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Sleep Disturbance in MS. Preliminary findings of Questionnaire Survey TiMS meeting 2012 . TIMS Research Working Group: Jenny Freeman, Paula Gardiner, Susan Hourihan, Ewa Johansson-Charles, Kay McDowell, Alison Nock, Helen Rowlands. . To date: Template from last research project

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sleep disturbance in ms

Sleep Disturbance in MS

Preliminary findings of Questionnaire Survey

TiMS meeting 2012

slide2

TIMS Research Working Group:Jenny Freeman, Paula Gardiner, Susan Hourihan, Ewa Johansson-Charles, Kay McDowell, Alison Nock, Helen Rowlands.

  • To date:
  • Template from last research project
  • MDT focus of project
  • Call for ideas nationally
  • Topic selected: “Sleep Disturbance”
  • Literature search to focus research question
background
Background
  • Sleep disturbance affects quality of life and is related to ↑ risk morbidity in pwMS
  • Management can require input from diferent mdt members
  • Recommended mg’t is incorporated within routine practice
  • BUT we don’t know what is routine practice by the mdt ....►SURVEY
timetable since september
Timetable (since September !)
  • Sept 14th
  • Sept 28th
  • Oct19th
  • Nov 2nd
  • Oct / Nov
  • Nov 7th
  • Nov 13-15th
  • ...Dec 14th
  • Dec 15-20th
  • Dec 23rd
  • Meeting at ION – develop draft 1 (based on literature and feedback MS clinicians)
  • Pilot of Questionnaire V.1(n = 21)
  • Finalised amendments to draft 2
  • Pilot Questionnaire V.2 (N = 5
  • Ethics Approval sought and gained
  • Spreadsheet designed for input
  • Survey distributed & collected
  • Data inputted
  • Data analysed
  • Abstract submittted to RIMS
preliminary findings
Preliminary findings
  • Response rate =70% (180 / 256)
  • Context
    • Range of settings:
    • Mdt (73%)
    • MS (56%) or neurology specialist (28%)
    • Experienced cohort (43% MS focus > 10 years)
  • Interventions used (wide range)
    • Written advice 50%
    • Fatigue m’gt 16%
    • Relaxation 24%
    • Exercise 29%
  • Typically on an individual basis
preliminary findings1
Preliminary findings
  • Is sleep mg’t considered part of role?
    • 84% said YES
  • Are you confident with your knowledge?
    • 10% said YES
  • Do you use a specific sleep assessment instrument?
    • 67% do not
    • 37% unaware that these assessment tools exist
  • Would you value further training?
    • 49% would
thoughts
Thoughts
  • Provides initial understanding what is happening in current UK practice
  • Suggests practice variable and specific knowledge may be limited
  • Verification required
  • Exploration in more depth required about How and Why?
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