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Research Bites. Anita MacDonald. Home Delivery of Dietary Products in PKU and other IMD. Have you ever been given the wrong protein substitute?. Prescriptions. Prescriptions. Have you ever been given the wrong protein substitute?

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Anita macdonald

Research

Bites

Anita MacDonald


Anita macdonald

Home Delivery of

Dietary Products

in PKU and other IMD


Anita macdonald

  • Have you ever been given the wrong protein substitute?

Prescriptions

Prescriptions


Anita macdonald

  • Have you ever been given the wrong protein substitute?

  • Have you ever had to wait for more than 7 days to receive your protein substitute?

Prescriptions

Prescriptions


Anita macdonald

  • Have you ever been given the wrong protein substitute?

  • Have you ever had to wait for more than 7 days to receive your protein substitute?

  • Do you ever struggle receiving the right amount from your GP?

Prescriptions

Prescriptions


Anita macdonald

  • Have you ever been given the wrong protein substitute?

  • Have you ever had to wait for more than 7 days to receive your protein substitute?

  • Do you ever struggle receiving the right amount from your GP?

  • Do you have to collect your protein substitute from your chemist?

Prescriptions

Prescriptions


Anita macdonald

  • Have you ever been given the wrong protein substitute?

  • Have you ever had to wait for more than 7 days to receive your protein substitute?

  • Do you ever struggle receiving the right amount from your GP?

  • Do you have to collect your protein substitute from your chemist

  • Do you ever worry about obtaining your protein substitute?

Prescriptions

Prescriptions


Anita macdonald

  • Have you ever been given the wrong protein substitute?

  • Have you ever had to wait for more than 7 days to receive your protein substitute?

  • Do you ever struggle receiving the right amount from your GP?

  • Do you have to collect your protein substitute from your chemist

  • Do you ever worry about obtaining your protein substitute?

Prescriptions

Prescriptions


Anita macdonald

Home delivery service

- organise prescriptions

- dispense special feeds

- home deliver


Anita macdonald

How did we do the study?

  • duration: 1 year

  • 2 groups:

control

home

delivery

n=32

n=30


Anita macdonald

Home delivery service

  • essential dietary products

  • specialist training given to home-delivery team

  • monthly stock levels agreed

  • organised GP prescriptions

  • monthly phone checks with patients/parents


Anita macdonald

Home delivery service

  • products picked by trained warehouse team

  • dispensed by pharmacist

  • delivered to patients/parents home at standard times monthly


Anita macdonald

What did we compare?

  • mistakes

  • delays in receiving products

  • metabolic control

  • user satisfaction


Anita macdonald

Evaluation


Anita macdonald

Safety

15

p<0.05

p<0.05

12

number of problems

1

1


Anita macdonald

Delayed receipt of products

p<0.05

home delivery

control

number of problems


Anita macdonald

Delayed receipt of products

  • control: 31% waited 1-2 weeks for protein substitutes

  • problems:

    - low stock levels

    - lost prescriptions

    - lack of product supply

    - repeated errors


Anita macdonald

Blood phenylalanine control


Anita macdonald

User satisfaction

100

100

97

72

63

53

%


Anita macdonald

pleased with

service…

made

life easier

saves time

and never run

out of products

stress free service.

Don’t know

what we would do without it now……

chemist is a nightmare

-home delivery

is a far better option


Anita macdonald

Conclusions

Home delivery service of protein substitutes:

  • safer than conventional system

  • reliable

  • possibly associated with better metabolic control

  • popular


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