Sleep disturbance in ms
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Sleep Disturbance in MS. Preliminary findings of Questionnaire Survey TiMS meeting 2012 . TIMS Research Working Group: Jenny Freeman, Paula Gardiner, Susan Hourihan, Ewa Johansson-Charles, Kay McDowell, Alison Nock, Helen Rowlands. . To date: Template from last research project

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Sleep Disturbance in MS

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Sleep disturbance in ms

Sleep Disturbance in MS

Preliminary findings of Questionnaire Survey

TiMS meeting 2012


Sleep disturbance in ms

TIMS Research Working Group:Jenny Freeman, Paula Gardiner, Susan Hourihan, Ewa Johansson-Charles, Kay McDowell, Alison Nock, Helen Rowlands.

  • To date:

  • Template from last research project

  • MDT focus of project

  • Call for ideas nationally

  • Topic selected: “Sleep Disturbance”

  • Literature search to focus research question


Background

Background

  • Sleep disturbance affects quality of life and is related to ↑ risk morbidity in pwMS

  • Management can require input from diferent mdt members

  • Recommended mg’t is incorporated within routine practice

  • BUT we don’t know what is routine practice by the mdt ....►SURVEY


Timetable since september

Timetable (since September !)

  • Sept 14th

  • Sept 28th

  • Oct19th

  • Nov 2nd

  • Oct / Nov

  • Nov 7th

  • Nov 13-15th

  • ...Dec 14th

  • Dec 15-20th

  • Dec 23rd

  • Meeting at ION – develop draft 1 (based on literature and feedback MS clinicians)

  • Pilot of Questionnaire V.1(n = 21)

  • Finalised amendments to draft 2

  • Pilot Questionnaire V.2 (N = 5

  • Ethics Approval sought and gained

  • Spreadsheet designed for input

  • Survey distributed & collected

  • Data inputted

  • Data analysed

  • Abstract submittted to RIMS


Preliminary findings

Preliminary findings

  • Response rate =70% (180 / 256)

  • Context

    • Range of settings:

    • Mdt (73%)

    • MS (56%) or neurology specialist (28%)

    • Experienced cohort (43% MS focus > 10 years)

  • Interventions used (wide range)

    • Written advice 50%

    • Fatigue m’gt 16%

    • Relaxation 24%

    • Exercise 29%

  • Typically on an individual basis


Preliminary findings1

Preliminary findings

  • Is sleep mg’t considered part of role?

    • 84% said YES

  • Are you confident with your knowledge?

    • 10% said YES

  • Do you use a specific sleep assessment instrument?

    • 67% do not

    • 37% unaware that these assessment tools exist

  • Would you value further training?

    • 49% would


Thoughts

Thoughts

  • Provides initial understanding what is happening in current UK practice

  • Suggests practice variable and specific knowledge may be limited

  • Verification required

  • Exploration in more depth required about How and Why?


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