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Selena Blake – Senior Commissioning Manager / TYA Programme Manager South West Specialised Commissioning Group. Improving Outcomes Guidance (IOG) - South West Implementation Update. Improving Outcomes Guidance. NICE CYPIOG August 2005 > an IOG defined by age

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Selena Blake – Senior Commissioning Manager / TYA Programme ManagerSouth West Specialised Commissioning Group

Improving Outcomes Guidance (IOG) - South West Implementation Update

South West Specialised Commissioning Group

improving outcomes guidance
Improving Outcomes Guidance
  • NICE CYPIOG August 2005 > an IOG defined by age
  • Improve clinical outcomes and experience of young people AND their families
  • Safe and effective services as locally as possible, NOT local services as safely as possible
  • PTCs providing sustainable services with clearly defined staffing
  • Shared care with defined agreed responsibility
  • Care delivered by tumour specific Multidisciplinary Teams (MDTs)
  • Skilled, professional key workers identified to coordinate care; provide information; assess needs
  • < 19yrs at PTC and > 19yrs to have unhindered access
  • Offered clinical trials, treatment and care via agreed protocols and pathways
  • Registration of cancer in 15 – 24yr olds
  • Implementation by December 2010

South West Specialised Commissioning Group

what has been achieved so far 1
What has been achieved so far? (1)
  • Stakeholder event > Implementation Summary 30th September 2008 to NCAT with proposed model of PTC in Bristol and up to 8 Shared Care Centres > HOSC briefing and agreement
  • Project Implementation Plan > reviewed quarterly
  • Cancer Networks > Children and Young People’s Site Specific Group which includes TYA
  • A UH Bristol TYA Advisory Group and more recently a TYA Project Steering Group which report to the Trust Executive > PTC plans and business case development
  • Appointment of a TYA MDT Co-ordinator at UH Bristol (Trust funded)
  • Appointment of a TYA Lead Nurse in UH Bristol (TCT funded)
  • Appointment of a p/t TYA Clinical Lead at UH Bristol (Trust funded)

South West Specialised Commissioning Group

what has been achieved so far 2
What has been achieved so far? (2)
  • Investment for 09/10 onwards to appoint up to four f/t Shared Care Clinical Liaison posts across the South West (PCT funded)
  • Commissioner investment towards sessions for Psychological Support for TYA (PCT funded)
  • A TYA MDaT to support the treatment of patients across the South West, including a pilot collaboration with external partners to enable a secure virtual platform via which to hold the MDaT
  • Identified site specific ‘tumour champions’ UH Bristol > TYA MDaT
  • £15k non-clinical research grant to research and audit the benefit of the virtual online platform in facilitating teams; building relationships and improving patient outcomes > future PCT investment
  • Funding for developing systems at PTC to report all TYA with cancer, 15 to 24 years > 1st January 2009 (TYAC funded)
  • Teenage Cancer Trust South West fundraisingcampaign launched

South West Specialised Commissioning Group

what has been achieved so far 3
What has been achieved so far? (3)
  • UH Bristol Oncology Unit ‘Refresh Project’ - enhancements of identified facilities for TYAs (TCT funded)
  • Computer internet access and printer in the Cancer Support Centre at UH Bristol for patients and their families > internet access for all TYA with cancer when receiving treatment in hospital (TCT funded)
  • A South West wide User Involvement Group (UIG) of cancer network reps > development of a web site to support patients and families in developing a virtual network which can engage and involve TYA (Cancer Network funded)
  • Data Group to look at patient flows and pathways > UH Bristol
  • Development and circulation of Shared Care proforma > up to 6 possible Shared Care Centres across South West agreed
  • SW SCG taking lead on CTYA Supranetwork Group > PTC and shared care mechanism for sharing practice and expertise
  • National project in progress around supporting patient choice

South West Specialised Commissioning Group

next steps 1
Next Steps (1)
  • PTC and Shared Care partnership planning event > sharing plans and identifying common issues > agreeing way forward
  • Scoping and planning for future designation of Shared Care Centres with PTC
  • Workforce gap analysis and planning > future investment
  • Discussions and appointment of Clinical Liaison posts
  • Roll out of virtual online platform across South West > evaluation and audit > Staff training
  • Further development of TYA MDaT SOPS in liaison with Shared Care Centres > TYA MDaT to include ALL South West patients

South West Specialised Commissioning Group

next steps 2
Next Steps (2)
  • Development of clearly defined patient pathways via PTC and Shared Care Centres > Choice project
  • Identify ‘TYA Champions’ for each tumour site across South West > network of clinical expertise
  • Further development of South West wide web site
  • Development / Appointment of Family Support Network and Activity Co-ordinator posts

South West Specialised Commissioning Group

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