does not conveniently fit into the legislative framework • Multiple Data Stewards • Multiple privacy controls dictated by the Acts themselves

  8. CareConnect X 8 X 5 All patient data is fictional

  9. Information Sharing Agreements

  10. Privacy implications Multiple legislative authorities result in varying levels of privacy controls available by data domain Multiple data stewards result in fragmented approach to custody and control issues, breach management, etc…

  11. CareConnect – Disclosure Directives All patient data is fictional

  12. The good news… • While the patchwork of legal and privacy arrangements exist – it works! • The development and adoption of CareConnect has brought multiple stakeholders together to dialogue and confront the challenges • eHealth Operations team has served as a facilitator • In the end, clinical users are getting better, faster access to the information they need

  13. Going forward • Work is underway to streamline not the various pieces of legislation, but rather the approach to Information Sharing Agreements • General Health Information Sharing Agreement • Work also underway to bring uniformity to disclosure directive/masking approach in BC • Introduction of new data domains will demand this work to be seen through to completion

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