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Maternity Data Update on issues. 12 June 2012 Due Data – Improving midwives’ use of data and access to information Julie Tindale-Midwife. Julie Tindale : Heart of England NHS Foundation Trust. Biog: Clinical Midwife-

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maternity data update on issues

Maternity DataUpdate on issues

12 June 2012

Due Data –

Improving midwives’ use of data and access to information

Julie Tindale-Midwife

julie tindale heart of england nhs foundation trust
Julie Tindale : Heart of England NHS Foundation Trust

Biog:

Clinical Midwife-

Lead for Information and Communications for Women’s Health Governance Dept

  • Member of CCIO Leaders Network Advisory Group
  • Chair NN4B Closure Programme working Group
  • Member of Maternity Dataset (MCDS) Implementation Group
  • Member of National Nursing (and midwifery)Informatics Strategic Taskforce (NNIST)
  • 4 years as National Clinical Lead for Midwifery – DH Informatics Directorate (DHID) and Connecting for Health (Feb 2008 to Apr 2012)
due data
Due Data
  • Overview:
    • NN4B
    • MCDS (Maternity and CYPHS and CAMHS)
    • PbR and Metrics
    • Clinical Information Systems
  • Leadership- A Maternity CCIO-how do we progress?

Julie Tindale : [email protected]

maternity data nn4b
Maternity Data: NN4B

NHS Number for All Babies born in England

Electronically Since October 2002

  • Contract ends June 2014 (was 2013)
  • The software is now very out of date
  • Previous expectation Trusts would all be PDS compliant now
  • INNS was a temporary solution only
  • Renegotiation of business contracts on-going with BT
  • Trusts are not all PDS compliant
  • Trusts expected to have a working clinical maternity information system

Julie Tindale : [email protected]

maternity data nn4b http www connectingforhealth nhs uk systemsandservices nhsnumber
Maternity Data: NN4Bhttp://www.connectingforhealth.nhs.uk/systemsandservices/nhsnumber
  • System Providers are engaged with the CFH team
  • Early adopters based in Manchester : Silverlink for Maternity and iSoft for Child Health systems
  • Maternity services to provide a Clinical Lead as focus for communications / compliance
  • Regular updates are circulated- when there is news/progress
  • Website is updated with information
  • Contact : for further information

[email protected]

[email protected]

Julie Tindale : [email protected]

maternity data mcds june 2013 http www ic nhs uk maternityandchildren maternity
Maternity data: MCDS June 2013http://www.ic.nhs.uk/maternityandchildren/maternity

MDS

CYPHS and CAMHS

Approved by ISB

  • MaternityUnits – including a Midwifery clinical lead!
  • Units must be working with their Data management departments to ensure the correct definitions working
  • Child Health units must be working with their Data management departments to ensure the correct definitions working
  • Mental health systems also need to adjust definitions and consider data capture methods

Julie Tindale : [email protected]

slide7
Maternity data: MCDShttp://www.ic.nhs.uk/services/maternity-and-childrens-data-set/maternity-services-secondary-uses-data-set

Key Areas

  • Routine Booking Appointment activities
  • Maternity Care Plans
  • Dating Scan
  • Antenatal Screening Tests
  • Structural Fetal Anomaly Screening
  • Labour & Delivery
  • Postnatal Demographics
  • Newborn Screening
  • Maternal and Neonatal Death

Julie Tindale : [email protected]

slide8

Maternity data: MCDShttp://www.ic.nhs.uk/services/maternity-and-childrens-data-set/children-and-young-peoples-health-services-cyphs-secondary-uses-data-set

Children and Young People\'s Health Services (CYPHS) Secondary Uses Data Set Key areas

  • Personal and demographic
  • Social and personal circumstances
  • Relationships and household
  • Breastfeeding and nutrition
  • Care event
  • Screening activity
  • Inpatient stays
  • Observations of BMI

Julie Tindale : [email protected]

maternity data mcds http www ic nhs uk maternityandchildren camhs
Maternity data: MCDShttp://www.ic.nhs.uk/maternityandchildren/CAMHS

CAMHS key Areas

  • Referrals to CAMH services
  • Demographics
  • Background and Family history
  • Targeted needs
  • Encounters
  • Care planning and Interventions
  • Outcome measures
  • Inpatient stays
  • Presenting problems and diagnoses

Julie Tindale : [email protected]

maternity data mcds benefits
Maternity data: MCDS Benefits
  • The Information will flow real time to a national data warehouse reducing burden on service delivery organisations
  • Information will use same definitions- comparators will be more robust
  • Babies/ Children records directly linked to Mother’s pregnancy record*
    • Outcomes directly linked with significant events in pregnancy and delivery
  • Records for subsequent pregnancies and deliveries for the same mother will be linked
  • Powerful for public health: Smoking history linked to outcome trends, Breastfeeding prevalence and persistence

Julie Tindale : [email protected]

maternity data pbr mailto http www dh gov uk health 2012 04 guidance maternity services
Maternity data: PBR mailto:http://www.dh.gov.uk/health/2012/04/guidance-maternity-services/

STANDARDINTERMEDIATE AND INTENSIVE

  • Pathway payment system to be introduced in shadow from April 2012
  • Payment split into 3 modules antenatal care; birth spell to discharge; postnatal care
  • Each module split into pathway levels by intensity of care needed; based on a woman’s characteristics and factors
  • Estimation of onset of conditions during pregnancy to enhance pricing

Julie Tindale : [email protected]

maternity data pbr http www dh gov uk health 2012 04 guidance maternity services
Maternity Data :PbRhttp://www.dh.gov.uk/health/2012/04/guidance-maternity-services/

Julie Tindale : [email protected]

maternity data clinical information systems
Maternity Data :Clinical Information Systems

Issues

Solutions?

  • Finding an up-to-date system that has a support department that is able to ‘speak Maternity’
  • What does the best of breed maternity system look like?
  • Sharing best practice
  • Signposting to systems that work
  • Local networks choosing shared or collaborative systems

Julie Tindale : [email protected]

maternity data clinical information systems1
Maternity Data :Clinical Information Systems

Access for service users

Solutions?

  • Health Bill: No decision about me without me
  • Information strategy: access to own medical records
  • Data sharing & security
  • Scheduling
  • Learning Disability, Language difficulty and equality
  • Access for laboratory and diagnostic results
  • RedBook on line
  • Pregnancy records on line
  • Navigation of proliferation of on-line pregnancy and birth advice
  • A Role for Information ‘Observatories’?

Julie Tindale : [email protected]

chief clinical information officer for maternity
Chief Clinical Information Officer for Maternity

(Discussion)

  • How to grow the future leaders for Information and Communications
  • Informatics is not IT
  • Information and Communications is key- Better Safer Care?
  • Sharing for better safer services- Local and Regional Collaboration?
  • Who speaks for front line midwives who are ‘drowning’ under weight of the Data requirements, old equipment, no equipment?

Julie Tindale : [email protected]

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