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What can Caxton do ?

What can Caxton do ?. Mike Dorricott – who am I ?. 44 years old, married, 2 children, 2 dogs, 8 chickens and c. 1M bees Infected with Hepatitis C virus 4 times between 1982 – 1985. Mild haemophiliac Diagnosed HCV + ve June 1996 Liver transplant Oct 2000 HCC diagnosed June 2007

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What can Caxton do ?

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  1. What can Caxton do ?

  2. Mike Dorricott – who am I ? • 44 years old, married, 2 children, 2 dogs, 8 chickens and c. 1M bees • Infected with Hepatitis C virus 4 times between 1982 – 1985. Mild haemophiliac • Diagnosed HCV +ve June 1996 • Liver transplant Oct 2000 • HCC diagnosed June 2007 • Second liver transplant Apr 2008 • Retired on ill health grounds November 2008 • HCV and fibrosis detected in new graft June 2009, but HCV ‘undetectable’ since Nov 2008 • TaintedBlood committee member – here as an individual, not representing TB or the haemophilia community.

  3. Caxton ? • Believe that Caxton is an attempt by Government to : • level up the playing field between those infected with HCV only and those who have been receiving help from MFT / Eileen • allow the claim to be made that a package has been put together for all of those affected • Potentially will be limited by : • direction given by Charities Commission • legal restraints • financial constraints • This Government’s policy is made. Caxton is not the solution that many would want.

  4. Caxton Objects … ‘to provide financial assistance and other benefits to meet any charitable need’…. • ‘Needs’ are all relative, not purely dependent on income or assets.

  5. Need is relative – pre impact

  6. Need is relative – post impact • Even with an income of £40k p.a. person B has arguably a greater financial • exposure ( need) than Person A . • Requires individual assessment of impact of infection

  7. Needs that Caxton should address • Maslow’s Hierachy of needs : • Physiological need state should be met by employment, benefits, other income, plus guaranteed minimum income ( as MFT/Eileen/MFT) • Caxton should look to top up the ‘Safety’ need state: • Personal • Financial * • Health /Well Being • Safety Net *

  8. What must Caxton do ? • Provide discretionary support to those infected with HCV in a similar way to that historically made by MFT / Eileen • No discrimination on severity of impact of disease i.e. irrespective of stage 1 or stage 2 or death • No discrimination on basis of income ( including any Skipton payments) • Not based on what MFT / Eileen / MFET does now, it must be based on what support has been made historically • Grants, loans, holiday payments etc • Guarantee a minimum income for those in the most dire of financial need, not including any Skipton Fund payments in any qualifying criteria. • Be a short term safety net for those undergoing treatment, or who have undergone treatment – time lag between employment stopping and benefits commencing ? • Ensure that future support is consistent between Caxton, MFT, Eileen Trusts • No multiple claims from differing trusts • No one falls between the gaps.

  9. What must Caxton do ? - continued • Have clear criteria set regarding claims • Remove any subjectivity • Be as simple as possible for claimants • Take into account the impact of the disease on individuals • Be appropriately publicised • Retrospective ?

  10. Questions

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